Strengthening Bioethics Capacity and Justice in Health

加强健康领域的生物伦理能力和正义

• 批准号: 6838462
• 负责人: Wilfrida M Behets
• 金额: $ 25万
• 依托单位: UNIV OF NORTH CAROLINA CHAPEL HILL
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-08 至 2008-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6838462
• 关键词: Africa; African; Europe; Internet; behavioral /social science research tag; computer system design /evaluation; curriculum; educational resource design /development; ethics; health care personnel; human rights; informed consent; international cooperation; postgraduate education; public health; publications; science education; training; workshop

DESCRIPTION (provided by applicant): Human subjects research in environments of scarcity and inequality requires context-sensitive ethics that incorporates basic transcultural values and promotes social change. We propose to build bioethical training and research capacity at the Kinshasa School of Public Health (KSPH), Democratic Republic of Congo (DRC) through expansion of its partnerships with the University of North Carolina (UNC), and the Catholic University of Louvain, Belgium (UCL). Four Congolese scholars will complete a one-year intensive postgraduate, master-level training program in Bioethics at UCL, and 5 months of mentored bioethics research development, curriculum building, and IRB training at UNC. Upon return to DRC, scholars at the new KSPH Center of Bioethics (CB), will reinforce local IRB capacity; perform innovative and socially relevant independent bioethics research; develop a two-week bioethics module integrated into the MPH program at KSPH; establish a bioethics documentation and consultation service; create original pedagogical material focusing on developing world bioethical issues; design a bioethics website and develop e-learning capacities, and in the fourth year, offer a 2-week intensive course in bioethics for scholars from throughout Francophone Africa. The diverse activities at the new KSPH Center of Bioethics will serve its mission to promote responsible biomedical research and clinical practice in DRC and in francophone Africa. The CB will encourage reflection on the meaning of autonomy in circumstances of poverty and injustice; co-responsibility between communities, research institutions and vulnerable subjects; creative, culturally resonant solutions to ethical conflicts raised by biomedical research; recognition of the importance and limits of procedural informed consent, and the need for 'negotiated consent' embodying mutual respect between researcher and subject. The CB is critical to deal responsibly with public health problems rooted in local and global injustice, and can contribute to social change and the establishment of a new human rights culture.

描述（由申请人提供）：人类受试者在稀缺和不平等环境中的研究需要上下文敏感的伦理，这些伦理符合基本的跨文化价值观并促进社会变革。我们建议通过扩大与北卡罗来纳大学（UNC）和比利时天主教大学的合作伙伴关系，在刚果民主共和国（刚果民主共和国）的金沙萨公共卫生学院（KSPH）建立生物伦理培训和研究能力。 （UCL）。四名刚果学者将在UCL完成为期一年的生物伦理学培训计划，并在UNC举行了5个月的Menter Incorted Bioethics研究开发，课程和IRB培训。返回刚果民主共和国后，新的KSPH生物伦理学中心（CB）的学者将增强当地IRB的能力；进行创新且与社会相关的独立生物伦理学研究；开发一个为期两周的生物伦理模块，该模块集成到KSPH的MPH计划中；建立生物伦理文档和咨询服务；创建针对发展中国家生物伦理问题的原始教学材料；设计一个生物伦理网站并开发电子学习能力，在第四年为来自法语非洲整个非洲的学者提供了为期2周的生物伦理密集课程。新的KSPH生物伦理学中心的各种活动将旨在促进刚果民主共和国和法语非洲法语的负责任的生物医学研究和临床实践。在贫困和不公正的情况下，CB将鼓励反思自治的含义；社区，研究机构和弱势主题之间的共同责任；生物医学研究引起的伦理冲突的创造性，文化共鸣的解决方案；认识到程序知情同意的重要性和局限性，以及对研究人员与受试者之间相互尊重的“协商同意”的需求。 CB对于负责任地处理植根于地方和全球不公的公共卫生问题至关重要，并且可以为社会变革和建立新的人权文化做出贡献。