BASE PERIOD (YEAR 1): SUPPORT SERVICES RELATED TO CANCER REGISTRY CLAIMS ELECTRONIC DATA CAPTURE SOFTWARE SUPPORT AND INSTALLATIONS

基期（第一年）：与癌症登记索赔相关的支持服务电子数据采集软件支持和安装

• 批准号: 10017540
• 负责人: BRIAN GOCKERMAN
• 金额: $ 28万
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-07 至 2020-09-06
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10017540
• 关键词: Advanced Malignant Neoplasm; Area; Cancer Patient; Cancer Surveillance Research; Cause of Death; Community Clinical Oncology Program; Computer software; Consent; Data; Diagnosis; Dose; Health Personnel; Hospitals; Individual; Iowa; Kentucky; Laws; Louisiana; Malignant Neoplasms; Medical; National Cancer Institute; New Mexico; Oncologist; Patients; Physicians' Offices; Provider; Recording of previous events; Registries; Reporting; SEER Program; Series; Services; Source; System; Systemic Therapy; Technology; Utah; Vital Status; base; cancer care; cancer recurrence; cancer therapy; care delivery; data registry; demographics; electronic data; follow-up; interest; medical information system; neoplasm registry; oncology; programs; transmission process

Healthcare providers in all 50 states are required by law to report new cases of cancer to their state’s cancer registries. The National Cancer Institute’s (NCI’s) Surveillance, Epidemiology, and End Results (SEER) Program, collects data on each and every cancer patient in SEER covered areas. This data includes demographics, a description of their cancer, limited initial treatment information, and patient follow-up including cause of death for deceased patients. In the past the main source of registry data came from Hospitals. With the increasing complexity of cancer care and delivery systems, patients are being increasingly treated exclusively at physicians’ offices. Thus, for SEER to continue capturing all cancer cases and their treatment information SEER is interested in obtaining other sources of data such as claims data from oncology practices. Oncology practice claims has proven to be a rich source of information on detailed systemic therapy, including agents, doses administration dates etc. Beginning in 2015, the NCI SEER Program began supporting the procurement of oncology practice claims data for six (6) SEER central cancer registries from Unlimited Technology Systems, LLC. Unlimited Technology Systems, LLC provides healthcare information systems to a national community of oncology practices. In addition to obtaining cancer treatment information for cases recently diagnosed, SEER is interested in evaluating the long history of claims to assess longitudinal treatment as well as progression and/or cancer recurrence. To do this, it is crucial to have a very long series of longitudinal claims on the same cancer patient. The SEER Program has already obtained claims for a substantial number of SEER cancer patients for the years 2013-2017 for Georgia, Kentucky, Louisiana, New Mexico and Utah, and year 2018 for Iowa from oncology practices and oncologists, referenced here as providers. The current Unlimited Technology Systems, LLC providers have already provided consent to Unlimited Technology Systems, LLC to send claims to the respective central cancer registries to fulfil their obligation in reporting cancer cases. These claims are currently being used by SEER registries to ascertain new cancer cases more rapidly as the claims are received weekly, to capture systemic therapy and to ascertain follow-up information in terms of vital status of cancer patients. The SEER Program is interested in continuing to support the transmission of claims data for current providers, as well as to support the expansion of this capability, for additional providers within the SEER regions, or new states/areas covered by cancer registration that the Program identifies as important to obtain claims data information. This project is critical in order for SEER to continue being relevant and advance cancer surveillance and research.

法律要求所有 50 个州的医疗保健提供者向本州的癌症登记处报告新的癌症病例。国家癌症研究所 (NCI) 的监测、流行病学和最终结果 (SEER) 计划收集该州每位癌症患者的数据。 SEER 涵盖的区域。这些数据包括人口统计数据、癌症描述、有限的初始治疗信息以及患者随访（包括已故患者的死亡原因）。过去，登记数据的主要来源是。医院随着癌症护理和治疗系统的日益复杂，患者越来越多地在医生办公室接受治疗，因此，SEER 有兴趣获取其他数据来源，例如索赔。来自肿瘤学实践的数据已被证明是详细系统治疗的丰富信息来源，包括药物、剂量给药日期等。 从 2015 年开始，NCI SEER 计划开始支持从 Unlimited Technology Systems, LLC 采购六 (6) 个 SEER 中央癌症登记处的肿瘤学实践索赔数据 Unlimited Technology Systems, LLC 为国家肿瘤学实践社区提供医疗保健信息系统。除了获取最近诊断的病例的癌症治疗信息外，SEER 还对评估长期的索赔历史感兴趣，以评估纵向治疗以及进展和/或癌症复发。为此，拥有很长的索赔历史至关重要。 SEER 计划已经获得了 2013-2017 年佐治亚州、肯塔基州、路易斯安那州、新墨西哥州和犹他州以及 2018 年爱荷华州肿瘤科的大量 SEER 癌症患者的索赔。目前的 Unlimited Technology Systems, LLC 提供商已同意 Unlimited Technology Systems, LLC 向各自的中央癌症登记处发送索赔，以履行其在报告癌症病例。 SEER 登记处目前正在使用这些声明，以便在每周收到声明时更快地确定新的癌症病例，以捕获全身治疗并确定癌症患者生命状态的后续信息。SEER 计划有兴趣继续进行。支持当前提供者的索赔数据传输，并支持 SEER 区域内的其他提供者或该计划认为对于获取索赔数据信息重要的癌症登记覆盖的新州/地区的其他提供者的此功能的扩展该项目至关重要。为了让 SEER 继续发挥作用并推进癌症监测和研究。