Clinical Implications of Respiratory Symptoms in Ehlers Danlos Syndrome and Hypermobility Spectrum Disorder

埃勒斯·丹洛斯综合征和过度活动症谱系障碍呼吸系统症状的临床意义

• 批准号: 466883
• 负责人: Al Kaabi Noor
• 金额: $ 1.27万
• 依托单位: University of Toronto
• 依托单位国家: 加拿大
• 项目类别: Studentship Programs
• 财政年份: 2021
• 资助国家: 加拿大
• 起止时间: 2021-12-01 至 2022-12-01
• 项目状态: 已结题
• 来源: https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=466883&lang=en
• 关键词: Connective Tissue Disorders; Health Related Quality Of Life; Healthcare Utilization; Mixed Methods; Patient Reported Outcome Measures; Physical Activity; Qualitative Methods; Respiratory Health; Symptom Management; Wearable Devices

Statement on Health Problem: People living with Ehlers Danlos Syndrome (EDS) and Hypermobility Spectrum Disorder (HSD) have health issues in multiple systems in their body including respiratory (breathing) difficulties. The respiratory team at our center

关于健康问题的声明：埃勒斯丹洛斯综合症 (EDS) 和活动过度谱系障碍 (HSD) 患者体内多个系统存在健康问题，包括呼吸困难。我们中心的呼吸团队