Inner Strength and Influencing Factors in Persons Newly Diagnosed with Mild Cognitive Impairment and their Family Care Partners

初诊轻度认知障碍患者及其家人的内在力量及其影响因素

• 批准号: 10313842
• 负责人: Brianna Morgan
• 金额: $ 4.85万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-07-01 至 2023-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10313842
• 关键词: Address; Adult; Age; Caring; Chronic; Chronic Disease; Clinical; Cognition; Competence; Data Collection; Data Sources; Dementia; Diagnosis; Diagnostic; Disease; Early Diagnosis; Ensure; Environment; Ethics; Family; Foundational Skills; Foundations; Future; Goals; Heart Diseases; Impaired cognition; Individual; Individual National Research Service Award; Intervention; Interview; Knowledge; Life; Literature; Malignant Neoplasms; Methodology; Methods; Modification; National Research Service Awards; Newly Diagnosed; Nurses; Persons; Pilot Projects; Process; Quality of life; Research; Research Personnel; Research Training; Resources; Role; Science; Side; Strategic Planning; Structure; Training; United States National Institutes of Health; Voice; Vulnerable Populations; Work; base; contextual factors; evidence base; experience; implementation research; improved; innovation; mild cognitive impairment; programs; recruit; skill acquisition; symposium; therapy design

Project Summary/Abstract: The purpose of this individual National Research Service Award (NRSA) application is to provide the applicant with essential research training to become an independent investigator focusing on strengths-based interventions for people living with Mild Cognitive Impairment (MCI), specifically those that improve quality of life by enhancing inner strength. This NRSA will ensure that the applicant achieves competence in establishing a conceptual understanding of inner strength, develops foundational skills to commence a program of ethical and rigorous independent research with the vulnerable population of persons with MCI and their family care partners, and gains professional development skills to advance in a rigorous academic setting. This training will occur in a resource rich environment with support from a world-renowned advising team ideally suited to the applicant’s topic and training plan. From her clinical experience as a nurse, the applicant has first-hand knowledge of the importance of and need to incorporate a person’s strengths into their plan of care. One in five people age 60 and older are living with MCI. The vast majority of interventions for persons with MCI focus on minimizing deficits rather than augmenting strengths to improve quality of life. This gap is due to under-characterization of strengths of persons with MCI in the literature. One opportunity to fill this gap is to describe inner strength from the perspective of the person living with MCI. Inner strength is defined as one’s internal process of moving positively through challenging circumstances and is associated with improved quality of life. Inner strength is well described in adults with serious illnesses like cancer and heart disease but is not well characterized in MCI. This study proposes to fill this gap in knowledge through the following aims: 1) To describe the experience of inner strength in persons newly diagnosed with MCI, 2) To explore how family care partners impact the experience of inner strength for persons newly diagnosed with MCI, 3) To identify external factors that influence inner strength for persons newly diagnosed with MCI. This study will use realist, qualitative methodology to focus on the experience of the individual. This study proposes to use thematic analysis that employs voice-centered methods of analysis applied to interviews of persons with MCI and their family care partners. This study has the potential to provide new knowledge about inner strength in persons with MCI and elucidate influencing factors and the role of family care partners. The proposed study aligns with NINR’s strategic plan to improve quality of life for individuals with chronic conditions, like MCI, as this work has the potential to unlock opportunities to enhance inner strength and thereby quality of life. By laying a strong foundational knowledge of inner strength, we can better design interventions that are based in what matters to persons with MCI and their care partners. Future implementation research has the potential to have a significant impact for quality of life.

项目摘要/摘要： 该个人Navidual Nationarch服务奖（NRSA）申请的目的是为您提供 接受基本研究培训的申请人，成为一名专注于基于脱落的独立研究者 对患有轻度认知障碍（MCI）的人的干预措施，特别是改善质量 通过增强内在力量的生活。 对内在力量的概念理解，发展基础技能来评论道德计划 与MCI及其家庭护理的脆弱人群的严格独立研究 合作伙伴，并获得了在严格的学术环境中的专业发展技巧。 在资源丰富的环境中发生，得到了一个适合您的世界知名团队的支持 申请人的主题和培训计划。 了解将一个人的力量纳入其护理计划的重要性和需求。 五分之一的年龄在60岁及以上的人与MCI一起生活。 MCI专注于最小化缺陷，而不是增强体长以改善这种差距 由于文献中有MCI的人的优势不足。 是从MCI生活的人的角度来描述内在的力量。 一个人的内部移动过程，积极挑战性的情况，并随着改善而陷入困境 生活质量。 在MCI中没有很好的特征。 描述新诊断为MCI的人的内在力量的经验，2）探索家庭 护理伙伴影响新诊断为MCI的人的内在力量的经验，3） 新诊断为MCI的人的内在力量将使用现实主义者， 定性方法专注于个人的经验。 分析以语音为中心的分析方法适用于MCI及其人的访谈 家庭护理伙伴。 MCI和阐明影响因素和家庭护理伙伴的作用。 Ninr的战略计划，以改善MCI等慢性病的人的生活，因为这项工作已经 通过奠定强大的强大的机会，可以释放增强内在力量的机会。 内在力量的基础知识，我们可以更好地设计干预措施 MCI及其护理伙伴的人有可能 对生活质量的重大影响。