Web-Based Support for Informal Caregivers in Cancer

为癌症非正式护理人员提供基于网络的支持

• 批准号: 6771040
• 负责人: DAVID H GUSTAFSON
• 金额: $ 46.57万
• 依托单位: UNIVERSITY OF WISCONSIN-MADISON
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-09-30 至 2007-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6771040
• 关键词: Internet; behavioral /social science research tag; breast neoplasms; cancer information system; caregivers; chronic disease /disorder; clinical research; computer assisted instruction; computer human interaction; coping; data collection methodology /evaluation; human subject; interactive multimedia; neoplasm /cancer education; neoplasm /cancer palliative treatment; prostate neoplasms; quality of life

DESCRIPTION (provided by applicant): Informal caregivers need information, skills and emotional support to address physical, spiritual, and emotional needs associated with chronic illnesses including late stage cancer. Unfortunately, current conditions force clinicians to reduce interaction time with patients and informal caregivers. Complimentary methods must be developed to provide needed information and support to caregivers. The proposed research will measure and explain the impact of two computer-based support systems that meet caregiver needs and facilitate information exchange with clinicians. The system, CHESS (Comprehensive Health Enhancement Support System), is a non- commercial computer system that provides patients with disease specific information, emotional support and skills building tools. In the expanded form to be tested here, CHESS with Caregiver Support (CGCHESS) will also provide the caregiver with more information, support and skills training related to palliative care. CGCHESS will be further enhanced to communicate essential patient and caregiver information to clinicians prior to a scheduled clinic visit and when patient symptoms exceed a threshold. Using as recruitment sites the University of Wisconsin Comprehensive Cancer Centers in Madison and Milwaukee, 300 caregivers (33% minorities) of advanced breast and prostate cancer patients will be randomly assigned to: 1) Control group given usual care, 2) Caregiver CHESS (CGCHESS) designed to support both patients and caregivers and 3) Caregiver CHESS with Clinician Report (CGCHESS+CR). Inclusion of breast and prostate cancer patients will provide caregivers of both genders. Our primary hypothesis is that CGCHESS will significantly improve caregiver burden, affect, coping self-efficacy and information competence because of the information, skills building and emotional support CHESS offers to caregivers. We also hypothesize that CGCHESS+CR will improve the outcomes more and that minority caregivers will benefit more than Caucasians. Our process analyses will study the mechanisms of CHESS effect.

描述（由申请人提供）：非正式护理人员需要信息，技能和情感支持，以解决与包括晚期癌症在内的慢性病相关的身体，精神和情感需求。 不幸的是，当前状况迫使临床医生减少与患者和非正式护理人员的相互作用时间。 必须开发免费方法，以向看护人提供所需的信息和支持。 拟议的研究将衡量和解释两个基于计算机的支持系统的影响，以满足照顾者需求并促进与临床医生的信息交流。 该系统，国际象棋（全面的健康增强支持系统），是一种非商业计算机系统，可为患者提供特定的信息，情感支持和技能构建工具。 在此处要测试的扩展形式中，获得护理人员支持（CGCHESS）的国际象棋还将为护理人员提供与姑息治疗有关的更多信息，支持和技能培训。 CGCHESS将进一步增强，以在预定的诊所就诊之前与临床医生交流必要的患者和护理人员信息，以及患者症状超过阈值时。 威斯康星大学在麦迪逊和密尔沃基大学综合癌症中心的使用，将有300名护理人员（33％）（33％的少数族裔）的晚期乳腺癌和前列腺癌患者随机分配给：1）对照组给予的对照组，2）旨在支持患者和护理人员的护理人员Chess（CGCHESS）和CAREGCH CAREIN CAREIS CARTIER CARNICIAN CARCEINCER CARNICIAN CARCEIS CARMIS CLINES（） 包括乳腺癌和前列腺癌患者将为两种性别提供护理人员。 我们的主要假设是，由于信息，技能构建和情感支持国际象棋为护理人员提供的信息，技能和情感支持，CGCHESS将显着改善护理人员负担，影响，应对自我效能和信息能力。 我们还假设CGCHESS+CR将改善结果，而少数群体的照顾者将使高加索人受益更多。 我们的过程分析将研究国际象棋效应的机制。