Daily Experiences among Black and White Dementia Caregivers: Implications for Well-being and Cardiovascular Health

黑人和白人痴呆症护理人员的日常经历：对福祉和心血管健康的影响

基本信息

批准号：
10224661
负责人：
KIRA S BIRDITT
金额：
$ 68万
依托单位：
UNIVERSITY OF MICHIGAN AT ANN ARBOR
依托单位国家：
美国
项目类别：
财政年份：
2019
资助国家：
美国
起止时间：
2019-07-01 至 2023-03-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10224661
关键词：
Address African American Alzheimer&apos s Disease Alzheimer&apos s disease related dementia Ambulatory Monitoring American Area Behavior Behavioral Biological Blood Pressure Buffers Car Phone Cardiovascular system Caregiver well-being Caregivers Caring Computer software Coronary heart disease Data Dementia Dementia caregivers Discrimination Eating Ecological momentary assessment Emotional European Event Family Family Caregiver Formal caregiving Health Health behavior Heart Rate Hour Hypertension Individual Individual Differences Intervention Interview Knowledge Link Literature Long-Term Care Mental Health Modeling Monitor Outcome Patient Self-Report Personal Satisfaction Persons Quality of Care Race Reporting Research Resources Risk Sampling Shapes Smoking Social Network Stress Surveys Time United States Well in self Woman base cardiovascular health caregiving community organizations coping cost disability emotional distress experience falls health care service utilization heart rate variability informal caregiving innovation men metropolitan monitoring device mortality mortality disparity physical conditioning physical symptom psychologic psychosocial racial difference racial disparity recruit resilience response social social relationships stress reactivity theories vigilance

项目摘要

African Americans (AAs) are 2 to 3 more times more likely have Alzheimer’s disease and related dementia (ADRD) compared to European Americans (EAs), placing high burden on AA families. AA ADRD caregivers tend to report better mental health but worse physical health than EA ADRD caregivers. Caregiving predicts increased risk of hypertension and coronary heart disease (CHD), which are more common among AAs than EAs. Studies of daily experiences provide crucial information regarding the mechanisms by which caregiving experience is linked with health, yet little is known about race differences in daily positive and negative experiences among ADRD caregivers or their links with daily well-being and cardiovascular health. In response to PAR-18- 027 Research on Informal and Formal Caregiving for Alzheimer's Disease, the present study seeks to understand the dynamic associations between daily experiences, well-being, and cardiovascular health among AA and EA ADRD caregivers. We will collect detailed self-report and cardiovascular data with two components: 1) a baseline interview, and 2) a daily study which incorporates a 5-day, 6-times a day, ecological momentary assessments (EMAs) of self-reported exposure and reactivity (psychological and behavioral) to negative and positive events, as well two ambulatory monitoring devices to assess cardiovascular reactivity (heart rate, heart rate variability, and blood pressure). The persons living with dementia (PLWDs) will also wear a monitor to assess heart rate, and heart rate variability. The sample will include 150 EA and 150 AA caregivers (70% women; 30% men) in the Detroit metropolitan area (recruited via area agencies and community organizations) who co-reside with and provide unpaid caregiving for a PLWD. The study addresses three aims: 1) Compare daily positive and negative care-related and noncare experiences among AA and EA caregivers, 2) Examine links among daily experiences (positive and negative care- related and noncare experiences), daily self-reported well-being, and daily cardiovascular health among AA and EA caregivers and the PLWD, and 3) Identify AA and AE caregivers who are more or less resilient to daily care-related and non-care stress. Identifying racial disparities in daily experiences that shape mental and physical health will inform targeted interventions to maintain caregivers’ well-being and enhance their ability to provide quality care.

非裔美国人 (AA) 患阿尔茨海默病和相关痴呆症的可能性高出 2 到 3 倍 (ADRD) 与欧洲裔美国人 (EA) 相比，AA 家庭的 ADRD 护理人员负担较高。与 EA ADRD 护理人员预测的相比，他们的心理健康状况往往更好，但身体健康状况更差。高血压和冠心病 (CHD) 的风险增加，这在 AA 中比对日常经验的研究提供了有关护理机制的重要信息。经验与健康有关，但人们对日常积极和消极方面的种族差异知之甚少 ADRD 护理人员的经历或其与日常福祉和心血管健康的联系。根据 PAR-18-027 对阿尔茨海默病的非正式和正式护理的研究，本研究寻求了解日常经历、幸福感和心血管健康之间的动态关联我们将收集 AA 和 EA ADRD 护理人员的详细自我报告和心血管数据。组成部分：1) 基线访谈，2) 每日研究，其中包括为期 5 天、每天 6 次的生态研究对自我报告的暴露和反应（心理和行为）的瞬时评估（EMA）阴性和阳性事件，以及两个动态监测设备来评估心血管反应性（心率、心率变异性和血压）。痴呆症患者 (PLWD) 也会佩戴。用于评估心率和心率变异性的监视器该样本将包括 150 个 EA 和 150 个 AA。底特律大都市区的护理人员（70% 女性；30% 男性）（通过地区机构和机构招聘）社区组织）与 PLWD 共同居住并为其提供无偿护理。解决三个目标：1）比较日常积极和消极的护理相关和非护理体验 AA 和 EA 护理人员之间，2) 检查日常经历之间的联系（积极和消极护理- 相关和非护理经历）、每日自我报告的健康状况以及每日心血管健康在 AA 和 EA 护理人员以及 PLWD 中，以及 3) 确定 AA 和 AE 护理人员谁更多或对日常护理相关和非护理压力的适应能力较差。识别日常经历中的种族差异。塑造心理和身体健康的因素将为有针对性的干预措施提供信息，以维持护理人员的福祉和提高他们提供优质护理的能力。