All for data, data for all: Improving accessibility of healthcare data through a co-designed augmentation of an existing online rehabilitation application.

一切为了数据，数据为所有人：通过共同设计的现有在线康复应用程序的增强功能，提高医疗保健数据的可访问性。

• 批准号: 10054277
• 金额: $ 6.37万
• 依托单位: CLINICAL NEUROPSYCHOLOGY SERVICES LTD.
• 依托单位国家: 英国
• 项目类别: Grant for R&D
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=10054277
• 关键词: data; Improving; accessibility; healthcare; through

Rehabilitation describes a huge range of healthcare activities that take place after a serious injury or illness such as a stroke, traumatic injury, acquired brain injury, combat trauma, cardiac, pulmonary, mental health, or addictions. Globally, an estimated 2.4 billion people are currently living with a health condition that benefits from rehabilitation, and the need for rehabilitation worldwide is predicted to increase due to changes in the health and characteristics of the population. People are living longer, but with more chronic disease and disability. Currently the need for rehabilitation is largely unmet (World Health Organisation, WHO, _Rehabilitation_, November 2021).Goal Manager is a cloud-based application designed to automate core processes in rehabilitation goal setting, facilitating collaborative working for multidisciplinary teams in remote locations, and streamlining gold-standard processes into one system. Goal Manager is a combined workflow management and reporting tool for rehabilitation and it is already helping services all over the UK provide more efficient services to their clients. This project will support the rapid development of the next stage of Goal Manager, a Data Dashboard, which will provide summary information on patient profiles and outcomes in rehabilitation, in order to provide information to guide how we best deliver their rehabilitation and design services that are as efficient and effective as possible.Failure to provide effective rehabilitation is costly. In the case of acquired brain injury (ABI), where Goal Manager was initially developed, the annual cost to society is estimated to be £15 billion, equivalent to approximately 10% of the total annual National Health Service (NHS) budget (All-Party Parliamentary Group on ABI, September 2018). The Data Dashboard will enable quick and easy analysis of routinely collected clinical data to enable us to answer many unanswered questions about what works best and for whom in rehabilitation. This data will in turn allow us to reconfigure and design services which are maximally effective for the individuals requiring them by enabling services to interrogate their data and compare these standardised datasets across different services quickly and easily. We will be able to improve access to healthcare for all, to maximise clinical outcomes and to reduce inefficiencies, thus saving money for the NHS and the public by supporting resources to be most effectively targeted.

康复指的是在严重受伤或疾病（如中风、创伤性损伤、后天性脑损伤、战斗创伤、心脏、肺、心理健康或成瘾）后进行的大量医疗保健活动。全球估计有 24 亿人正在接受康复治疗。目前，人们的健康状况可以从康复中受益，并且由于人们的健康和特征的变化，预计全世界对康复的需求将会增加，但目前对康复的需求也越来越多。康复工作在很大程度上尚未得到满足（世界卫生组织目标管理器是一款基于云的应用程序，旨在自动化康复目标设定的核心流程，促进远程位置的多学科团队的协作工作，并将黄金标准流程简化到一个系统中，它是一种组合的康复工作流程管理和报告工具。已经在帮助英国各地的服务机构为其客户提供更高效的服务。该项目将支持目标管理器（数据仪表板）下一阶段的快速开发。提供有关患者概况和康复结果的摘要信息，以便提供信息来指导我们如何最好地为他们提供康复服务，并设计尽可能高效和有效的服务。在后天性大脑的情况下，无法提供有效的康复是代价高昂的。最初开发目标管理器的项目是伤害 (ABI)，每年给社会造成的成本估计为 150 亿英镑，相当于国家医疗服务 (NHS) 年度预算总额的约 10%（ABI 跨党派议会小组，九月2018）。数据仪表板将使我们能够快速、轻松地分析常规收集的临床数据，使我们能够回答许多悬而未决的问题，例如什么对康复最有效以及对谁来说最有效。这些数据反过来又将使我们能够重新配置和设计最有效的服务。通过使服务能够快速、轻松地查询数据并比较不同服务的标准化数据集，对有需要的个人有效，我们将能够改善所有人获得医疗保健的机会，最大限度地提高临床结果并减少效率低下，从而节省成本。通过支持最有效地瞄准资源，为 NHS 和公众提供资金。