Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10413835
• 负责人: John Lucas
• 金额: $ 30.96万
• 依托单位: MAYO CLINIC ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-01 至 2024-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10413835
• 关键词: Address; Advance Care Planning; Advanced Development; African American; African American population; Alzheimer' s Disease; Americas; Awareness; Back; Caregiver support; Caregivers; Caring; Centers of Research Excellence; Cities; Clinic; Clinical; Communities; Community Developments; Community Healthcare; Community Outreach; Dementia; Development; Disease; Disease Progression; Education; Educational Curriculum; Enrollment; Ensure; Event; Family; Florida; Fostering; Frontotemporal Dementia; Genetic; Geography; Goals; Grant; International; Intervention; Investigation; Knowledge; Lewy Body Dementia; Lewy Body Disease; Methods; Minority Health Research; Modeling; Molecular; Neurodegenerative Disorders; Neurology; Outcome; Palliative Medicine; Participant; Patient Education; Patients; Personal Satisfaction; Persons; Play; Population; Procedures; Program Evaluation; Quality of life; Research; Research Personnel; Role; Science; Service delivery model; Services; Site; Social isolation; Training; Translating; Underrepresented Populations; Vision; Work; base; caregiver education; clinical practice; community based participatory research; coping; dementia care; dementia risk; education research; empowered; ethnic minority; experience; health care delivery; improved; innovation; interdisciplinary collaboration; loved ones; neuroimaging marker; neuropathology; next generation; novel; novel therapeutics; outreach; participant retention; professor; programs; recruit; skills; social; social influence; social stigma; success; symposium

PROJECT SUMMARY/ABSTRACT - OUTREACH, RECRUITMENT AND ENGAGEMENT CORE The Outreach, Recruitment, and Engagement (ORE) Core serves an essential role in the Mayo Clinic Alzheimer's Disease Research Center (ADRC) by: (1) facilitating recruitment and retention of diverse participants into the clinical, neuroimaging, biomarker, and neuropathology studies of center, (2) developing and evaluating innovative support programs for persons with Alzheimer's disease (AD) & AD-related disorders (ADRD) and their loved ones, and (3) advancing efforts to raise awareness and prepare communities to better manage and support residents with AD & ADRD and their families through community-based solutions. Operating at two geographically distinct sites in a coordinated fashion, ORE Core efforts meet center goals through targeted, site- specific activities in Jacksonville, FL (MCF) and Rochester, MN (MCR). Overall center recruitment is managed through the clinical practices of Clinical Core investigators, allowing ORE Core to focus recruitment efforts specifically on African Americans in the local Jacksonville community. These efforts are supported through activities and events developed and delivered in partnership with the Mayo Clinic ADRC African American Community Outreach & Advisory Board, the executive board and Vision Keepers of Jacksonville's New Town Success Zone, the City of Jacksonville's Dementia Care & Cure Initiative, the Central & North Florida chapter of the Alzheimer's Association, and local caregiver support agencies. We will foster retention of African American participants through a new collaborative effort with Clinical Core to provide advanced care planning services for these participants. To foster retention and inform best practices in patient and caregiver education, MCR ORE Core will continue to develop and refine innovative care programs in which participants will play a central role in identifying goals and evaluating outcomes. These efforts will focus primarily on persons with Lewy Body Disorders and Frontotemporal Dementia to reflect our center theme of Similarities and Differences Among Neurodegenerative Diseases. Retention events such as annual participant appreciation luncheons will continue at both sites. To increase community awareness and address threats to the well-being of persons with AD & ADRD, we will continue to foster the development of community-based solutions through the Dementia Friendly Community (DFC) framework of our outreach and engagement efforts. We will evaluate the impact of these programs on social constructs that negatively impact disease progression and quality of life, and we will continue efforts to implement and evaluate the impact of the DFC model in an African American community.

项目概要/摘要 - 外展、招聘和参与核心 外展、招聘和参与 (ORE) 核心在以下方面发挥着重要作用： 梅奥诊所阿尔茨海默病研究中心 (ADRC) 通过：(1) 促进招募和 让不同的参与者参与临床、神经影像、生物标志物和神经病理学 中心的研究，(2) 制定和评估针对患有以下疾病的人的创新支持计划 阿尔茨海默病 (AD) 和 AD 相关疾病 (ADRD) 及其亲人，以及 (3) 进展 努力提高认识并让社区做好准备，更好地管理和支持 AD 居民 & ADRD 及其家人通过基于社区的解决方案。在两个地理位置上运营 ORE 核心工作以协调的方式实现中心目标，通过有针对性的、现场的 佛罗里达州杰克逊维尔 (MCF) 和明尼苏达州罗切斯特 (MCR) 的具体活动。中心总体招聘人数为 通过临床核心研究人员的临床实践进行管理，使 ORE Core 能够专注于 专门针对杰克逊维尔当地社区的非裔美国人的招聘工作。这些 通过与以下组织合作开发和实施的活动和事件来支持这些努力 梅奥诊所 ADRC 非裔美国人社区外展和咨询委员会、执行委员会 杰克逊维尔新城成功区和杰克逊维尔痴呆症市的愿景守护者 护理与治疗倡议、阿尔茨海默病协会佛罗里达州中部和北部分会以及当地 护理人员支持机构。我们将通过新的方式促进非裔美国人参与者的保留 与 Clinical Core 合作，为这些人提供高级护理规划服务 参与者。为了促进保留并为患者和护理人员教育提供最佳实践，MCR ORE Core 将继续开发和完善创新护理项目，参与者将在其中发挥作用 在确定目标和评估结果方面发挥核心作用。这些努力将主要集中在 患有路易体疾病和额颞叶痴呆症的人，以反映我们的中心主题 神经退行性疾病之间的异同。保留事件，例如年度 两个地点将继续举办参与者答谢午宴。为了提高社区意识和 为了解决 AD 和 ADRD 患者福祉受到的威胁，我们将继续促进 通过痴呆症友好社区 (DFC) 开发基于社区的解决方案 我们的外展和参与工作的框架。我们将评估这些计划的影响 社会结构对疾病进展和生活质量产生负面影响，我们将继续 努力实施和评估 DFC 模式在非裔美国人社区中的影响。