Improving Access to Diabetes Information for Deaf and Hard of Hearing Populations

改善失聪和听力障碍人群获取糖尿病信息的机会

• 批准号: 10729891
• 负责人: MICHELLE L LITCHMAN
• 金额: $ 15万
• 依托单位: UNIVERSITY OF UTAH
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-08-01 至 2026-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10729891
• 关键词: Address; Affect; American Sign Language; Blood Glucose; Caring; Cellular Phone; Communication; Communities; Data; Diabetes Mellitus; Disparity; Education; Educational Materials; English Language; Event; Focus Groups; Friends; Glucose; Goals; Health; Hearing; Improve Access; Information Resources; Infrastructure; Internet; Intervention; Interview; Language; Librarians; Linguistics; Measures; Medical; Methods; Modeling; Nutrition Labeling; Outcome; Persons; Pharmaceutical Preparations; Population; Process; Reading; Recommendation; Reduce health disparities; Research Personnel; Resources; Structure; System; Technology; Testing; United States National Aeronautics and Space Administration; United States National Library of Medicine; Visual; Work; Writing; bilingualism; community engagement; deaf; design; diabetes education; diabetes management; diabetes self-management; education resources; evidence base; experience; gaps in access; hard of hearing; health literacy; improved; indexing; performance tests; podcast; prototype; satisfaction; social media; syntax; theories; trustworthiness; uptake; usability; user centered design; web site; webinar

Project Summary Diabetes rates are higher in Deaf and hard of hearing (DHH) populations than hearing populations, most likely due to a lack of access to linguistically and culturally relevant health information. American Sign Language has a different grammar structure and syntax to English, therefore written diabetes education materials (e.g., handouts, websites) may not be understood by a DHH person living with diabetes. Given this, DHH populations have a critical barrier to diabetes information, yet do have access to technology, such as the internet, to obtain information in American Sign Language. Our overarching goal is to increase access to diabetes education content by developing and testing a website, Deaf Can Together, in American Sign Language. Our community advisory board has identified the need for a trustworthy and “Deaf- friendly” website that will include videos in American Sign Language with or without supplemental pictures, visual graphics, storytelling, and visual demonstration. Such a website will fill the gap in the lack of access to health information. This study is informed by the ADAPT model and Unified Theory of Acceptance and Use of Technology. Our specific aims are to first, prototype and build a diabetes informational website, Deaf Can Together, that addresses the cultural and linguistic needs of Deaf and hard of hearing populations. Specifically, we will co- design the website with the DHH community with our existing community advisory board. Second, we will evaluate the usability, acceptability, and efficacy of the Deaf Can Together website. Using a mixed method approach, we will collect data from N=40 DHH people with diabetes who are given access to the website. Third, we will conduct an initial dissemination of the Deaf Can Together website. We have several partners for dissemination, including DHH organizations, professional diabetes organizations, and the Network of National Libraries of Medicine Region 4. Using a multipronged approach, we will reach DHH people living with diabetes, clinicians who care for DHH people living with diabetes, and medical librarians. We expect that providing culturally and linguistically tailored diabetes website will significantly reduce health disparities in the DHH community.

项目概要 聋人和听力困难 (DHH) 人群的糖尿病发病率高于听力正常人群 人口，很可能是由于缺乏获得语言和文化相关的健康服务 美国手语的语法结构和句法与英语不同， 因此，书面糖尿病教育材料（例如讲义、网站）可能无法理解 鉴于此，DHH 人群面临着重大障碍。 糖尿病信息，但确实可以利用互联网等技术来获取 我们的首要目标是增加获得糖尿病的机会。 通过开发和测试美国手语“聋人可以一起”网站来提供教育内容 我们的社区咨询委员会已经确定需要一个值得信赖的“聋人”。 友好”网站，其中将包含美国手语视频，无论是否有 补充图片、视觉图形、讲故事和视觉演示。 将填补缺乏健康信息的空白 这项研究是由 ADAPT 提供的。 我们的具体目标是： 原型并建立一个糖尿病信息网站“聋人可以一起”，该网站解决了 具体来说，我们将共同满足聋人和听力障碍人群的文化和语言需求。 与 DHH 社区以及我们现有的社区咨询委员会一起设计网站。 其次，我们将评估聋人能一起的可用性、可接受性和功效 我们将使用混合方法从 N=40 名 DHH 人群中收集数据。 第三，我们将进行初步传播。 Deaf Can Together 网站有多个传播合作伙伴，其中包括 DHH。 组织、专业糖尿病组织和国家图书馆网络 医学区域 4. 采用多管齐下的方法，我们将接触患有以下疾病的 DHH 人群： 糖尿病、照顾 DHH 糖尿病患者的大象以及医学图书馆员。 期望提供针对文化和语言量身定制的糖尿病网站将显着 减少 DHH 社区的健康差距。