Cancer Registry for Understanding and Improving Survivorship Experiences (CRUISE)
用于了解和改善生存体验的癌症登记处 (CRUISE)
基本信息
- 批准号:10410413
- 负责人:
- 金额:$ 64.1万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2019
- 资助国家:美国
- 起止时间:2019-06-10 至 2024-05-31
- 项目状态:已结题
- 来源:
- 关键词:AddressAdministratorAreaCaliforniaCancer PatientCancer SurvivorCancer SurvivorshipCaringClinicColorectal CancerCultural SensitivityEarly DiagnosisEducationEffectivenessElementsEmotionalEnvironmentEthnic OriginEthnic groupEvaluationFaceFinancial HardshipFosteringFutureGoalsHealthHealth behaviorHealth systemHealthcareHealthcare SystemsHospitalsHuman ResourcesInfrastructureInstitute of Medicine (U.S.)InterventionInterviewKnowledgeLinguisticsMedicalMinorityNatureOncologyOutcomePatient Outcomes AssessmentsPatient RecruitmentsPatientsPolicy MakerPopulation HeterogeneityPopulation StudyPrimary Health CareProcessProviderQuality of lifeRaceRecommendationResearchResourcesRiskSan FranciscoSecond Primary CancersSocioeconomic StatusSurveysSurvival RateSurvivorsTestingTimeUnderserved PopulationUse EffectivenessVariantWorkactive methodaging populationcancer sitecancer therapycare providersclinical carecomorbidityethnic diversityexperiencehealth care deliveryhealth care service utilizationhealth equityimplementation scienceimprovedinnovationliteracymalignant breast neoplasmmultilevel analysisneoplasm registrypatient orientedpatient populationpopulation basedracial and ethnicracial diversitysexsocialsocial determinantssocioeconomicssurvivorshipvirtual
项目摘要
Project Summary
There are currently an estimated 15.5 million cancer survivors in the U.S., which is expected to increase in
number and racial/ethnic diversity. Cancer survivors face many unique challenges, including late and long-term
health effects, emotional and financial hardships, and a greater risk for developing second cancers and other
serious health conditions. These challenges may be even more prevalent among underserved populations. In
2006, the Institute of Medicine (IOM) recommended the widespread implementation of survivorship care plans
(SCPs) to facilitate the transition from active treatment to cancer survivorship, from oncology care to primary
care. SCPs are intended to encompass the details of cancer treatment, which can be shared with current and
future medical providers; anticipatory education for survivors; and provision of information about available
resources relating to survivorship needs. The recommendations call for oncology treatment teams to review
SCPs with patients at the conclusion of their cancer treatment. Early research in the years since the IOM
recommendations has shown that implementation of SCPs is not widespread, evidence of improved survivor
outcomes is limited, and there is considerable variation in the content of SCPs, with many plans failing to
adhere to all of the IOM recommendations. Moreover, there is virtually no research on whether existing SCPs
are culturally- or linguistically-tailored to patients and whether they address key social determinant barriers
among underserved patients. More research is needed to thoroughly explore the efficacy and viability of SCPs
in real-world settings. Specifically, while previous research has uncovered key cultural differences in
survivorship experiences, we still know little about the appropriateness, effectiveness, and implementation of
SCPs among cancer survivors from diverse racial/ethnic, cultural, and socioeconomic backgrounds. The
overarching goal of this proposal is to investigate the extent to which SCPs are implemented in clinical care
and used among diverse and underserved populations of breast and colorectal cancer survivors in California.
Leveraging population-based cancer registries, we therefore propose the Cancer Registry for Understanding
and Improving Survivorship Experiences (CRUISE) project, which takes a comprehensive, multi-level approach
to examine the implementation of, and patient experiences with, SCPs, with focus on underserved populations.
Our aims are as follows: 1) to examine the use and effectiveness of SCPs on patient-reported outcomes in
breast and colorectal cancer survivors in the Greater San Francisco Bay Area; 2) to investigate the
implementation and content of survivorship strategies and support including SCPs in use in California health
systems serving diverse cancer patient populations; and 3) to convene a Delphi panel of stakeholders to
develop best practices for delivering SCPs to meet the needs of diverse patient populations. The current
proposal will advance our understanding of the implementation and effectiveness of SCPs from both the
perspective of survivors and healthcare systems, focusing in particular on underserved patient populations.
