Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers

为服务不足的晚期癌症护理人员提供非专业教练主导的早期姑息治疗

• 批准号: 10377774
• 负责人: James N. Dionne-Odom
• 金额: $ 17.02万
• 依托单位: UNIVERSITY OF ALABAMA AT BIRMINGHAM
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-07-01 至 2025-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10377774
• 关键词: Advanced Malignant Neoplasm; African American; Attitude; Award; Bereavement; Caregiver support; Caregivers; Cessation of life; Development; Diagnosis; Disease Progression; Doctor of Philosophy; Family; Family Caregiver; Feedback; Foundations; Goals; Health; Intervention; Interview; Knowledge; Lead; Leadership; Malignant Neoplasms; Methods; Outcome; Palliative Care; Parents; Patient Care; Patients; Persons; Phase; Qualitative Research; Reporting; Research; Research Personnel; Risk Factors; Training; base; cancer-related cognitive impairment; care recipients; community engagement; design; end of life; experience; family caregiving; improved; motivational enhancement therapy; psychological distress; public health priorities; skills; therapy development

SUPPLEMENT PROJECT SUMMARY This application (a Diversity Supplement to Dr. James N. Dionne-Odom’s parent award entitled, “Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers”) describes the background and experience of the applicant, Erin R. Harrell, PhD and her plan to acquire knowledge and training necessary to become a leading independent researcher in developing interventions that optimize bereavement outcomes in African American (AA) caregivers of persons with advanced cancer. The overall goal of this supplement is to gain advanced training in qualitative research, intervention development, and health coaching/motivational interviewing in order to explore components that could be included in an intervention to help African American caregivers cope with disease progression when a patient experiences cancer related cognitive impairment (CRCI). Specific training objectives during the supplement include (1) deepening understanding of patients and their families, to: 1a) augment knowledge and skills in health coaching and 1b) attain experience in stakeholder- informed intervention development; (2) acquiring new skills in advanced qualitative interviewing and advance understanding of community engagement in research using mixed methods to design and lead intervention development relevant to family caregiving; and 3) developing practical skills and scientific management and leadership to support development as an investigator and equity leader. The research aim during the supplement phase is to better understand how African American caregivers cope with CRCI and what they value as being helpful in improving bereavement outcomes to lessen psychological distress. To date, there has been little research examining how AA family caregivers cope with care recipient CRCI along the advanced cancer trajectory, from diagnosis, to end of life, to bereavement. Using a qualitative approach based on the Integrative Risk Factor Framework, one-on-one interviews will be conducted with 15-25 African American caregivers of patients with advanced cancer participating in the parent R37 (R37CA252868) to ascertain the needs and challenges related to their care recipients CRCI. Aim 1: Identify the experiences, needs, and attitudes of African American/Black family caregivers of patients with advanced cancer who currently are or may experience CRCI. Aim 2: Elicit feedback on potential support strategies that might help African American/Black family caregivers cope with caring for patients with advanced cancer who experience CRCI, including adjustment after death. Results from this study will be foundational to a K01 application to develop and pilot an intervention to support AA caregivers dealing with care recipient CRCI in order to help them better cope and adjust to their relative’s death in bereavement.

补充项目摘要 本申请（James N. Dionne-Odom 博士家长奖的多元化补充，题为“非专业教练主导 为服务不足的晚期癌症护理人员提供早期姑息治疗”）描述了背景和经验 申请人艾琳·R·哈雷尔 (Erin R. Harrell) 博士以及她获得成为一名 领先的独立研究人员开发优化非洲丧亲结果的干预措施 美国 (AA) 晚期癌症患者的护理人员本补充剂的总体目标是获得益处。 定性研究、干预开发和健康指导/激励方面的高级培训 进行访谈，以探索可以纳入帮助非裔美国人的干预措施的组成部分 当患者经历癌症相关损伤时，护理人员应对疾病进展 （CRCI）。补充期间的具体培训目标包括（1）加深对患者和患者的了解。 他们的家人，以：1a）增强健康指导方面的知识和技能，1b）获得利益相关者的经验- 知情干预的发展；（2）获得高级定性访谈和高级访谈的新技能 了解社区参与研究，使用混合方法来设计和领导干预 与家庭护理相关的发展；3) 发展实用技能和科学管理； 作为研究者和领导者的领导力支持股权发展 补充期间的研究目标。 阶段的目的是更好地了解非裔美国护理人员如何应对 CRCI 以及他们的价值观 迄今为止，这对于改善丧亲结果、减轻心理痛苦几乎没有帮助。 研究调查 AA 家庭护理人员如何应对护理对象晚期癌症的 CRCI 使用基于综合的定性方法来描述从诊断到生命终结、到丧亲之痛的轨迹。 风险因素框架，将与 15-25 名非洲裔美国护理人员进行一对一访谈 患有晚期癌症的患者参加母体 R37 (R37CA252868) 以确定需求和 与其护理对象相关的挑战 CRCI 目标 1：确定非洲人的经历、需求和态度。 目前正在或可能正在经历 CRCI 的晚期癌症患者的美国/黑人家庭护理人员。 目标 2：征求有关可能帮助非裔美国人/黑人家庭护理人员的潜在支持策略的反馈 应对经历 CRCI 的晚期癌症患者的护理，包括死后的调整。 这项研究的结果将为 K01 应用程序开发和试点干预措施奠定基础，以支持 AA 护理人员与护理接受者 CRCI 打交道，以帮助他们更好地应对和适应其亲属的情况 死于丧亲之痛。