Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10413835
• 负责人: John Lucas
• 金额: $ 30.96万
• 依托单位: MAYO CLINIC ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-01 至 2024-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10413835
• 关键词: Address; Advance Care Planning; Advanced Development; African American; African American population; Alzheimer' s Disease; Americas; Awareness; Back; Caregiver support; Caregivers; Caring; Centers of Research Excellence; Cities; Clinic; Clinical; Communities; Community Developments; Community Healthcare; Community Outreach; Dementia; Development; Disease; Disease Progression; Education; Educational Curriculum; Enrollment; Ensure; Event; Family; Florida; Fostering; Frontotemporal Dementia; Genetic; Geography; Goals; Grant; International; Intervention; Investigation; Knowledge; Lewy Body Dementia; Lewy Body Disease; Methods; Minority Health Research; Modeling; Molecular; Neurodegenerative Disorders; Neurology; Outcome; Palliative Medicine; Participant; Patient Education; Patients; Personal Satisfaction; Persons; Play; Population; Procedures; Program Evaluation; Quality of life; Research; Research Personnel; Role; Science; Service delivery model; Services; Site; Social isolation; Training; Translating; Underrepresented Populations; Vision; Work; base; caregiver education; clinical practice; community based participatory research; coping; dementia care; dementia risk; education research; empowered; ethnic minority; experience; health care delivery; improved; innovation; interdisciplinary collaboration; loved ones; neuroimaging marker; neuropathology; next generation; novel; novel therapeutics; outreach; participant retention; professor; programs; recruit; skills; social; social influence; social stigma; success; symposium

PROJECT SUMMARY/ABSTRACT - OUTREACH, RECRUITMENT AND ENGAGEMENT CORE The Outreach, Recruitment, and Engagement (ORE) Core serves an essential role in the Mayo Clinic Alzheimer's Disease Research Center (ADRC) by: (1) facilitating recruitment and retention of diverse participants into the clinical, neuroimaging, biomarker, and neuropathology studies of center, (2) developing and evaluating innovative support programs for persons with Alzheimer's disease (AD) & AD-related disorders (ADRD) and their loved ones, and (3) advancing efforts to raise awareness and prepare communities to better manage and support residents with AD & ADRD and their families through community-based solutions. Operating at two geographically distinct sites in a coordinated fashion, ORE Core efforts meet center goals through targeted, site- specific activities in Jacksonville, FL (MCF) and Rochester, MN (MCR). Overall center recruitment is managed through the clinical practices of Clinical Core investigators, allowing ORE Core to focus recruitment efforts specifically on African Americans in the local Jacksonville community. These efforts are supported through activities and events developed and delivered in partnership with the Mayo Clinic ADRC African American Community Outreach & Advisory Board, the executive board and Vision Keepers of Jacksonville's New Town Success Zone, the City of Jacksonville's Dementia Care & Cure Initiative, the Central & North Florida chapter of the Alzheimer's Association, and local caregiver support agencies. We will foster retention of African American participants through a new collaborative effort with Clinical Core to provide advanced care planning services for these participants. To foster retention and inform best practices in patient and caregiver education, MCR ORE Core will continue to develop and refine innovative care programs in which participants will play a central role in identifying goals and evaluating outcomes. These efforts will focus primarily on persons with Lewy Body Disorders and Frontotemporal Dementia to reflect our center theme of Similarities and Differences Among Neurodegenerative Diseases. Retention events such as annual participant appreciation luncheons will continue at both sites. To increase community awareness and address threats to the well-being of persons with AD & ADRD, we will continue to foster the development of community-based solutions through the Dementia Friendly Community (DFC) framework of our outreach and engagement efforts. We will evaluate the impact of these programs on social constructs that negatively impact disease progression and quality of life, and we will continue efforts to implement and evaluate the impact of the DFC model in an African American community.

项目摘要/摘要 - 外展，招聘和参与核心 外展，招聘和参与（矿石）核心在 梅奥诊所阿尔茨海默氏病研究中心（ADRC）作者：（1）促进招聘和 将各种参与者保留到临床，神经影像学，生物标志物和神经病理学中 中心的研究，（2）针对患者制定和评估创新的支持计划 阿尔茨海默氏病（AD）和广告相关疾病（ADRD）及其亲人，以及（3）前进 努力提高知名度和准备社区以更好地管理和支持广告的居民 ＆Adrd及其家人通过基于社区的解决方案。在两个地理上运行 以协调方式的不同地点，矿石核心工作通过有针对性的现场 - 在佛罗里达州杰克逊维尔（MCF）和明尼苏达州罗切斯特（MCR）的特定活动。总体中心招聘是 通过临床核心研究人员的临床实践进行管理，使矿石核心可以集中精力 专门针对当地杰克逊维尔社区的非洲裔美国人的招聘努力。这些 通过与与之合作开发和交付的活动和事件来支持努力 Mayo Clinic ADRC非裔美国社区外展与顾问委员会，执行委员会 杰克逊维尔（Jacksonville）的新城镇成功区的视觉守护者，杰克逊维尔（Jacksonville）的痴呆症市 Care＆Cure倡议，阿尔茨海默氏症协会的中央和北佛罗里达分会以及当地 护理人员支持机构。我们将通过新的 与临床核心的合作努力，为这些提供高级护理计划服务 参与者。为了培养保留率并为患者和护理人员教育提供最佳实践，MCR 矿石核心将继续开发和完善创新的护理计划，参与者将在其中玩耍 识别目标和评估结果的核心作用。这些努力将主要关注 Lewy身体疾病和额颞痴呆的人，以反映我们的中心主题 神经退行性疾病之间的相似性和差异。保留活动，例如年度 参与者的赞赏午餐将在两个地点继续。提高社区意识和 解决对广告和ADRD人士福祉的威胁，我们将继续促进 通过痴呆友好社区（DFC）开发基于社区的解决方案 我们的宣传和参与工作的框架。我们将评估这些程序对 对疾病进展和生活质量产生负面影响的社会结构，我们将继续 努力实施和评估DFC模型对非裔美国人社区的影响。