HEALTH BENEFITS OF PSYCHO-SOCIAL INTERVENTIONS IN CF

心理社会干预对 CF 的健康益处

基本信息

批准号：
3353216
负责人：
WARREN J WARWICK
金额：
$ 31.28万
依托单位：
UNIVERSITY OF MINNESOTA
依托单位国家：
美国
项目类别：
财政年份：
1987
资助国家：
美国
起止时间：
1987-09-01 至 1993-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/3353216
关键词：
adolescence (12-20) behavioral medicine child (0-11) chronic disease /disorder computer assisted instruction coping cystic fibrosis health education human subject parents psychosocial rehabilitation self care self help social adjustment therapy compliance young adult human (21-34)

项目摘要

This project will demonstrate that intensive age-specific educational intervention programs will significantly improve the coping abilities and physical health of patients with cystic fibrosis (CF). The educational interventions will be used on four age groups: newly diagnosed infants, pre-adolescents, adolescents and young adults. Parents will be trained to cope with the special psychological needs of the child with CF with individual cognitive behavioral training soon after diagnosis and by computer assisted instruction problem solving training. Adolescent cystic fibrosis patients will be given an intensive program of self-care training to learn to be less dependent on others for their medical needs, to help in their struggles for independence and to increase their compliance with therapy. Young adults with CF will be shown how to live independently while coping with their disease through a comprehensive training program emphasizing development of personal, psychological and social skills. Participants in this program will demonstrate improved physical health, psychological and social function and will show progress at all ages towards living independently and towards normal social relationships. A home monitoring program will follow the day-to-day physical and psychosocial progress of these patients while an extensive medical and demographic database will reveal short and long term benefits. Special attention will be given to physical and immunological changes as demonstrating quantifiable organic changes associated with the psychological and social behavioral changes. The project will also demonstrate how the children will make the transition into new stages in their lives with the knowledge and coping abilities they gain. The interventions used in this project will be integrated to cover an entire CF patient population into a package of tools and techniques that will be transferable to all CF Centers and which will serve as a model for other chronic diseases which affect children and their families.

该项目将证明强化针对特定年龄教育干预计划将显着改善囊性纤维化患者的应对能力和身体健康状况（CF）。教育干预措施将用于四个年龄段人群：新诊断的婴儿、青春期前儿童、青少年和年轻人。家长将接受培训以应对特殊情况 CF儿童的心理需求与个体认知诊断后立即通过计算机辅助进行行为训练指导问题解决培训。青少年囊性纤维化患者将接受强化的自我护理培训计划学会减少对他人医疗需求的依赖，帮助他们争取独立并提高他们的能力遵守治疗。将展示患有 CF 的年轻人如何在应对疾病的同时独立生活全面的培训计划，强调发展个人、心理和社交技能。本次活动参与者计划将证明身体健康、心理健康得到改善和社会功能，并将在所有年龄段显示出进步独立生活并建立正常的社会关系。一个家庭监测计划将遵循日常身体和这些患者的心理社会进步，同时广泛的医疗人口数据库将揭示短期和长期好处。将特别关注身体和免疫学变化表明可量化的有机变化与心理和社会行为相关的变化变化。该项目还将展示孩子们如何使他们过渡到人生的新阶段他们获得的知识和应对能力。使用的干预措施在这个项目中将被整合以覆盖整个 CF 患者将人口纳入一揽子工具和技术中可转移到所有 CF 中心，并将作为模型影响儿童及其家庭的其他慢性疾病。