A Translational Autism Program at the M.I.N.D. Institute

M.I.N.D. 的转化自闭症项目

• 批准号: 6475146
• 负责人: David G Amaral
• 金额: $ 14.62万
• 依托单位: UNIVERSITY OF CALIFORNIA AT DAVIS
• 依托单位国家: 美国
• 财政年份: 2001
• 资助国家: 美国
• 起止时间: 2001-09-25 至 2003-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6475146
• 关键词: autism; behavioral /social science research tag; biomedical facility; biomedical registry /referral center; community health services; computer program /software; data management; developmental neurobiology; developmental psychology; education evaluation /planning; health care service planning; health science research analysis /evaluation; health science research support; health services research tag; interdisciplinary collaboration; patient oriented research; telemedicine; university; workshop

DESCRIPTION (Provided by applicant): The UC Davis M.I.N.D. (Medical Investigation of Neurodevelopmental Disorders) Institute was founded in 1998 as an interdisciplinary organization to study autism and other neurodevelopmental disorders. This unique collaboration among parents, community leaders, and researchers and clinicians at UC Davis takes a three-pronged approach to solving neurodevelopmental disorders; it brings together resources at UC Davis, from the Sacramento community and from the broader UC system to focus on basic and clinical research, patient treatment, and the education of patients, families and providers. Current activities include: an aggressive recruitment campaign to develop a critical mass of researchers, clinicians and educators; the construction of a campus of five buildings comprising approximately 142,000 sq. ft. of space that will include a comprehensive pediatric clinic, two research buildings, a community center and a laboratory school; and the expansion of an active intramural and extramural research program. The vision of the M.I.N.D. Institute is entirely consistent with the establishment of a translational Center of Excellence in Autism Research as outlined in the Children's Health Act of 2000. However, with the intense activity currently underway at the Institute and our need to incorporate many new Institute faculty into the preparation of a Center grant, we believe that it is premature to submit an application for the December deadline. The Developmental Grants for Autism Centers of Excellence provide a useful mechanism for enabling comprehensive discussion, consultation and decision-making in preparation for submission of such an application in 2002. During the planning year we will focus on defining those areas of translational research and community outreach that the M.I.N.D. Institute is best suited to pursue as an Autism Center of Excellence. A broad-based, twenty member, leadership team will participate in weekly brainstorming sessions to shape the aims of our expected application. Intensive two-day Focus Group sessions, during which consultants will not only present their latest data, but also advise the Institute on such promising areas as Biomarkers Research, Clinical Drug Trials, and Innovative Treatments for Autism, will inform the deliberations of this group. We will pursue collaborative relationships with California State University, Sacramento, and several Sacramento County school districts to establish pilot educational programs for children with autism. Evaluation, selection and implementation of a comprehensive database management system will be a priority for ensuring the seamless flow of information between the Institute's clinical and research efforts. Finally, we will explore the feasibility of using telemedicine technology for clinical care and education in autism.

描述（由申请人提供）：UC Davis M.I.N.D. （医疗的 神经发育障碍的调查）研究所成立于1998年 一个研究自闭症和其他神经发育的跨学科组织 疾病。父母，社区领袖和 加州大学戴维斯分校的研究人员和临床医生采用三管齐下的方法 解决神经发育障碍；它汇集了加州大学戴维斯分校的资源 从萨克拉曼多社区和从更广泛的UC系统到基本的关注 以及临床研究，患者治疗和对患者的教育， 家庭和提供者。当前活动包括：积极招聘 旨在发展大量研究人员，临床医生和教育者的运动； 建造一个约142,000个建筑物的校园 空间的平方英尺，将包括一个全面的儿科诊所，两个 研究大楼，社区中心和实验室学校；和 扩展主动壁内和壁外研究计划。愿景 M.I.N.D.研究所完全与建立 自闭症研究卓越卓越中心 2000年的《儿童健康法》。但是，目前的激烈活动 研究所正在进行，我们需要纳入许多新研究所 教师准备中心赠款，我们认为这还为时过早 提交12月截止日期的申请。发展赠款 对于自闭症中心，卓越中心为实现 准备准备，咨询和决策 在2002年提交此类申请。在计划年度，我们将 专注于定义转化研究和社区外展的领域 M.I.N.D.研究所最适合作为自闭症中心 卓越。一个基于广泛的二十名成员，领导团队将参加 每周头脑风暴会议以塑造我们预期应用的目标。 密集的为期两天的焦点小组会议，在此期间，顾问不仅会 介绍他们的最新数据，但也向研究所提供有关这种有前途的 作为生物标志物研究，临床药物试验和创新治疗的领域 对于自闭症，将告知该小组的审议。我们将追求 与加利福尼亚州立大学，萨克拉曼多和 萨克拉曼多县的几个学区建立飞行员教育 自闭症儿童计划。评估，选择和实施 全面的数据库管理系统将成为确保 研究所的临床和研究之间的无缝信息流 努力。最后，我们将探索使用远程医疗的可行性 自闭症临床护理和教育技术。