Family Resource Center

家庭资源中心

• 批准号: 6595090
• 负责人: Jane E O'Brien
• 金额: $ 4.45万
• 依托单位: JOSEPH P. KENNEDY JR. MEM HOSP (BOSTON)
• 依托单位国家: 美国
• 财政年份: 2003
• 资助国家: 美国
• 起止时间: 2003-01-20 至 2004-01-19
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6595090
• 关键词: Internet; adolescence (12-20); behavioral /social science research tag; biomedical resource; child (0-11); computer human interaction; computer program /software; critical care; developmental disease /disorder; family medicine; health care quality; health care service; health services research tag; hospital length of stay; hospital patient care; information systems; injury /disease stressor; intensive care; medical appointment; outpatient care; patient care management; patient care personnel relations; patient care planning; pediatrics; trauma; young adult human (21-34)

DESCRIPTION (provided by applicant): Franciscan Children's Hospital ("FCH") provides medical, rehabilitation, behavioral health, education, and related support services to 15,000 children annually who have severe and complex special health care needs. The National Library of Medicine Internet Access to Digital Libraries grant will be used to expand, and enhance our new Family Resource Center ("FRC"), which we opened on a 40-bed pediatric inpatient medical unit in 2001. The purpose of the FRC is to contribute to improved quality of care for these children and to reduce the stress on caregivers. FCH patients are children (birth to age 22) with severe developmental disabilities, genetic disorders, or traumatic injuries requiring specialized care and technology, including frequent hospital stays, typically of at least 30-60 days. The FRC provides parents of patients with 24-hr/day Internet access to digital information and support related to their children's health care, discharge planning, advocacy, and support. Access is through our easy-to-use, well-organized web page, which contains links to health-related information, organizations, and events of interest to parents of children with special health care needs. On-site, parents can use the designated Family Resource Center computer, located in a quiet room on the nursing floor. Off-site, they can access the website through their own computers. No password or subscription is required. The NLM grant will be used to increase usership by: establishing an additional FRC on an inpatient pediatric & adolescent psychiatric unit; promoting the FRC as a resource among FCH's 15,000 patient families and all families of children with special health care needs; and translating the web page and promotional materials into additional languages to make it accessible to more families. This grant will enhance the digital resources that the FRC has available by increasing the Internet access speed, expanding its content with an emphasis on behavioral health additions, and adding one-click links to key web information sources (such as MEDLINEplus).

描述（由申请人提供）： 方济会儿童医院（“FCH”）提供医疗、康复、行为健康、 每年为 15,000 名有严重和复杂特殊医疗保健需求的儿童提供教育和相关支持服务。国家医学图书馆数字图书馆互联网接入拨款将用于扩大和增强我们新的家庭资源中心 (“FRC”)，该中心是我们于 2001 年在一个拥有 40 个床位的儿科住院医疗单位开设的。 FRC 的目的旨在提高这些儿童的护理质量并减轻护理人员的压力。 FCH 患者是患有严重发育障碍、遗传障碍的儿童（出生至 22 岁） 需要专门护理和技术的疾病或外伤，包括频繁 住院时间，通常至少 30-60 天。 FRC 为患者家长提供每天 24 小时互联网访问，以获取与其孩子的医疗保健、出院计划、宣传和支持相关的数字信息和支持。通过我们易于使用、组织良好的网页进行访问，其中包含与健康相关的信息、组织和有特殊医疗保健需求的儿童的父母感兴趣的活动的链接。在现场，家长可以使用指定的家庭资源中心计算机，该计算机位于护理楼层安静的房间内。在场外，他们可以通过自己的计算机访问该网站。无需密码或订阅。 NLM 拨款将用于通过以下方式增加用户数量： 在 住院儿科和青少年精神病科；促进 FRC 作为 FCH 之间的资源 15,000个患者家庭以及所有有特殊医疗保健需求的儿童家庭；和翻译 将网页和宣传材料翻译成其他语言，以便更多人可以访问 家庭。这笔赠款将通过提高互联网访​​问速度、扩展其内容（重点关注行为健康补充）以及添加关键网络信息源（例如 MEDLINEplus）的一键链接来增强 FRC 可用的数字资源。