项目摘要
目前,美国估计有1550万癌症幸存者,预计将增加
数字和种族/种族多样性。癌症幸存者面临许多独特的挑战,包括晚期和长期
健康影响,情感和经济困难,以及发展第二癌和其他的更大风险
严重的健康状况。在服务不足的人群中,这些挑战可能更为普遍。在
2006年,医学研究所(IOM)建议广泛实施生存护理计划
(SCP)促进从主动治疗到癌症生存的过渡,从肿瘤学护理到原发性
关心。 SCP旨在涵盖癌症治疗的细节,可以与当前和
未来的医疗提供者;幸存者的预期教育;并提供有关可用的信息
与生存需求有关的资源。这些建议要求肿瘤治疗团队审查
在癌症治疗结束时,患者与患者进行了SCP。自IOM以来的早期研究
建议表明,SCP的实施不是广泛的,这是改善幸存者的证据
结果是有限的,SCP的内容有很大差异,许多计划未能
遵守所有IOM建议。而且,几乎没有关于现有SCP的研究
在文化或语言上对患者进行了限制,以及他们是否应对关键的社会决定因素障碍
在服务不足的患者中。需要更多的研究来彻底探索SCP的功效和生存能力
在现实世界中。具体而言,尽管以前的研究发现了关键的文化差异
生存经历,我们仍然对适当性,有效性和实施一无所知
来自不同种族/种族,文化和社会经济背景的癌症幸存者中的SCP。这
该提案的总体目标是调查在临床护理中实施SCP的程度
并在加利福尼亚州的乳腺癌和结直肠癌幸存者中使用。
因此,我们提出了基于人群的癌症注册机构,我们建议癌症注册处
并改善生存经验(Cruise)项目,该项目采用了全面的多层次方法
检查SCP的实施和患者经验,重点是服务不足的人群。
我们的目的如下:1)检查SCP对患者报告结果的使用和有效性
大旧金山湾地区的乳腺癌和结直肠癌幸存者; 2)调查
生存策略的实施和内容,包括加利福尼亚州使用的SCP
为多样化的癌症患者人群提供服务的系统; 3)召集一个利益相关者的Delphi小组
开发提供SCP的最佳实践,以满足不同患者人群的需求。电流
提案将促进我们对SCP的实施和有效性的理解
幸存者和医疗保健系统的观点,尤其是服务不足的患者人群。
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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Scarlett L Gomez其他文献
Scarlett L Gomez的其他文献
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{{ truncateString('Scarlett L Gomez', 18)}}的其他基金
Insights from Asian Populations into Disparities in Breast Cancer Prognosis and Outcomes
亚洲人群对乳腺癌预后和结果差异的见解
- 批准号:
9973785 - 财政年份:2020
- 资助金额:
$ 64.1万 - 项目类别:
Insights from Asian Populations into Disparities in Breast Cancer Prognosis and Outcomes
亚洲人群对乳腺癌预后和结果差异的见解
- 批准号:
10413022 - 财政年份:2020
- 资助金额:
$ 64.1万 - 项目类别:
Insights from Asian Populations into Disparities in Breast Cancer Prognosis and Outcomes
亚洲人群对乳腺癌预后和结果差异的见解
- 批准号:
10643861 - 财政年份:2020
- 资助金额:
$ 64.1万 - 项目类别:
Insights from Asian Populations into Disparities in Breast Cancer Prognosis and Outcomes
亚洲人群对乳腺癌预后和结果差异的见解
- 批准号:
10186715 - 财政年份:2020
- 资助金额:
$ 64.1万 - 项目类别:
Cancer Registry for Understanding and Improving Survivorship Experiences (CRUISE)
用于了解和改善生存体验的癌症登记处 (CRUISE)
- 批准号:
10176166 - 财政年份:2019
- 资助金额:
$ 64.1万 - 项目类别:
Cancer Registry for Understanding and Improving Survivorship Experiences (CRUISE)
用于了解和改善生存体验的癌症登记处 (CRUISE)
- 批准号:
9802764 - 财政年份:2019
- 资助金额:
$ 64.1万 - 项目类别:
Cancer Registry for Understanding and Improving Survivorship Experiences (CRUISE)
用于了解和改善生存体验的癌症登记处 (CRUISE)
- 批准号:
10651763 - 财政年份:2019
- 资助金额:
$ 64.1万 - 项目类别:
Project 1: Multilevel Social Stressors and Aggressive Prostate Cancer in African American Men
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- 批准号:
10249993 - 财政年份:2018
- 资助金额:
$ 64.1万 - 项目类别:
Project 1: Multilevel Social Stressors and Aggressive Prostate Cancer in African American Men
项目 1:非裔美国男性的多层次社会压力源和侵袭性前列腺癌
- 批准号:
9982835 - 财政年份:2018
- 资助金额:
$ 64.1万 - 项目类别:
Project 1: Multilevel Social Stressors and Aggressive Prostate Cancer in African American Men
项目 1:非裔美国男性的多层次社会压力源和侵袭性前列腺癌
- 批准号:
10447153 - 财政年份:2018
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$ 64.1万 - 项目类别:
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