User-Centered Design of a Proactive RF-Based Wearable Bladder Monitor for Toilet Training of Children with ASD/IDD

以用户为中心的主动式射频可穿戴膀胱监测器设计，用于 ASD/IDD 儿童如厕训练

• 批准号: 10742670
• 负责人: Laura Estep
• 金额: $ 39.92万
• 依托单位: UNIVERSITY OF TEXAS AT AUSTIN
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-20 至 2025-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10742670
• 关键词: 3-Dimensional; Accidents; Address; Adult; Behavior; Bladder; Caregivers; Child; Clinical; Communities; Computer Simulation; Data; Detection; Devices; Diagnosis; Disabled Persons; Education; Educational process of instructing; Electrical Engineering; Electromagnetics; Enuresis; Esthesia; Feedback; Focus Groups; Hygiene; Incontinence; Individual; Intellectual functioning disability; Learning; Location; Measurement; Measures; Monitor; Notification; Outcome; Parents; Population; Population Heterogeneity; Quality of life; Questionnaires; Radar; Research; Risk; Schedule; Shapes; Signal Transduction; Social isolation; Special Education; Surveys; Technology; Testing; Time; Tissues; Toilet Training; Urinary Incontinence; Validation; Work; adult with autism spectrum disorder; aged; autism spectrum disorder; autistic children; behavioral study; care providers; community setting; design; electric impedance; flexibility; individuals with autism spectrum disorder; interdisciplinary approach; meetings; multidisciplinary; peer; pilot test; psychologic; radio frequency; response; sensor; social; success; support tools; tool; transmission process; user centered design; wireless; young adult with autism spectrum disorder

Abstract Urinary incontinence (UI) and difficulties with toilet training are significant and common challenges faced by children and young adults with autism spectrum disorder (ASD) and/or intellectual and developmental disabilities (IDD). For these individuals, toileting problems can result in slower progress and lower overall success rates with toilet training compared to their neurotypical same-aged peers, and often having substantial negative impact their independence and ability to participate in educational and community settings. Unfortunately for many, these difficulties with incontinence can continue into adulthood, creating physical and psychological quality of life barriers, such as physical discomfort, social isolation, improper hygiene, and lowered self-confidence and independence. The available support tools for children struggling with toilet training have not advanced significantly in decades, and there is an urgent need for approaches to help these individuals achieve long-term successful toileting. In this work, a technological support tool is proposed that will provide a proactive solution to help with toilet training. By proactively alerting before an accident occurs, it is expected that the user will be able to learn to recognize and attend to the sensation that triggers the alert. Further, a proactive response will reduce accident risk, minimize associated embarrassment from accidents, and decrease the likelihood of developing toileting averse behaviors. The project takes a multi-disciplinary approach, combining expertise from Electrical Engineering and Special Education, in order to tackle two key aims. The first aim is to identify the highly population-dependent set of needs and constraints for an ideal toileting support tool through engagement with key stakeholders (including parents or caregivers of children with ASD/IDD, and care providers, educators, and clinical professionals), through focus groups and survey-based questionnaires. The second aim is to design, implement, and pilot test a user-centered bladder monitor that aims to uniquely provide a support tool to proactively alert of bladder fullness and support dignity and independence for children and young adults with ASD/IDD, and others suffering from UI. Built based on radio-frequency (RF)-based technology, the bladder monitor will be non-invasive and enable real-time, safe, and continuous measurement and monitoring of the bladder state through a sensor array that is flexible, discreet, and wireless. The resulting monitor will meet the diverse needs of this population, and will be the first tool ever to provide a proactive alert when the bladder is approaching full, to support toilet training and to avoid accidents. Initial validation testing will be conducted through electromagnetic computational simulations and experimental demonstrations, followed by pilot testing with to establish real-world feasibility and social validity, with expanded behavioral studies in individuals with ASD/IDD who have difficulties with toilet training planned subsequently. Long-term, this device is envisioned to support the transition to independence for children and young adults with ASD/IDD from diverse backgrounds, for them to achieve a higher quality of life, and greater participation in educational and community settings.

抽象的 尿失禁 (UI) 和如厕训练困难是面临的重大且常见的挑战 患有自闭症谱系障碍 (ASD) 和/或智力和发育障碍的儿童和年轻人 残疾（IDD）。对于这些人来说，如厕问题可能会导致进展缓慢和整体成功率降低 与神经典型的同龄同龄人相比，他们的如厕训练率，并且经常有显着的负面影响 影响他们的独立性和参与教育和社区环境的能力。不幸的是 许多人，这些尿失禁的困难可能会持续到成年，造成身体和心理质量下降 生活障碍，例如身体不适、社会孤立、不卫生、自信心下降等 独立。针对如厕训练困难的儿童可用的支持工具尚未进步 几十年来意义重大，迫切需要找到方法来帮助这些人实现长期目标 成功如厕。在这项工作中，提出了一种技术支持工具，它将提供主动的解决方案 帮助进行如厕训练。通过在事故发生前主动发出警报，预计用户能够 学会识别并关注触发警报的感觉。此外，主动响应将减少 事故风险，最大限度地减少事故带来的尴尬，并降低发生事故的可能性 厌恶如厕的行为。该项目采用多学科方法，结合了电气专业知识 工程和特殊教育，以解决两个关键目标。第一个目标是识别高度 通过参与，对理想的如厕支持工具进行人口依赖的一系列需求和限制 关键利益相关者（包括 ASD/IDD 儿童的父母或照顾者，以及照顾者、教育工作者和 临床专业人员），通过焦点小组和基于调查的问卷。第二个目标是设计， 实施并试点测试以用户为中心的膀胱监测器，旨在提供独特的支持工具 主动警惕膀胱充盈度并支持儿童和年轻人的尊严和独立 患有 ASD/IDD 的人，以及其他患有 UI 的人。基于射频 (RF) 技术构建的 膀胱监测仪将是非侵入性的，能够实时、安全、连续地测量和监测 通过灵活、谨慎和无线的传感器阵列来了解膀胱状态。由此产生的监视器将满足 该人群的多样化需求，并将成为第一个在膀胱出现异常时提供主动警报的工具 即将满员，以支持如厕训练并避免发生意外。将进行初步验证测试 通过电磁计算模拟和实验演示，然后进行试点测试 建立现实世界的可行性和社会有效性，并扩大对个体的行为研究 随后计划进行如厕训练有困难的 ASD/IDD。从长远来看，该设备预计将 支持来自不同背景的患有 ASD/IDD 的儿童和年轻人向独立过渡， 帮助他们实现更高的生活质量，并更多地参与教育和社区环境。