An Open Learning Disabilities Behavioral Data Repository

开放的学习障碍行为数据存储库

• 批准号: 10331809
• 负责人: Sara Ann Hart
• 金额: $ 53.36万
• 依托单位: FLORIDA STATE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-01-11 至 2023-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10331809
• 关键词: Agreement; Archives; Attention; Behavioral; Big Data; Budgets; Characteristics; Child; Classification; Classification Scheme; Collaborations; Communities; Consult; Data; Data Analyses; Data Collection; Data Set; Data Store; Databases; Deposition; Development; Developmental Course; Documentation; Education; Educational workshop; Elements; Ensure; Funding Agency; Future; Grant; Individual; Informed Consent; Infrastructure; Institutional Review Boards; Investments; Knowledge; Language; Learning; Learning Disabilities; Librarians; Libraries; Longevity; Measures; Methodology; Methods; Monitor; Movement; Participant; Policies; Public Health; Reading; Reading Disabilities; Reproducibility; Research; Research Personnel; Resource Sharing; Resources; Sampling; School-Age Population; Schools; Science; Seeds; Site; Techniques; Testing; Time; Training; Training Support; base; data access; data de-identification; data management; data quality; data repository; data reuse; data sharing; field study; innovation; interest; knowledge base; large datasets; open data; power analysis; repository; tool

PROJECT SUMMARY There is considerable interest in data sharing, encouraged by funding agencies which are requiring more detailed data-sharing plans, as well as greater attention and support from the scientific community towards rigorous, open, and reproducible science. With this project, we will build a domain-specific data repository, “LDbase”, containing behavioral data from the field studying learning disabilities that will serve as a powerful resource for our community. We are uniquely qualified to build this repository. Our investigator team combines expertise in learning disabilities, advanced methodology, and research librarian techniques. LDbase will accelerate intellectual discovery by facilitating data reuse and reproducibility, ultimately building an enduring record that represents the richness, diversity, and complexity of the science done by learning disabilities researchers. We will achieve this through three specific aims: (1) Create a data repository representing a vast knowledge database on learning disabilities; (2) Release a powerful open access combined dataset and provide statistical training for combining datasets using integrative data analysis; and (3) Use integrated data to determine the most valid way to classify a reading disability for each child. LDbase will be seeded by data from six large research sites that will contribute large amounts of behavioral data from tens of thousands of participants, and then open to external data depositors and data users. With these high quality “big data”, we will answer a fundamental question in the field concerning personalized classification of reading disability, showing the powerful applied usefulness of these data. LDbase will advance the sharing of learning disabilities related behavioral data as a powerful new tool to answer research questions not answerable without it, build a community of researchers invested in data sharing and open science practices, and establish a sustainable infrastructure to support the longevity of the project.

项目摘要 资助机构的鼓励，对数据共享具有很大的兴趣 详细的数据共享计划，以及科学界的更多关注和支持 严格，开放和复制科学。在这个项目中，我们将建立一个特定领域的数据存储库， “ LDBASE”，其中包含来自现场研究学习障碍的行为数据，将作为一个 对我们社区的强大资源。我们具有构建此存储库的独特资格。我们的调查员 团队结合了学习障碍，高级方法论和研究Libraarian技术方面的专业知识。 LDBASE将通过促进数据重用和可重复性来加速智力发现，最终建立 持久的记录，代表了通过学习而完成的科学的丰富性，多样性和复杂性 残疾研究人员。我们将通过三个特定目标来实现这一目标：（1）创建一个数据存储库 代表有关学习障碍的庞大知识数据库； （2）发布强大的开放访问 合并数据集并提供使用集成数据分析组合数据集的统计培训；和 （3）使用集成数据来确定每个孩子对阅读障碍分类的最有效方法。 LDBase将由来自六个大型研究地点的数据播种，这些数据将贡献大量行为 来自成千上万参与者的数据，然后向外部数据存储者和数据使用者开放。和 这些高质量的“大数据”，我们将回答有关个性化的领域的基本问题 阅读障碍的分类，显示这些数据的强大应用有用性。 LDBASE会 推进与学习障碍相关的行为数据的共享，作为一种有力的新工具来回答 没有它就无法回答的研究问题，建立一个投资数据共享的研究人员社区 和开放科学实践，并建立可持续的基础设施，以支持寿命 项目。