MEASURING SIBLING CANCER RELATED BELIEFS AND ADJUSTMENTS

衡量兄弟姐妹癌症相关的信念和调整

• 批准号: 6840691
• 负责人: MELISSA A. ALDERFER
• 金额: $ 8.3万
• 依托单位: CHILDREN'S HOSP OF PHILADELPHIA
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-20 至 2006-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6840691
• 关键词: adolescence (12-20); age difference; anxiety; behavior prediction; behavioral /social science research tag; belief; child psychology; clinical research; depression; family structure /dynamics; focus groups; human subject; method development; middle childhood (6-11); neoplasm /cancer diagnosis; pediatric neoplasm /cancer; perception; posttraumatic stress disorder; psychological adaptation; psychological aspect of cancer; psychometrics; questionnaires; siblings

DESCRIPTION (provided by applicant): When children are diagnosed with cancer, their entire family is affected. As part of the family system, healthy siblings of children with cancer may witness their brother or sister in physical and emotional pain, experience sudden and extended separations from him or her, and worry that he or she will die. Additionally, these siblings may be separated from at least one of their parents for extended periods, have their daily routines disrupted, and need to negotiate changes in family roles and responsibilities due to cancer and its treatment. Given the level of disruption that childhood cancer causes for families, it is not surprising that siblings of children with cancer have been found to display anxiety, depression, and posttraumatic stress. At the same time, however, some siblings report positive outcomes of cancer such as enhanced empathy and maturity. Little is known about what distinguishes siblings who thrive after cancer from those that have difficulties. The few research studies available suggest siblings' beliefs about the cancer experience and their perceptions about the effects of cancer on their family system influence their emotional and behavioral reactions to cancer. The goal of the proposed study is to create a reliable and valid method for assessing the cancer-related beliefs of siblings that are associated with their adjustment. The Specific Aims of the project are: 1) Create a measure of the cancer-related beliefs held by siblings of children with cancer based upon focus groups with siblings, a review of the literature, and input from experts working with families of children with cancer; 2) Refine the measure, determine its structure, and assess its reliability (i.e., internal consistency, test-retest reliability) after administering it to 150 siblings of children with cancer; 3) Evaluate the validity of the refined measure against a currently used measure of siblings' perceptions of cancer, measures of psychosocial adjustment, family functioning, and dispositional characteristics; and 4) Explore variation in the measure as a function of developmental stage. Unlike current measures for assessing sibling's beliefs, the Sibling Illness Belief Inventory (SIBI) is innovative in that it will include a broad range of beliefs (i.e., both growth enhancing and growth-inhibiting beliefs) and serve as a first step in a program of research aimed at creating an intervention that targets cancer-related beliefs of siblings to improve their adjustment to cancer.

描述（由申请人提供）： 当儿童被诊断出患有癌症时，他们的整个家庭都会受到影响。作为家庭制度的一部分，癌症儿童的健康兄弟姐妹可能见证了他们的身体和情感痛苦中的兄弟姐妹，经历与他或她的突然分离，并担心他或她会死。此外，这些兄弟姐妹可以长时间与至少一个父母分开，每天的日常工作中断，并且需要协商因癌症及其治疗而导致的家庭角色和责任的变化。鉴于儿童癌为家庭造成的破坏程度，发现患有癌症儿童的兄弟姐妹表现出焦虑，抑郁和创伤后压力也就不足为奇了。然而，与此同时，一些兄弟姐妹报告了癌症的积极成果，例如增强的同理心和成熟度。关于兄弟姐妹在癌症之后壮成长的兄弟姐妹与遇到困难的兄弟姐妹的了解知之甚少。可用的少数研究表明，兄弟姐妹对癌症经历的信念及其对癌症对家庭系统影响的看法影响了他们对癌症的情绪和行为反应。拟议的研究的目的是创建一种可靠且有效的方法，用于评估与其调整相关的兄弟姐妹的癌症相关信念。该项目的具体目的是：1）基于与兄弟姐妹的焦点小组，文献综述以及与癌症儿童家庭一起工作的癌症儿童兄弟姐妹的兄弟姐妹的兄弟姐妹的兄弟姐妹的衡量标准。 ; 2）在对150个癌症儿童的兄弟姐妹进行管理后，完善措施，确定其结构并评估其可靠性（即内部一致性，测试可靠性）； 3）评估精制度量的有效性，以对当前使用的兄弟姐妹对癌症的看法，社会心理调整，家庭功能和性格特征的措施进行评估； 4）探索度量的变化是发展阶段的函数。与当前评估兄弟姐妹信念的措施不同，兄弟姐妹疾病信念清单（SIBI）具有创新性，因为它将包括广泛的信念（即增强增长和抑制成长的信念），并在一项计划中迈出了第一步。研究旨在创建针对兄弟姐妹的兄弟姐妹信念的干预措施，以改善其对癌症的调整。