Social media use and social support among adolescent siblings of children with cancer

癌症儿童青少年兄弟姐妹的社交媒体使用和社会支持

• 批准号: 10326344
• 负责人: Sarah E Wawrzynski
• 金额: $ 2.11万
• 依托单位: UNIVERSITY OF UTAH
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-01-01 至 2022-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10326344
• 关键词: 18 year old; Address; Adolescent; Adolescent Development; Affect; Age; Aggressive behavior; Anxiety; Attention; Award; Cancer Family; Child; Childhood Cancer Treatment; Chronic; Chronic stress; Consent; Data; Databases; Development; Diagnosis; Discipline of Nursing; Doctor of Philosophy; Emotional; Environment; Equation; Evaluation; Family; Family member; Friends; Funding; Future; Health; Healthcare; Image; Institutes; Intervention Studies; Interview; Knowledge; Lead; Learning; Life; Loneliness; Malignant Childhood Neoplasm; Malignant Neoplasms; Maps; Measures; Mediating; Medical; Mental Depression; Methods; Modeling; Monitor; Outcome; Parents; Participant; Perception; Performance; Persons; Play; Post-Traumatic Stress Disorders; Quality of life; Questionnaires; Reporting; Research; Research Methodology; Resources; Risk; Role; Sampling; Schools; Secure; Severities; Siblings; Social Adjustment; Social Network; Social Perception; Social support; Source; Structure; Support System; Surveys; Symptoms; Text; Time; Training; United States National Institutes of Health; Universities; Utah; Validation; Visual; age group; behavioral outcome; cancer diagnosis; care giving burden; caregiving research; college; design; emotional adjustment; experience; improved; interdisciplinary collaboration; meetings; physical symptom; programs; prospective; psychosocial; psychosocial adjustment; recruit; research and development; skills; social; social media; social observations; social relationships; social stress; stress management; support network

Project Summary/Abstract Being a sibling of a child diagnosed with cancer can be a lonely and unsettling experience. Necessarily, parents, other family and members of their social networks turn their attention to meeting the medical and support needs of the child diagnosed with cancer. Siblings of children with cancer have demonstrated a variety of poor psychosocial maladjustments including anxiety, depression, alienation, poor school functioning and lower quality of life. At the same time, up to 85% of adolescents report social media access and use, with many stating they are online multiple times a day. Emerging research suggests that these social media-mediated relationships and interactions (i.e., social networks) may serve as critical sources of support for this age group, and influence health outcomes more generally. According to the stress-buffering hypothesis, the perception of social support is a key factor in psychosocial outcomes in adolescents and their adjustment to living in a family affected by cancer. This proposal addresses two critical research objectives that have not been investigated among siblings of children with cancer. 1) Describe the role of social media within SoCwC’s self-identified social support network and 2) Examine how SM use influences the relationship between online social support and psychosocial adjustment. A mixed method approach will utilize semi- structured interviews with siblings to map their social eco-networks, observation of social media interactions, which will inform a quantitative assessment of social support, social media use and psychosocial adjustment. This study will identify ways in which social media support can be leveraged in meaningful ways for future interventions, study, and support among sibling of children with cancer. Training Plan: The proposed training aims to be achieved during the award period are: 1) Acquire theoretical and substantive knowledge relevant to the interplay of social relationships and stress on the psychosocial adjustment of children; 2) Apply and refine essential research skills related to working with and engage children, adolescents, and their families affected by cancer in research; 3) Design and develop a secure and efficient database and an online survey that will be used to screen, consent, and collect data. Learn and apply structural equation modeling to survey data gathered; 4) Learn research methods for assessing social networks and social media data that can be applied in my future program of research. Environment: The College of Nursing at the University of Utah has a strong nursing PhD program well known for their NIH funding and its focus on cancer and family caregiving research. Further, the University provides numerous opportunities for interdisciplinary collaboration for training for professional development and research including affiliation with Intermountain Healthcare and Huntsman Cancer Institute.

