Motivating parental support of youth skill-building during health care transition

在医疗保健转型期间激发家长对青少年技能建设的支持

• 批准号: 10432479
• 负责人: Lauren Elisabeth Wisk
• 金额: $ 9.36万
• 依托单位: UNIVERSITY OF CALIFORNIA LOS ANGELES
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-04-15 至 2024-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10432479
• 关键词: Address; Adolescence; Adolescent; Adolescent and Young Adult; Adoption; Adult; Age; Appointments and Schedules; Area; Award; Back; Behavior Therapy; Behavioral; Behavioral Sciences; Caregivers; Caring; Child; Childhood; Competence; Complex; Complications of Diabetes Mellitus; Conflict (Psychology); Data; Deterioration; Development; Diabetes Mellitus; Disease; Disease Management; Doctor of Philosophy; Economics; Educational process of instructing; Effectiveness; Equilibrium; Evaluation; Family; Foundations; Funding; Goals; Health; Health Promotion; Health Services; Healthcare; Healthcare Systems; Incidence; Insulin-Dependent Diabetes Mellitus; Intervention; Intervention Trial; K-Series Research Career Programs; Knowledge; Life Cycle Stages; Link; Longevity; Medical Care Team; Mentored Research Scientist Development Award; Mentors; Modeling; Motivation; National Institute of Diabetes and Digestive and Kidney Diseases; Outcome; Parents; Patients; Persons; Population; Positioning Attribute; Preparation; Prevalence; Principal Investigator; Process; Qualitative Methods; Randomized Controlled Trials; Regimen; Reporting; Research; Research Personnel; Resources; Risk; Role; Science; Self Care; Self Efficacy; Self-Direction; Service delivery model; Services; Structure; Supervision; Testing; Time; Training; Training Activity; Transferable Skills; Work; Youth; adolescent health outcomes; aged; arm; behavioral health; care fragmentation; career; cohort; comparative; design; dissemination research; evidence base; experience; family influence; glycemic control; health communication; implementation research; improved; insight; neglect; novel; parental involvement; patient engagement; patient oriented; pilot trial; prevent; programs; recruit; skills; social; therapy design; user centered design; young adult

PROJECT SUMMARY/ABSTRACT Adolescents and young adults (AYA) with Type 1 Diabetes (T1D) experience a peak in risk for poor glycemic control during the transition from pediatric- to adult-focused care, which in turn increases their risk for short- and long-term diabetes complications. These risks peak in part due to fragmentation of care and a shift in disease management responsibilities from being parent-directed to self-directed. AYA need support from their parents/caregivers and health care team in building knowledge regarding their own health and developing necessary skills for independently making health decisions and using health care, but many families lack an understanding of how to facilitate the gradual transfer of skills from parent to child and/or the motivation to do so in a timely and effective way. This award for Lauren Wisk, Ph.D., a pediatric health services researcher, will target this important area by building on prior research and skills supported by a mentored career development award (K01). In Aim 1, Dr. Wisk will develop summaries of population data and use qualitative methods to engage parents of AYA with T1D in evaluating those summaries for salience and acceptability for use in a family-centered, behavioral intervention. Dr. Wisk will incorporate her new skills in behavioral science and health communication as the foundation of this family-centered intervention design to improve parents' motivation to assist their child in developing transition preparation skills. In Aim 2, she will apply her training in implementation and improvement science in order to implement the intervention, assess its effectiveness for motivating adoption of evidence-based strategies for teaching transition preparation skills. Results from this study will perfectly supplement Dr. Wisk's K01 research to develop and implement a behavioral intervention trial to improve transition preparation for AYA with T1D in order to form the basis of a longitudinal, family- centered trial to be proposed in an R01 application. This award will further support Dr. Wisk as she seeks to become an independent investigator with comprehensive expertise in designing, implementing and disseminating interventions for AYA with T1D and their families during their health care and life-course transitions. This award builds logically on her career development award and accompanying training activities, and will demonstrate her ability to successfully apply her new skills on this related project. Dr. Wisk is uniquely positioned to use this award and the resources provided by her K01 to launch an independently-funded research career.

项目摘要/摘要 具有1型糖尿病（T1D）的青少年和年轻人（AYA）经历了血糖不良的风险 从小儿到成人护理的过渡期间的控制，这反过来增加了其短期风险 和长期糖尿病并发症。这些风险的达到了一部分，部分原因是护理分散和转变 疾病管理的责任从父母指导到自我指导。 Aya需要他们的支持 父母/照顾者和医疗团队在建立有关自己的健康和发展的知识方面 独立做出健康决策和使用医疗保健的必要技能，但许多家庭缺乏 了解如何促进技能从父母到孩子的逐步转移和/或 因此，以及时有效的方式。该奖项是劳伦·威斯克（Lauren Wisk）博士，儿科健康服务研究员的奖项 通过建立由指导的职业发展支持的先前研究和技能来瞄准这一重要领域 奖项（K01）。在AIM 1中，Wisk博士将制定人口数据的摘要，并使用定性方法来 与T1D的父母与AYA的父母进行评估，以评估这些摘要的显着性和可接受性 以家庭为中心的行为干预。 Wisk博士将在行为科学和 健康沟通是这种以家庭为中心的干预设计的基础，以改善父母的 协助孩子发展过渡准备技能的动机。在AIM 2中，她将接受培训 实施和改进科学以实施干预，评估其有效性 激励采用基于循证的策略来教授过渡准备技能。结果 研究将完美地补充Wisk博士的K01研究，以开发和实施行为干预 试验以改善使用T1D的AYA的过渡准备，以形成纵向，家庭的基础 中心试验将在R01申请中提出。该奖项将进一步支持Wisk博士寻求 成为具有全面设计，实施和 在医疗保健和生命过程中，与T1D及其家人对AYA的干预措施传播干预措施 过渡。该奖项以她的职业发展奖和随附的培训活动为基础 并将证明她能够成功地将自己的新技能应用于这个相关项目的能力。 Wisk博士是独特的 可以使用该奖项以及她的K01提供的资源来推出独立资金 研究职业。