Enhancing NSHAP Caregiving & Social Network Measures to Contextualize Aging & Family Caregiving of AD/ADRD among English- and Spanish-speaking Latino Older Adults

加强 NSHAP 护理

• 批准号: 10901038
• 负责人: Lissette Piedra
• 金额: $ 66.22万
• 依托单位: NATIONAL OPINION RESEARCH CENTER
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-15 至 2025-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10901038
• 关键词: Acculturation; Acute; Address; Affect; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Caregivers; Caring; Cognitive; Communication; Communities; Complex; Country; Cultural Characteristics; Data; Dementia; Dementia caregivers; Elderly; English Language; Family; Family Caregiver; Family member; Generations; Glean; Growth; Health; Health Services; Hispanic; Home; Household; Institution; Intensive Care; Internet; Interview; Language; Latino; Latino Population; Life; Light; Limited English Proficiency; Linguistics; Link; Longitudinal Studies; Measures; Mental Health; Methodology; Methods; Migrant; Motor; Multilingualism; Patients; Personal Satisfaction; Persons; Pharmaceutical Preparations; Play; Population; Protocols documentation; Provider; Research; Research Personnel; Respondent; Role; Sampling; Sensory; Services; Social Network; Societies; System; Telephone; Testing; Time; Training; Translating; Translations; United States; Writing; aging population; bilingualism; care recipients; caregiving; cognitive interview; commune; demographics; experience; family caregiving; family support; follow-up; health care availability; health care settings; improved; insight; member; peer; phrases; physical conditioning; recruit; response; service providers; skills; social; social relationships; tool

Project Summary Abstract Researchers estimate an 832 percent growth in the number of Latinos with AD from 379,000 in 2012 to 3.5 million by 2060. While families frequently support the communication in people with Alzheimer’s Disease and Alzheimer’s Disease Related Dementias (AD/ADRD), language differences can create particularly complex situations for caregivers who must navigate a dominant English-language system for a family member who has reverted to their first language. This issue is particularly acute for Latinos, given that the majority are bilingual, and many families are (and will be) affected by complex caregiving needs. Frequently, the translation of materials serves to promote service access for linguistically diverse groups. But to reflect underlying cultural nuances and to identify the best secular phrasing and/or idiomatic expression in the target language, constructing valid measures requires more than mere translation. Moreover, because language is communal, it is closely tied to identity formation and acculturation, which can affect people’s social network formations and reinforce language skills. Arguably, analyses of valid measures should also consider how the social (linguistic) context might influence responses. We propose to enrich the National Social Life, Health, and Aging Project (NSHAP), a longitudinal study of older adults focused on social relationships, physical and mental health, cognitive, sensory, and motor function, and medication use. NSHAP oversampled Latinos, collected data in English and Spanish, and interviewed respondents in four rounds (2005-06, 2010-11, 2015-16 and 2021-22). However, these data have rarely been used to study Latino older adults’ health and social lives. No research has been conducted that compares the social networks of English- and Spanish-speaking Latinos and we know nothing about caregiving within these networks. NSHAP lacks questions on language usage in daily life and contains few questions on how language and cultural characteristics might impede access to health and other important institutions. To contextualize aging and family caregiving of AD/ADRD among Spanish- and English-speaking Latino older adults we aim to augment the NSHAP social network roster and caregiving questions, improve NSHAP Spanish-language measures of caregiving and social networks, and administer the enhanced NSHAP protocols to Latino AD/ADRD caregivers in Spanish and English.

项目概要 摘要 研究人员估计，患有 AD 的拉丁裔人数增加了 832%，从 2012 年的 379,000 人增加到 3.5 人 到 2060 年，这一数字将达到 100 万。虽然家庭通常会支持阿尔茨海默病患者的沟通， 阿尔茨海默病相关痴呆症 (AD/ADRD)，语言差异会造成特别复杂的情况 对于护理人员来说，他们必须为有语言障碍的家庭成员使用占主导地位的英语语言系统。 恢复他们的母语这个问题对于拉丁裔来说尤其严重，因为大多数人都是双语的。 许多家庭正在（并将）受到复杂的护理需求的影响。材料的翻译常常会受到影响。 旨在促进不同语言群体的服务获取，但也反映了潜在的文化差异。 识别目标语言中最好的世俗措辞和/或惯用表达，构建有效的 措施需要的不仅仅是翻译。此外，由于语言是公共的，因此它与语言密切相关。 身份形成和文化适应，可以影响人们的社交网络形成并强化语言 可以说，对有效措施的分析还应该考虑社会（语言）背景的影响。 影响反应。 我们建议丰富国家社会生活、健康和老龄化项目（NSHAP），这是一项纵向研究 老年人关注社会关系、身心健康、感觉和运动功能， NSHAP 对拉丁裔进行了过度抽样，收集了英语和西班牙语数据并进行了访谈。 调查对象已分四轮（2005-06、2010-11、2015-16 和 2021-22）进行了调查。但是，这些数据很少被公开。 用于研究拉丁裔老年人的健康和社交生活的研究尚未进行。 讲英语和西班牙语的拉丁美洲人的社交网络，我们对这些网络中的护理一无所知 NSHAP 缺乏有关日常生活中语言使用的问题，并且很少包含有关语言如何使用的问题。 和文化特征可能会妨碍获得医疗保健和其他重要机构的服务。 西班牙语和英语拉丁裔老年人中 AD/ADRD 的老龄化和家庭护理，我们的目标是 扩大 NSHAP 社交网络花名册和护理问题，提高 NSHAP 西班牙语水平 护理和社交网络措施，以及管理针对拉丁裔 AD/ADRD 的增强型 NSHAP 协议 西班牙语和英语的护理人员。