Knowledge Empowerment for Youth with Solid Tumors

实体瘤青少年的知识赋能

• 批准号: 6582654
• 负责人: Judith K Jones
• 金额: $ 46.6万
• 依托单位: DEGGE GROUP, LTD.
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-08-01 至 2005-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6582654
• 关键词: DVD /CD ROM; adolescence (12-20); cancer information system; clinical research; computer assisted instruction; computer program /software; computer system design /evaluation; educational resource design /development; focus groups; human subject; interactive multimedia; interview; middle childhood (6-11); neoplasm /cancer education; pediatric neoplasm /cancer

DESCRIPTION (provided by investigator): Childhood cancer is the number one disease killer of children and adolescents in North America. For adolescents, a diagnosis of cancer comes at a particularly vulnerable developmental stage in their lives. Phase I focus group interviews indicated that these adolescents are adamant about wanting to know and learn about all aspects of their disease and how it will impact their lives. Unfortunately, few educational tools exist for these young cancer patients, particularly those with solid tumors, and none are in an interactive format. This application seeks funding to complete and evaluate a multimedia CD-ROM for 12-18 year-olds with solid tumors to teach them about their disease, treatment, and coping strategies. A combination of text, videos, animations/graphics, voice-overs, music, and games will creatively relay important information in an interactive and non-threatening manner. This innovative product is the first of its kind, focusing on solid tumors. It will be evaluated in a randomized pre-post design against a "usual care" print handbook to determine its effect on coping skills, feelings of control over health, knowledge about solid tumors and their treatment, satisfaction, and acceptability. Once developed, the CD-ROM will be marketed so that it will be available to all adolescents with solid tumors.

描述（由研究者提供）：儿童癌症是北美儿童和青少年的头号疾病杀手。 对于青少年来说，癌症的诊断是在他们生命中特别脆弱的发育阶段进行的。 第一阶段焦点小组访谈表明，这些青少年坚定地想要了解和了解其疾病的各个方面以及它将如何影响他们的生活。 不幸的是，针对这些年轻癌症患者，特别是实体瘤患者的教育工具很少，而且没有一个是交互式的。 该申请寻求资金来完成和评估针对 12-18 岁实体瘤患者的多媒体 CD-ROM，以向他们传授疾病、治疗和应对策略。文本、视频、动画/图形、画外音、音乐和游戏的结合将以交互式和非威胁性的方式创造性地传递重要信息。该创新产品是同类产品中的首创，专注于实体瘤。它将根据“常规护理”印刷手册以随机的前后设计进行评估，以确定其对应对技能、对健康的控制感、有关实体瘤及其治疗的知识、满​​意度和可接受性的影响。一旦开发完成，该 CD-ROM 将推向市场，以便所有患有实体瘤的青少年都可以使用它。