Education in Genetic Ethics ('EDGE')

遗传伦理教育（“EDGE”）

• 批准号: 6459442
• 负责人: MARK A ROTHSTEIN
• 金额: $ 56.56万
• 依托单位: UNIVERSITY OF LOUISVILLE
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-05-03 至 2005-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6459442
• 关键词: clinical research; computer assisted instruction; curriculum; education evaluation /planning; educational resource design /development; ethics; genetics; health related legal; health science research; social perception

The Institute for Bioethics, Health Policy, and Law at the University of Louisville, and collaborators from The Hastings Center, Stanford University Center for Biomedical Ethics, and Michigan State University, propose to develop, offer and evaluate a research ethics training program in human genetics called EDGE, or Education in Genetics Ethics. Course development will be responsiveness to identified unmet needs in research ethics training based upon a large scale national needs assessment conducted among a target audience of investigators involved in genetics research, including academicians, clinicians, laboratory practice professionals, genetic counselors, nurses and others involved in human genetics research. he target audience will be recruited as course participants, with special effort made to recruit those who have been traditionally under-represented in the field of research ethics. Interactive instruction for course participants will occur through a 2-day on-site workshop offered at different locations throughout the U.S. six times a year, and a computer-mediated Web-based course. The on-site course will include short, didactic sessions that address genetic research issues using general ethics principles; small group problem-solving and discussion sections involving genetics research ethics issues using specially developed case studies; plenary sessions highlighting historical and developing trends in the field provided by experienced investigators and scholars in the field; and evaluation sessions to assess research ethics experience and knowledge gained. The computer-mediated interaction through a specially developed Web site that includes instructor-provided electronic text or recorded presentation option, on- line readings, asynchronous participant problem-solving case study modules, interactive e-mail, chat room and e-board facilities, links to relevant Web-based resources, and on-line evaluation materials. Both courses, will provide continuing education credit, and are easily sustainable. The specific aims of this project are to: 1) develop a specialized and transportable research ethics training program based upon the unmet needs of genetics research; 2) deliver the EDGE training program using on-site and online methods; and 3) evaluate the impact of the course. The project includes a curriculum steering committee comprised of experts in the field of genetics research and genetics education, as well as select project team members, to provide on-going advance to the project.

路易斯维尔大学的生物伦理学，卫生政策和法律研究所，以及黑斯廷斯中心，斯坦福大学生物医学伦理学中心和密歇根州立大学的合作者，建议开发，提供和评估一种称为Edge的研究伦理学培训计划，称为EDGE或遗传学教育。课程开发将对研究伦理学培训中未满足的需求的反应能力，该培训基于参与遗传学研究的研究人员的大规模国家需求评估，包括院士，临床医生，实验室实践专业人员，遗传咨询师，护士，护士以及参与人类遗传学研究的其他人。他的目标受众将被招募为课程参与者，并特别努力招募那些在研究伦理领域的传统人数不足的人。课程参与者的互动教学将通过在美国各个地方提供的为期2天的现场研讨会进行，每年六次，以及基于计算机介导的网络课程。现场课程将包括简短的教学会议，以使用一般伦理原则来解决遗传研究问题；小组解决和讨论部分涉及遗传学研究伦理问题，使用特殊开发的案例研究；全体会议强调了该领域经验丰富的研究人员和学者提供的历史和发展趋势；以及评估研究道德经验和知识的评估课程。通过一个特殊开发的网站进行了计算机介导的交互作用，其中包括指导者提供的电子文本或记录的演示选项，内线读取，异步参与者解决问题的案例研究模块，交互式电子邮件，聊天室和电子板设施，链接到相关的网络基于基于网络的资源以及在线评估材料。这两种课程都将提供继续教育的信用，并且很容易可持续。该项目的具体目的是：1）根据遗传学研究的未满足需求，制定一项专业且可运输的研究伦理培训计划； 2）使用现场和在线方法提供边缘培训计划； 3）评估课程的影响。该项目包括一个课程指导委员会，该委员会由遗传学研究和遗传学教育领域的专家以及精选项目团队成员组成，以提供该项目的持续进步。