项目概要/摘要 作为被诊断患有癌症的孩子的兄弟姐妹可能是一种孤独和不安的经历。 父母、其他家庭及其社交网络的成员将注意力转向与医疗和社交媒体见面。 诊断患有癌症的孩子的支持需求 患有癌症的孩子的兄弟姐妹表现出各种各样的支持需求。 不良的心理社会适应不良，包括焦虑、抑郁、疏远、学校功能不佳和 与此同时，高达 85% 的青少年表示访问和使用社交媒体，其中许多人的生活质量较低。 新兴研究表明，他们每天会多次上网。 关系和互动（即社交网络）可以作为该年龄段的重要支持来源， 并更广泛地影响健康结果 根据压力缓冲假说 社会支持是青少年心理社会结果及其适应家庭生活的关键因素 该提案涉及两个尚未受到癌症影响的关键研究目标。 对患有癌症的儿童的兄弟姐妹进行调查 1) 描述社交媒体在其中的作用。 SoCwC 自我认定的社交支持网络以及 2) 检查 SM 的使用如何影响关系 在线社会支持和心理社会调整之间的混合方法将利用半 对兄弟姐妹进行结构化访谈，以绘制他们的社交生态网络，观察社交媒体互动， 这将为社会支持、社交媒体使用和社会心理调整的定量评估提供信息。 这项研究将确定如何在未来以有意义的方式利用社交媒体支持 对患有癌症的儿童的兄弟姐妹进行干预、研究和支持。 培训计划： 奖励期间拟实现的培训目标是： 1) 获得理论知识 以及与社会关系相互作用和社会心理压力相关的实质性知识 2）应用和完善与儿童合作和参与相关的基本研究技能 受癌症影响的儿童、青少年及其家庭参与研究；3) 设计和开发安全且可靠的方法； 高效的数据库和在线调查将用于筛选、同意和收集数据。 对收集的调查数据进行结构方程建模 4) 学习评估社会的研究方法； 网络和社交媒体数据可以应用于我未来的研究计划。 环境：犹他大学护理学院拥有强大的护理博士项目而闻名 以表彰其 NIH 的资助及其对癌症和家庭护理研究的关注。此外，该大学还提供了资助。 为专业发展和培训提供大量跨学科合作机会 研究包括隶属于 Intermountain Healthcare 和 Huntsman 癌症研究所。

项目成果

Prevalence of specialised palliative care consultation for eligible children within a paediatric cardiac ICU.

儿科心脏 ICU 内符合条件的儿童接受专门姑息治疗咨询的普遍程度。

• 发表时间: 2021-09
• 影响因子: 1
• 作者: Delgado;Bennett, Erin E;Bodily, Stephanie A;Wawrzynski, Sarah E;Green, Danielle;Moore, Dominic;Cook, Lawrence J;Olson, Lenora M
• 通讯作者: Olson, Lenora M

Feasibility and acceptability of a game-based symptom-reporting app for children with cancer: perspectives of children and parents.

针对癌症儿童的基于游戏的症状报告应用程序的可行性和可接受性：儿童和家长的观点。

• 发表时间: 2021-01
• 作者: Linder, Lauri A;Newman, Amy R;Stegenga, Kristin;Chiu, Yin;Wawrzynski, Sarah E;Kramer, Heidi;Weir, Charlene;Narus, Scott;Altizer, Roger
• 通讯作者: Altizer, Roger

Feasibility, usability, and acceptability of personalized web-based assessment of social network and daily social support interactions over time.

随着时间的推移，对社交网络和日常社交支持互动进行基于网络的个性化评估的可行性、可用性和可接受性。

• 发表时间: 2022-08
• 作者: Reblin, Maija;McCormick, Rachael;Mansfield, Kelly J;Wawrzynski, Sarah E;Ketcher, Dana;Tennant, Karrin E;Guo, Jia;Jones, Eric C;Cloyes, Kristin G
• 通讯作者: Cloyes, Kristin G

Cancer Survivors' and Care Partners' Audio Diaries on Stress and Social Support Resources During the COVID-19 Pandemic.

癌症幸存者和护理伙伴关于 COVID-19 大流行期间压力和社会支持资源的音频日记。

• DOI: 10.1016/j.soncn.2024.151623
• 发表时间: 2024-03-01
• 期刊: Seminars in oncology nursing
• 作者: Kristin G Cloyes;Kelly J. Mansfield;Sarah E. Wawrzynski;Marilisa Vega;Jacqueline Kent;Jia
• 通讯作者: Jia

Symptoms and daily experiences reported by children with cancer using a game-based app.

癌症儿童使用基于游戏的应用程序报告的症状和日常经历。

• 发表时间: 2022
• 作者: Linder, Lauri A;Newman, Amy;Bernier Carney, Katherine M;Wawrzynski, Sarah;Stegenga, Kristin;Chiu, Yin;Jung, Se;Iacob, Eli;Lewis, Melina;Linder, Caitlin;Fox, Kaitlyn;Altizer, Roger
• 通讯作者: Altizer, Roger