Regional Oncology Research Center

区域肿瘤学研究中心

基本信息

批准号：
10409122
负责人：
WILLIAM George NELSON
金额：
$ 15万
依托单位：
JOHNS HOPKINS UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-09-01 至 2022-04-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10409122
关键词：
Academic support Address Advocacy Affect Behavioral Brain Neoplasms COVID-19 Cancer Center Caring Censuses Centers for Disease Control and Prevention (U.S.)Central Nervous System Neoplasms Characteristics Child Child Care Childhood Communication Communities Complex Comprehensive Cancer Center Computerized Medical Record Data Databases Development Diagnosis Disabled Persons Disease Education Emotional Employment Ensure Failure Family Goals Guidelines Health Health system Healthcare Systems Hospitals Hydrocephalus Income Institution Institutional Policy Intervention Life Location Malignant Childhood Neoplasm Malignant Neoplasms Medical Methods Morbidity - disease rate Neuraxis Neurocognitive Neurocognitive Deficit Neuropsychology Oncology Operative Surgical Procedures Outcome Parents Patients Pattern Pediatric Oncology Policies Process Provider Quality of life Radiation Oncology Radiation therapy Recommendation Research Risk Risk Behaviors Schools Solid Neoplasm Supportive care Surveys Survival Rate Survivors Terminology Time United States United States National Center for Health Statistics base care coordination childhood cancer survivor disorder control experience improved neuro-oncology neurocognitive test neurosurgery programs social health determinants standard of care success survivorship therapy design tumor

项目摘要

Project Summary The long-term objective of this study is to improve compliance with standard of care recommendations for neuropsychological assessment (NPA) for children with central nervous system (CNS) tumors treated at our institution by developing a health system intervention to overcome barriers to referral for the NPA. Specific Aims include; 1) Identify health system/organizational, provider and community/patient-level characteristics that contribute to disparities in referral for [standard of care] NPA in children diagnosed with CNS tumors. 2) Develop a provider stakeholder engaged health system/organization intervention that addresses more consistent implementation of the standard of care and minimizes identified barriers. Methods for aim one will include electronic medical review for care team and health system specific data, provider survey and patient/community data for pertinent social determinants of health. The data will be analyzed to identify the characteristics amenable to a health system intervention. Methods for aim two include convening provider stakeholders to establish health system policy followed by embedding policy into established provider institutional education and developing an EMR, self-sustaining, intervention to promote compliance with standard of care and institutional policy. After at least 3 months of implementation of the policy/EMR intervention (e.g., presumably June-August 2022), the neuro-oncology database will be queried to identify brain tumor patients with non-terminal disease receiving care in the time frame and cross-reference with the referral database to confirm referral has been completed. The target goal will be to double the referral rate from that observed in our preliminary data of 43% to at least 86%.

项目概要本研究的长期目标是提高对护理建议标准的遵守情况对在我们中心接受治疗的中枢神经系统 (CNS) 肿瘤儿童进行神经心理学评估 (NPA) 机构通过制定卫生系统干预措施来克服转介 NPA 的障碍。具体目标包括; 1) 确定卫生系统/组织、提供者和社区/患者层面的特征导致被诊断患有中枢神经系统肿瘤的儿童转诊接受 [标准护理] NPA 的差异。 2）开发提供者利益相关者参与卫生系统/组织干预，以解决更一致的问题实施护理标准并尽量减少已发现的障碍。实现目标一的方法包括针对护理团队和卫生系统特定数据、提供者调查和患者/社区的电子医疗审查相关健康社会决定因素的数据。将分析数据以确定适合的特征卫生系统干预。实现目标二的方法包括召集提供者利益相关者建立健康系统政策，然后将政策嵌入已建立的提供者机构教育中，并制定 EMR、自我维持、干预，以促进遵守护理标准和机构政策。之后于政策/EMR 干预实施至少 3 个月（例如，大概是 2022 年 6 月至 8 月），将查询神经肿瘤学数据库以确定接受治疗的非绝症脑肿瘤患者在时间范围内并与转介数据库进行交叉参考以确认转介已完成。这我们的目标是将转诊率从我们初步数据中观察到的 43% 翻倍至至少 86%。