CORE-- CAREGIVING

核心——护理

• 批准号: 6611075
• 负责人: Kathleen Anne Smyth
• 金额: $ 20.26万
• 依托单位: CASE WESTERN RESERVE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-07-15 至 2003-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6611075
• 关键词: Alzheimer's disease; behavioral /social science research tag; biomedical facility; caregivers; clinical research; data collection methodology /evaluation; dyadic interaction; human subject; information systems; questionnaires; training

The Caregiving Core (CGC) is designed to: 1) continue development and maintenance of a registry of family caregivers of persons with Alzheimer's disease and related dementias (ADRD) and a comparison group of persons who are not ADRD caregivers; 2) characterize CGC Registry members across time and across major phases of the caregiving trajectory (i.e., in the community, after long-term care placement, and after bereavement); 3) support development of interdisciplinary caregiving research locally, regionally and across Alzheimer's Disease Centers and 4) facilitate the evaluation of computer-mediated communication technologies as education and support interventions for caregivers. The CGC is organized into three functional units to achieve these aims: 1) Recruitment and Retention, which develops and monitors the CGC sample to ensure enrollment of adequate numbers of subjects in targeted subgroups; 2) Sample Characterization and Measurement, which initiates and manages annual assessments of subjects, edits and Caregiving Research Development and Facilitation, which conducts specific activities involving local, regional development of innovative multi-disciplinary research projects for external funding. The CGC is based on the premise that facilitating and enhancing the quality of research on caregivers and caregiving contributes significantly to the effectiveness of research on ADRD, particularly as it relates to health care delivery and policy. The data collected are provided to the Data Management and Analysis Core for computerization and construction of merged data sets of CGC and Clinical Core data for use by investigators. The CGC collaborates on recruitment with the Clinical Core, the Minority Recruitment Satellite, and the Education and Information Transfer Core to maximize participation of caregivers and persons with ADRD in ADRC-supported projects.

护理核心（CGC）旨在：1）继续开发和维持患有阿尔茨海默氏病和相关痴呆症（ADRD）的家庭护理人员的注册表，以及不是ADRD护理人员的比较组； 2）表征CGC注册表成员在整个时间和跨越护理轨迹的主要阶段（即在社区，长期护理安置之后和丧亲之后）的特征； 3）支持在当地，地区和阿尔茨海默氏病中心的跨学科护理研究的发展，4）促进评估计算机介导的通信技术作为护理人员的教育和支持干预措施。 CGC分为三个功能单元，以实现这些目标：1）招募和保留率，该招募和保留率开发并监视CGC样品，以确保在目标亚组中招募足够数量的受试者； 2）样本表征和测量，启动和管理对受试者，编辑和护理研究开发和促进的年度评估，该研究开展了特定的活动，涉及本地区域开发外部资金的创新多学科研究项目。 CGC基于这样的前提，即促进和增强对护理人员和护理人员的研究质量的质量，对ADRD研究的有效性做出了重大贡献，尤其是与医疗保健提供和政策有关。收集的数据提供给数据管理和分析核心，用于计算机化和构建CGC和临床核心数据的合并数据集，以供研究人员使用。 CGC与临床核心，少数招募卫星以及教育和信息转移核心合作，以最大程度地参与ADRD参与ADRC支持的项目。