CD2H - National COVID Cohort Collaborative (N3C)

CD2H - 国家新冠肺炎队列协作 (N3C)

基本信息

批准号：
10320152
负责人：
CHRISTOPHER G CHUTE
金额：
$ 214.9万
依托单位：
OREGON HEALTH & SCIENCE UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-03-15 至 2021-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10320152
关键词：
Algorithms Architecture Area Benchmarking Clinical Clinical Data Clinical Informatics Clinical Research Collaborations Common Data Element Communities Community of Practice Computer software Cultural Evolution Data Data Analyses Data Set Development Discipline Ecosystem Evaluation Evolution FAIR principles Fast Healthcare Interoperability Resources Foundations Goals Gold Health Health Science Library Health Sciences Healthcare Human Individual Informatics Information Resources Information Sciences Information Technology Infrastructure Institution Knowledge Leadership Learning Licensing Longevity Metadata Methodology Methods Modeling Morphologic artifacts Oregon Outcome Patients Process Public Health Informatics Quality Control Rare Diseases Reporting Research Research Institute Resources Scanning Science Services Software Engineering Software Tools Synapses System Technology The Jackson Laboratory Training Translational Research United States National Institutes of Health Universities Update Vendor Vision Washington Work base biomedical informatics cloud based cohort collaborative approach collaborative environment coronavirus disease data ecosystem data harmonization data modeling data quality data sharing data standards data translator design digital health experience health care quality health record improved informatics infrastructure informatics tool innovation interoperability invention open data open source quality assurance software development success tool

项目摘要

PROJECT SUMMARY Over the past decade, the CTSAs have made incredible progress in developing informatics tools and services to support institutional or hub-centric translational research. However, robust collaboration between the hubs is required to realize the full potential of the CTSA network, a living ecosystem of collaboration and sharing. We have brought together pioneers of open science, clinical and biomedical informatics, health science libraries, and the NCATS Translator initiative to propose the creation of a National Center for Digital Health Innovation to coalesce the CTSA informatics community together with the open science community to catalyze the next steps in the evolution of biomedical informatics. We will create an open governance model that includes all who would like to participate and collaboratively forge the next steps. We will embrace an ‘idea to implementation’ model (I2I), supporting the creation of collaboratively developed sustainable infrastructure. We will do this via the axes of open data, open software, open resources, and through two integrated thematic areas of urgent need: rare disease and human health across the lifespan. Underpinning these efforts are innovative models for evaluation, training, and the creation of community challenges as mechanisms to stimulate new and impactful tools and methods. We will leverage the power of an open and team science approach to demonstrate new research opportunities. Our leadership include Oregon Health Sciences University, Johns Hopkins University, the University of Washington, Washington University in St. Louis, Northwestern University, Sage BioNetworks, the Jackson Laboratory and the Scripps Research Institute. We have collaborators from all areas of translational informatics including health record vendors, clinical research networks and leaders in open software and open data. Together our efforts will catalyze the next stage in the evolution of the national informatics infrastructure for clinical and translational research.

项目概要在过去的十年中，CTSA 在开发信息学工具和服务方面取得了令人难以置信的进步支持机构或以中心为中心的转化研究然而，中心之间的强有力的合作是存在的。我们需要充分发挥 CTSA 网络的潜力，这是一个充满活力的协作和共享生态系统。汇集了开放科学、临床和生物医学信息学、健康科学图书馆的先驱，以及 NCATS Translator 倡议，提议建立国家数字健康创新中心将 CTSA 信息学界与开放科学界联合起来，以促进下一个我们将创建一个包含所有内容的开放治理模型。谁愿意参与并共同制定下一步计划，我们将拥抱“想法”。实施”模型（I2I），支持创建协作开发的可持续基础设施。将通过开放数据、开放软件、开放资源以及两个综合主题来实现这一目标迫切需要的领域：罕见疾病和整个生命周期的人类健康是这些努力的基础。评估、培训和创造社区挑战的创新模式作为机制我们将利用开放和团队科学的力量，激发新的、有影响力的工具和方法。我们的领导地位包括俄勒冈健康科学。大学、约翰·霍普金斯大学、华盛顿大学、圣路易斯华盛顿大学、西北大学、Sage BioNetworks、杰克逊实验室和斯克里普斯研究所。拥有来自翻译信息学各个领域的合作者，包括健康记录供应商、临床研究我们的努力将共同推动开放软件和开放数据领域的网络和领导者的发展。用于临床和转化研究的国家信息学基础设施的演变。