Oral Health Status and its Correlates in Adults with Developmental Disabilities

发育障碍成人的口腔健康状况及其相关性

基本信息

批准号：
7933967
负责人：
Paula Minihan
金额：
$ 45.15万
依托单位：
TUFTS UNIVERSITY BOSTON
依托单位国家：
美国
项目类别：
财政年份：
2009
资助国家：
美国
起止时间：
2009-09-17 至 2012-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7933967
关键词：
Activities of Daily Living Address Administrator Adult Advocate Age Area Arts Biometry Caregivers Cerebral Palsy Characteristics Chronic Clinic Clinical Clinical Data Cognitive Community Outreach Complex Comprehensive Dental Care Comprehensive Health Care Coupled Data Data Analyses Databases Dental Dental Care Dental Clinics Dental Facilities Dental General Practice Dental Records Dental Schools Dentistry Developmental Disabilities Disabled Persons Electronic Health Record Electronics Environment Environmental Risk Factor Epidemiology Family Family member Focus Groups Foundations Government Guidelines Health Health Promotion Health Status Impairment Individual Intervention Knowledge Life Massachusetts Medicine Mental Retardation Modification Mouth Diseases Nutrition Policy Oral health Patients Pattern Persons Policy Maker Population Preventive Protocols documentation Provider Psyche structure Qualitative Methods Research Research Project Grants Risk Factors Self-Administered Sensory Services Surveys System Tooth Diseases Universities Visit autism spectrum disorder base behavioral/social science care systems design developmentally disabled disability electronic data health disparity meetings oral care patient home care population based programs

项目摘要

DESCRIPTION (provided by applicant): This project will address the Broad Challenge Area of Health Disparities and the specific Challenge Topic 09-DE-101, Behavioral and Social Science to Reduce Oral Health Disparities. Although small-scale studies have evaluated oral disease in the developmentally disabled, the oral health status, treatment needs and helpful interventions for adults with developmental disabilities (DD) are largely unknown. The inability of many adults with DD to perform preventive home care - because of cognitive, physical, and/or sensory limitations - coupled with a lack of understanding about the value of daily oral care and regular dental visits among some caregivers, also creates significant barriers. Little is known about the characteristics of adults with DD, their caregivers, and their living environments that facilitate or impede preventive home care and regular dental visits. This information is essential to create best practices for dental treatment guidelines for persons with DD and to develop compensatory strategies and environmental modifications to promote their oral health. We propose to address this gap by using data from an exceptional dental care system for the disabled in Massachusetts administered by Tufts University School of Dental Medicine (TUSDM). Tufts Dental Facilities are an 8-clinic system that serves approximately 7000 adults with DD. An interdisciplinary team with expertise in dentistry, epidemiology, health and disability policy, nutrition, and biostatistics will be assembled to meet the following specific aims: Aim 1: Describe the oral health status of people with DD, based on comprehensive dental examinations. Aim 2: Identify individual and caregiver factors associated with poor oral health. Aim 3: Develop an oral health promotion protocol based on the results from Specific Aims 1-2. Relevant clinical data for a 12-month period will be exported from the customized electronic health record system. Surveys will be self-administered to caregivers across the range of living environments in which these patients live to understand the environmental factors that influence the oral health status of adults with DD. Confirmatory focus groups will be conducted with caregivers across living situations to deepen our understanding of the barriers and facilitators, and will provide the opportunity to refine the health promotion intervention we will design. Our efforts will provide a foundation of knowledge that will be made available to dental professionals, state agency administrators, policy makers, residential providers, families and advocates to develop effective strategies to preserve and protect the oral health of this group. Oral Health Status and its Correlates in Adults with Developmental Disabilities Project Narrative: The oral health status and treatment needs of adults with developmental disabilities (DD) are largely unknown as are the characteristics of caregivers (the family members and paid staff who help with activities of daily living) and living environments that facilitate or impede preventive home care and regular dental visits. Analysis of data from the electronic dental record of 7,000 DD patients undergoing treatment at state- supported dental clinics in Massachusetts, surveys of caregivers, and confirmatory focus groups will be used to describe dental disease in this population and develop an oral health promotion protocol to address the factors identified in this research project.

描述（由申请人提供）：该项目将解决健康差异的广泛挑战领域和具体挑战主题 09-DE-101，减少口腔健康差异的行为和社会科学。尽管小规模研究评估了发育障碍患者的口腔疾病，但对于发育障碍 (DD) 成人的口腔健康状况、治疗需求和有益干预措施在很大程度上尚不清楚。由于认知、身体和/或感官限制，许多患有 DD 的成年人无法进行预防性家庭护理，加上一些护理人员对日常口腔护理和定期看牙医的价值缺乏了解，也造成了重大障碍。人们对患有 DD 的成年人、他们的照顾者以及促进或阻碍预防性家庭护理和定期牙科就诊的生活环境的特征知之甚少。这些信息对于为 DD 患者制定牙科治疗指南的最佳实践以及制定补偿策略和环境改造以促进他们的口腔健康至关重要。我们建议通过使用由塔夫茨大学牙科医学院 (TUSDM) 管理的马萨诸塞州残疾人特殊牙科护理系统的数据来解决这一差距。塔夫茨牙科设施是一个拥有 8 个诊所的系统，为大约 7000 名患有 DD 的成年人提供服务。将组建一支具有牙科、流行病学、健康和残疾政策、营养和生物统计学专业知识的跨学科团队，以实现以下具体目标：目标 1：根据全面的牙科检查描述 DD 患者的口腔健康状况。目标 2：确定与口腔健康状况不佳相关的个人和护理人员因素。目标 3：根据具体目标 1-2 的结果制定口腔健康促进方案。 12个月的相关临床数据将从定制的电子健康记录系统中导出。护理人员将在这些患者所居住的各种生活环境中自行进行调查，以了解影响 DD 成人口腔健康状况的环境因素。验证性焦点小组将与不同生活环境的护理人员一起进行，以加深我们对障碍和促进因素的理解，并将提供机会来完善我们将设计的健康促进干预措施。我们的努力将为牙科专业人士、国家机构管理人员、政策制定者、住宿提供者、家庭和倡导者提供基础知识，以制定有效的策略来维护和保护该群体的口腔健康。发育障碍成人的口腔健康状况及其相关性项目叙述：发育障碍成人 (DD) 的口腔健康状况和治疗需求在很大程度上是未知的，护理人员（家庭成员和帮助进行活动的受薪工作人员）的特征也是如此。日常生活）以及有利于或妨碍预防性家庭护理和定期牙科就诊的生活环境。对在马萨诸塞州国家支持的牙科诊所接受治疗的 7,000 名 DD 患者的电子牙科记录数据进行分析，对护理人员进行调查，并确定焦点小组，将用于描述该人群的牙科疾病，并制定口腔健康促进方案来解决本研究项目中确定的因素。