CORE-- CAREGIVER

核心——看护者

• 批准号: 6098159
• 负责人: Kathleen Anne Smyth
• 金额: $ 10.24万
• 依托单位: CASE WESTERN RESERVE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 1999
• 资助国家: 美国
• 起止时间: 1999-08-01 至 2000-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6098159
• 关键词: Alzheimer's disease; behavioral /social science research tag; biomedical facility; caregivers; human subject; information systems; longitudinal human study; questionnaires

The purpose of this proposal is to maintain a unique longitudinal database on family caregivers, linked to longitudinal data on the persons with Alzheimer's disease for whom they provide care. This database will be designed and maintained by the Caregiver Core (CGC) as part of the University Hospitals of Cleveland/Case Western Reserve University Alzheimer Disease Research Center (UHC/CWRU ADRC). This proposal requests continuation of the CGC, which was funded recently (June 1, 1992) as part of a competitive NIA supplement grant (Supplement to NIA ADRC AGO8012 "Caregiver Core"). The specific aims of the CGC, unchanged from the original supplement, are: (a) to provide ADRC and other investigators with an efficient mechanism for obtaining pilot and/or baseline data for caregiver studies, for assessing the suitability of the ADRC caregivers for specific studies, and for generating hypothesis for new research; (b) to improve measurement of key concepts in caregiving research; (c) to investigate the relationship between caregiver characteristics and their performance as proxy respondents for AD subjects in ADRC Clinical Core research; (d) to enhance understanding of caregivers as controls or AD subjects in ADRC Clinical Core research by comparing caregivers with noncaregiver controls; and, (e) to provide opportunities for caregivers to participate in research, thereby enhancing caregiver and patient engagement in research in the UHC/CWRU ADRC. The sample for the CGC will include approximately 200 family caregivers of AD patients currently enrolled in the UHC/CWRU ADRC and approximately 25 non-caregiver controls. Approximately 80 caregivers and 40 non-caregiver controls will be added each year. Longitudinal data will be obtained through mailed questionnaires sent annually to correspond with annual ADRC patient assessments (plus one post-caregiving data collection after the death of the patient). This database on both caregivers and non-caregiver controls will be available to individual investigators and ADRC cores through the Data Management and Analysis Component of the Clinical Core.

该提案的目的是保持独特的纵向 家庭照顾者数据库，与人员纵向数据相关联 他们为患有阿尔茨海默病的人提供护理。 该数据库将 由看护者核心 (CGC) 设计和维护，作为 克利夫兰大学医院/凯斯西储大学 阿尔茨海默病研究中心 (UHC/CWRU ADRC)。 这个提议 请求继续开展近期资助的 CGC（6 月 1 日） 1992）作为竞争性 NIA 补充赠款的一部分（NIA 补充 ADRC AGO8012“看护者核心”）。 CGC的具体目标保持不变 从原来的补充来看，有： (a) 提供 ADRC 和其他 具有获取试点和/或 护理人员研究的基线数据，用于评估护理人员的适用性 ADRC 护理人员进行具体研究并生成假设 新研究； (b) 改进对护理关键概念的衡量 研究; (c) 调查照顾者之间的关系 AD 代理受访者的特征及其表现 ADRC 临床核心研究主题； (d) 增进了解 ADRC 临床核心研究中的护理人员作为对照或 AD 受试者 将看护者与非看护者对照进行比较； (e) 提供 照顾者有机会参与研究，从而 提高护理人员和患者对 UHC/CWRU 研究的参与度 ADRC。 CGC 的样本将包括大约 200 名家庭护理人员 目前参加 UHC/CWRU ADRC 的 AD 患者大约 25 个非看护者控制。 大约 80 名护理人员和 40 每年都会增加非看护者控制措施。 纵向数据将 通过每年发送的邮寄调查问卷来获得 每年进行 ADRC 患者评估（加上一项护理后数据 患者死亡后收集）。 该数据库在两个 护理人员和非护理人员控制将可供个人使用 研究人员和 ADRC 核心通过数据管理和分析 临床核心的组成部分。