COMMUNITY ENGAGEMENT AND PARTNERSHIP (CEP)

社区参与和合作 (CEP)

• 批准号: 10748640
• 负责人: Lisa Goldman Rosas
• 金额: $ 52.22万
• 依托单位: STANFORD UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-08-17 至 2030-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10748640
• 关键词: Affect; Anemia; Asian; Biomedical Research; Black race; Clinical; Communication; Communities; Country; Data; Dedications; Equity; Goals; Grant; Health; Health Services Accessibility; Healthcare; Hemorrhage; Income; Individual; Inequity; Intervention; Latinx; Leadership; Learning; Maternal Health; Maternal Mortality; Maternal health equity; Mental Health; Mothers; Native Americans; Outcome; Outcome Study; Patient-Focused Outcomes; Patients; Persons; Phase; Policies; Population; Postpartum Hemorrhage; Postpartum Period; Provider; Research; Research Priority; Research Project Grants; Research Training; Resources; Risk; Training; Translating; Translational Research; Translations; Universities; Work; community engaged research; community engagement; community organizations; community partnership; design; digital; disparity reduction; experience; health equity promotion; improved; innovation; obstetrical complication; patient engagement; physical conditioning; pregnant; prevent; programs; severe maternal morbidity; uptake

Project Summary The goal of the Community Engagement and Partnership component (CEP) is to ensure that patients and key stakeholders are integrated into all phases of PRIHSM’s research to promote maternal health equity. PRIHSM focuses on postpartum hemorrhage (PPH), which is one of the most common causes of severe maternal morbidity (SMM) and maternal mortality. PRIHSM prioritizes groups that bear the disproportionate burden of PPH, which includes Asian, Black, Latinx and Native American individuals, those in mother-mother partnerships, and people with limited resources and access to care. While engagement of patients and communities in biomedical research is increasingly recognized as a best practice for promoting health equity, there is a dearth of engagement in setting research priorities for SMM and limited understanding of patients’ lived experiences after an obstetric complication. These limitations are even more stark when considering issues such as severe PPH and its short and long term physical and mental health outcomes, which are the focus of PRIHSM’s research projects. Strong, bidirectional patient and community partnerships and effective engagement strategies are essential for identifying and implementing the most promising interventions to reduce disparities in SMM and maternal mortality due to PPH. Thus, CEP will create bidirectional partnerships with patients, key stakeholders, and community-based organizations that represent people most affected by the study outcomes through these Specific Aims: Aim 1. Build, strengthen, and sustain bidirectional community-university partnerships focused on improving maternal health equity; Aim 2. Integrate perspectives of patients, providers, and healthcare leadership into PRIHSM’s research, using tailored, innovative engagement strategies such as data storytelling and research prioritization activities to promote partner-driven solutions to improve patient- centered outcomes. Aim 3. Develop and implement strategies to disseminate PRIHSM’s findings to a broad audience and translate them into clinical policy and practice to promote health equity, using innovative approaches such as mini-grants to community partners, digital storytelling of study findings, and in-person community gatherings to facilitate maximum engagement and uptake of key health information. Each of these aims is synergistically aligned with our research projects and training objectives. Successful completion of these Aims will result in strong, sustainable community-university partnerships dedicated to improving maternal health equity and create a blueprint of best practices for successful community-engaged research focused on maternal health.

项目概要 社区参与和合作伙伴关系 (CEP) 的目标是确保 将患者和主要利益相关者纳入 PRIHSM 研究的所有阶段，以 促进产妇健康公平 PRIHSM 重点关注产后出血 (PPH)，这是 严重孕产妇发病 (SMM) 和孕产妇死亡的最常见原因之一。 PRIHSM 优先考虑承受不成比例的 PPH 负担的群体，其中包括亚洲人、 黑人、拉丁裔和美洲原住民、母子伴侣以及其他人 资源和获得护理的机会有限，同时患者和社区参与其中。 生物医学研究越来越被认为是促进健康公平的最佳实践， 缺乏对 SMM 研究优先事项的参与，理解也有限 这些限制甚至更多。 在考虑严重的 PPH 及其短期和长期的身体和健康等问题时，这一点是显而易见的。 心理健康结果是 PRIHSM 研究项目的重点。 双向的患者和社区伙伴关系以及有效的参与策略 对于确定和实施最有希望的干预措施以减少差距至关重要 因此，CEP 将与 PPH 建立双向合作伙伴关系。 患者、主要利益相关者以及最能代表人民的社区组织 通过这些具体目标受到研究结果的影响： 目标 1. 建立、加强和 维持社区与大学的双向伙伴关系，重点改善孕产妇健康 目标公平；2. 将患者、提供者和医疗保健领导层的观点纳入其中 PRIHSM 的研究采用量身定制的创新参与策略，例如讲数据故事 和研究优先活动，以促进合作伙伴驱动的解决方案，以改善患者 目标 3. 制定并实施传播 PRIHSM 的战略。 研究结果向广大受众传播，并将其转化为临床政策和实践，以促进 健康、公平，使用创新方法，例如向社区合作伙伴提供小额赠款、数字化 讲述研究结果的故事，以及面对面的社区聚会，以最大限度地促进 这些目标中的每一个目标都是协同一致的。 我们的研究项目和培训目标将成功完成。 建立强有力的、可持续的社区-大学伙伴关系，致力于改善孕产妇状况 健康和公平为成功的社区参与创造了最佳实践蓝图 研究重点是孕产妇健康。