Feasibility study to explore the development of an innovative subscription-based dementia resource centre to support families navigating cognitive impairment

可行性研究探索开发创新型订阅式痴呆症资源中心以支持家庭应对认知障碍

• 批准号: 10019021
• 金额: $ 3.67万
• 依托单位: DEMENTIA COMPASS LIMITED
• 依托单位国家: 英国
• 项目类别: Small Business Research Initiative
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=10019021
• 关键词: Feasibility; study; explore; development; innovative

Dementia Compass is a social venture that has worked for the past decade providing resources to support people living with cognitive issues, their carers, and families.With an ageing population, we are seeing an increase in the number of people with a diagnosis of dementia and want to create a sustainable resource to expand our capacity and reach.Dementia is a progressive disease that worsens over time. As it changes, so too does support required to live well with the condition.However, the sort of flexible support that people tell us that they need simply does not exist at the moment. Over the last decade, working with people who have dementia and their families, we have often been told that support available begins too late and is not flexible enough to change with people's needs creating unnecessary health implications linked to cognitive overload and care burden.We want to change that.That is why we are proposing developing a community-based resource centre. This is not a 'medical' facility. It is more like a members' gym or a hotel, where PLWCI and their families can access adult learning and social engagement along with preventative health and therapy when they need it, day or night.And, like a gym, it will be paid for by a monthly subscription that is far lower than the costs of part-time and full-time care (at present, fulltime residential care costs around £44,000 each year). We don't know what these costs will be yet. Part of this project will be working with people living with cognitive issues, their families, health professionals, researchers and leaders in allied fields to work that out.By having access to a flexible facility, families can reduce these costs. More importantly, people will be able to remain living in their homes for longer, can get 24/7 support that fits their lives, and can engage in activities and learning which research has shown can slow disease progression.This is innovative because it is an entirely new model for service delivery. We want to prove that there is a market need that is not currently being met. Our hope is that our facility will be a demonstrator model which will encourage other market provision, meeting the growing need. That is why as part of our plans we will work with research bodies to evaluate the effectiveness of what we do for the people we serve.

Dementia Compass 是一家社会企业，在过去十年中一直致力于提供资源来支持患有认知问题的人们、他们的照顾者和家庭。随着人口老龄化，我们看到被诊断为痴呆症的人数不断增加，希望创造一种可持续的资源来扩大我们的能力和范围。痴呆症是一种进行性疾病，随着时间的推移会恶化，随着病情的变化，良好生活所需的支持也随之变化。然而，人们告诉我们的灵活支持。他们所需要的根本不存在在过去的十年中，在与痴呆症患者及其家人合作时，我们经常被告知，现有的支持开始得太晚，而且不够灵活，无法根据人们的需求进行改变，从而造成与认知超负荷和护理负担相关的不必要的健康影响。我们想要改变这一点。这就是为什么我们建议建立一个以社区为基础的资源中心。这不是一个“医疗”设施，它更像是一个会员健身房或酒店，PLWCI 及其家人可以在那里进行成人学习。和社会参与以及预防性健康和治疗他们无论白天还是晚上都需要它。而且，就像健身房一样，它将通过每月订阅来支付，远低于兼职和全职护理的成本（目前，全职住宿护理费用约为 44,000 英镑）我们还不知道这些成本是多少，该项目的一部分将与患有认知问题的人、他们的家人、卫生专业人员、研究人员和相关领域的领导者一起解决这个问题。通过灵活的设施，家庭可以减少这些费用。更重要的是，人们将能够在家中居住更长时间，可以获得适合他们生活的 24/7 支持，并且可以参与研究表明可以减缓疾病进展的活动和学习。这是创新的，因为它是一种我们希望证明目前尚未满足的市场需求。我们希望我们的设施能够成为一个示范模型，从而鼓励其他市场提供服务，满足不断增长的需求。作为我们计划的一部分，我们将与研究机构合作评估我们为我们所服务的人们所做的事情的有效性。