PEDIATRIC LEUKEMIA PATIENT EDUCATIONAL CD-ROM

儿童白血病患者教育 CD-ROM

• 批准号: 2424639
• 负责人: JOHN F MARUCA
• 金额: $ 9.18万
• 依托单位: IMAGE ASSOCIATES
• 依托单位国家: 美国
• 财政年份: 1997
• 资助国家: 美国
• 起止时间: 1997-08-20 至 1999-02-19
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2424639
• 关键词: DVD /CD ROM; cancer information system; clinical research; computer program /software; education evaluation /planning; human subject; interactive multimedia; leukemia; neoplasm /cancer education; pediatric neoplasm /cancer

DESCRIPTION: The majority of children with cancer are cured of their malignancy with minimal or no impact on their functionality. For acute Lymphoblastic Leukemia current success rates approach 75%. This success has important implications. Children will be integrating back to their pre-diagnosis routine, Education about their condition to the child, parents, siblings, classmates, and others is vital to the success of this integration. The "Clubhouse Kids Learn About Leukemia" is an interactive multimedia educational CD-ROM for these populations. During Phase I a storyboard, script design document, and prototype module will be developed. These materials will be evaluated by a focus group of patients, parents and professionals who are involved with ALL. Comments of this group will be used to develop the complete CD in SBIR Phase II where it will be evaluated for usefulness and effectiveness.

描述：大多数患有癌症的儿童都被治愈，对其功能影响很小或没有影响。 目前治疗急性淋巴细胞白血病的成功率接近 75%。 这一成功具有重要意义。 孩子们将重新融入诊断前的常规，向孩子、父母、兄弟姐妹、同学和其他人进行有关他们病情的教育对于这种融入的成功至关重要。 “俱乐部儿童了解白血病”是针对这些人群的交互式多媒体教育 CD-ROM。 在第一阶段，将开发故事板、脚本设计文档和原型模块。 这些材料将由参与 ALL 的患者、家长和专业人员组成的焦点小组进行评估。 该小组的意见将用于在 SBIR 第二阶段开发完整的 CD，并对其实用性和有效性进行评估。