Alzheimer's Disease Research Center Determinants of health seeking behaviors during COVID-19 in persons with MCI/ADRD and their caregivers

阿尔茨海默病研究中心 COVID-19 期间 MCI/ADRD 患者及其护理人员寻求健康行为的决定因素

• 批准号: 10218428
• 负责人: SCOTT A SMALL
• 金额: $ 16.15万
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-06-15 至 2025-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10218428
• 关键词: 2019-nCoV; Administrative Supplement; Adult; Advance Care Planning; Adverse event; Affect; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Attitude; COVID-19; COVID-19 pandemic; Caregivers; Caring; Case Fatality Rates; Cellular Phone; Cessation of life; Cognition; Cognitive; Cognitive aging; Communities; Contracts; Dementia; Elderly; Emergency Situation; Environment; Equilibrium; Face; Family Caregiver; Family member; Future; Health; Health Care Seeking Behavior; Home environment; Hospitalization; Hospitals; Infection; International; Knowledge; Measures; Medical center; New York City; Outcome; Participant; Pathologic; Patients; Persons; Police; Population; Psychosocial Assessment and Care; Public Health; Recording of previous events; Research; Research Personnel; Secure; Social Distance; Social Network; Social isolation; Stress; Surveys; Telephone; Time; United States National Institutes of Health; Universities; Work; adverse outcome; care providers; caregiver strain; caregiving; community based participatory research; coronavirus disease; design; ethnic minority population; expectation; experience; family caregiving; health seeking behavior; high risk; innovation; interest; member; mild cognitive impairment; pandemic disease; population movement; psychosocial; social; social engagement; sociodemographics; socioeconomic disadvantage; socioeconomics; virtual

The recent pandemic of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), or coronavirus disease (COVID-19), has disrupted much in the world. New York City and Columbia University Irving Medical Center have been the hospital at the COVID national and international epicenter. The psychosocial and functional implications of COVID-19 on our local population are myriad. The population affected by mild cognitive impairment and dementia (including Alzheimer’s Disease (AD) and Alzheimer Disease-related dementias (ADRD)) faces high case fatality rates and major disruptions in care following necessary social distancing polices for high risk persons. These changes have imposed new and unexpected personal and professional caregiver strains. Specifically, the following have occurred in the population for whom our center provides care: a) the loss of potential direct contact with professional caregivers due to their own social distancing requirements, new person caregiving responsibilities, personal illnesses b) limited excursions in the local environment out of concerns, for contracting COVID-19, and c) closure of myriad social day activities, both formal and informal. As a result, during periods of social isolation, persons with dementia are largely bound to their homes, confused by the chaos, and perceive and express the stress their family members experience. Moreover, many of these same family caregivers must balance remote work responsibilities and family caregiving, often within the same home. Unfortunately, some of these circumstances are untenable and have led to illness, hospitalization, and death of some of our patients and research participants, as well as their family members. This proposal will explore the experiences, knowledge, attitudes, healthcare-seeking behaviors, and psychosocial support related to the NYC COVID-19 epidemic, particularly among adults with normal cognition being followed in the ADRC as well as care partners for those persons with pathological cognitive aging, as well as socioeconomic determinants. It is hypothesized that many adults will have experienced adverse outcomes, been impacted in their personal and professional caregiver expectations, and variably demonstrate COVID-19 specific health seeking behaviors, as well as had care impacted, particularly those of advancing age or caring for others with advancing age, in ethnic minorities, and disadvantaged socioeconomic groups. Better understanding health-seeking behaviors and determinants during and after the local COVID-19 epidemic has potential implications both locally and potentially globally wherever community spread is growing. An effective survey instrument, with modules purposefully designed to be capture multigenerational effects may be relevant to some time to come, until the current pandemic has passed, as well as future pandemics or other emergencies which restrict social engagement and population movement.

严重急性呼吸道综合征2（SARS-COV-2）或冠状病毒病的最近大流行 （Covid-19）在世界范围内受到了很多破坏。纽约市和哥伦比亚大学欧文医学中心 曾是Covid国家和国际震中的医院。社会心理和功能 Covid-19对我们当地居民的影响是无数的。受温和认知影响的人口 障碍和痴呆症（包括阿尔茨海默氏病（AD）和阿尔茨海默氏病有关的痴呆症 （ADRD））面临高病例死亡率和必要的社会疏远政策后的护理重大干扰 对于高风险人。这些变化施加了新的和意外的个人和专业护理人员 菌株。具体而言，以下情况发生在我们中心提供护理的人群中： a）由于自己的社会疏远而导致与专业护理人员的潜在直接接触失去 要求，新人护理责任，个人疾病 b）出于关注，签约19和 c）关闭正式和非正式的无数社交活动。 结果，在社会隔离的时期，痴呆症患者在很大程度上被束缚于他们的家中， 被混乱的混乱混淆，并感知并表达他们的家庭成员所经历的压力。而且，许多 这些相同的家庭护理人员必须平衡远程工作责任和家庭护理，通常 同一个家。不幸的是，其中一些情况是站不住脚的，并导致疾病， 住院以及我们的一些患者和研究参与者及其家人的死亡。 该建议将探讨经验，知识，参与者，寻求医疗保健行为以及 与NYC COVID-19的流行病有关的社会心理支持，特别是在正常认知的成年人中 在ADRC中遵循的那些患有病理认知衰老的人的护理伙伴 作为社会经济决定宗派。假设许多成年人会经历不利的结果， 我们对他们的个人和专业护理人员的期望受到了影响，并且可变地证明了Covid-19 特定的健康寻求行为以及护理受到影响，尤其是促进年龄或关心的行为 对于年龄，少数民族和处境不利的社会经济群体的其他人来说。 更好地了解在当地Covid-19期间和之后的寻求健康的行为和决定词 无论社区传播在何处增长，流行病在当地和全球范围内都具有潜在的影响。 有效设计的有效的调查工具，目的是捕获多代效应 与未来的一段时间有关，直到当前的大流行过去，以及未来的大流行病或其他 限制社会参与和人口运动的紧急情况。