Improving Information Sharing Between Family Caregivers and Home Care Aides Caring for Persons Living with ADRD

改善照顾 ADRD 患者的家庭护理人员和家庭护理助理之间的信息共享

• 批准号: 10571144
• 负责人: Chanee Fabius
• 金额: $ 12.33万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-01-01 至 2027-12-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10571144
• 关键词: Address; Administrator; Adverse effects; Aging; Alzheimer' s disease caregiver; Alzheimer' s disease related dementia; American; Applications Grants; Area; Award; Basic Science; Behavior; Behavioral Model; Caregivers; Caring; Case Manager; Characteristics; Communication; Communities; Data; Dementia; Development; Disease Progression; Disparity; Dual Enrollment; Elderly; Enrollment; Exclusion; Family; Family Caregiver; Feeling; Funding; Future; Goals; Health; Health Policy; Home; Home Care Agencies; Home Health Aides; Home Nursing Care; Human; Intervention; Interview; K-Series Research Career Programs; Knowledge; Learning; Maryland; Medicaid; Medicare/Medicaid; Mentorship; Methods; Nurses; Outcome; Persons; Policies; Pragmatic clinical trial; Privatization; Process; Public Health Schools; Quality of Care; Quality of life; Recommendation; Reporting; Research; Research Personnel; Residential Treatment; Resources; Role; Sampling; Services; Stress; Testing; Time; Training; Translating; United States National Institutes of Health; Visit; Work; acceptability and feasibility; care coordination; care delivery; care recipients; career; career development; community based service; community living; dementia care; design; disability; expectation; experience; health management; improved; patient home care; preference; primary endpoint; professor; programs; service delivery; skills; social engagement; symposium; therapy development; trend; user centered design

PROJECT SUMMARY Dr. Chanee Fabius is an Assistant Professor in the Department of Health Policy and Management at the Johns Hopkins Bloomberg School of Public Health. Her career goal is to become an independent investigator conducting high-impact embedded pragmatic clinical trials (ePCTs) directed at testing interventions, policies and programs in real world settings to better support the home care workforce and improve care quality and quality of life among those receiving services, including persons living with Alzheimer’s Disease and related dementias (ADRD) and their family caregivers. This award will provide her with the protected time and learning experiences to obtain the knowledge, skills, and capability to develop ePCTs and translate findings into routine home care delivery. Dr. Fabius’s career development award proposes five years of training in mixed methods, human factors approaches in home care research, and applied experiences developing and conducting ePCTs. Dr. Fabius has assembled a stellar mentorship team and advisory panel with expertise in the areas of her proposed training goals. As a result of disease progression, high care needs, and limited financial resources, persons living with ADRD often receive Medicaid Home and Community-Based Services, delivered by home care aides proving hands on assistance with daily activities. Family caregivers and home care aides interact to provide care for older adults, but their relationship is often fraught due to gaps in information, misalignment of role expectations, and lack of shared understanding of each other’s roles in home care. The proposed K01 will: (1) leverage nationally representative data to determine how role sharing between family caregivers and home care aides differs among Medicare-Medicaid enrolled home care recipients with and without ADRD, and is associated with older adults’ participation restrictions; (2) conduct a qualitative study to develop and refine a home care role and preference guide to improve information sharing and clarify role expectations between family caregivers and home care aides caring for older Medicaid HCBS recipients living with ADRD; (3) assess the feasibility and acceptability of delivering a home care role and preference guide to family caregivers of older adults living with ADRD and home care aides. The intervention will be piloted in up to five agencies within 10 triads of older adults living with ADRD, family caregivers, and home care aides. The proposed work is aligned with recent policy and research recommendations calling for interventions that support quality of life for older adults living with ADRD, family caregivers, and home care aides. Findings will support the development and submission of an R01 grant proposal to implement and test an ePCT in Medicaid HCBS to assess the effects of the role and preference guide and quality of life outcomes for older adults, family caregivers, and home care aides.

项目概要 Chanee Fabius 博士是卫生政策与管理系助理教授 她的职业目标是成为一名独立的人。 研究人员进行针对测试的高影响力嵌入式实用临床试验 (ePCT) 现实世界环境中的干预措施、政策和计划，以更好地支持家庭护理人员和 提高接受服务者（包括患有艾滋病的人）的护理质量和生活质量 阿尔茨海默病和相关痴呆症（ADRD）及其家庭护理人员将获得该奖项。 用受保护的时间和学习经验来获得发展的知识、技能和能力 ePCT 并将研究结果转化为 Fabius 博士的职业发展奖。 提议在家庭护理研究中进行五年混合方法、人为因素方法的培训，以及 Fabius 博士拥有开发和实施 ePCT 的应用经验，组建了一支出色的指导团队。 以及在她提出的培训目标领域拥有专业知识的咨询小组。 由于疾病进展、高护理需求和有限的财政资源，患有这种疾病的人 ADRD 经常接受医疗补助家庭和社区服务，这些服务由家庭护理援助机构提供，证明 家庭护理人员和家庭护理辅助人员相互作用，为患者提供日常活动的实际帮助。 老年人，但由于信息差距、角色期望不一致，他们的关系常常充满紧张， 对彼此在家庭护理中的角色缺乏共识 拟议的 K01 将：(1) 发挥杠杆作用。 具有全国代表性的数据，以确定家庭护理人员和家庭护理辅助工具之间的角色分担 患有或不患有 ADRD 的 Medicare-Medicaid 登记家庭护理接受者之间存在差异，并且与 老年人的参与限制；(2) 进行定性研究以制定和完善家庭护理角色 并指导偏好，以改善信息共享并明确家庭照顾者之间的角色期望 以及为患有 ADRD 的老年医疗补助 HCBS 接受者提供家庭护理援助 (3) 评估可行性并 向老年人的家庭护理人员提供家庭护理角色和偏好指南的可接受性 ADRD 和家庭护理助理将在 10 个老年人三合会内的最多 5 个机构进行试点。 患有 ADRD 的成年人、家庭护理人员和家庭护理助理拟议的工作与最近的工作一致。 政策和研究建议呼吁采取干预措施支持老年人的生活质量 与 ADRD 合作，家庭护理人员和家庭护理助理的调查结果将支持制定和提交。 R01 拨款提案，用于在 Medicaid HCBS 中实施和测试 ePCT，以评估该作用的影响和 老年人、家庭护理人员和家庭护理辅助设备的偏好指南和生活质量结果。