Enhancing shared decision-making to prompt and guide individualized care for people with Alzheimer's Disease and Diabetes

加强共同决策，以促进和指导对阿尔茨海默病和糖尿病患者的个性化护理

• 批准号: 10661106
• 负责人: April Savoy
• 金额: $ 13.15万
• 依托单位: INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-07-15 至 2027-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10661106
• 关键词: Active Learning; Adverse event; Age Years; Aging; Alzheimer' s Disease; Alzheimer' s disease patient; Alzheimer' s disease related dementia; American; Awareness; Behavior Therapy; Behavioral Model; Caregivers; Caring; Cellular Phone; Cessation of life; Clinical; Clinical Trials; Cognitive; Coma; Communities; Community Services; Comprehension; Computers; Continuous Glucose Monitor; Cultural Backgrounds; Data; Decision Making; Detection; Development; Diabetes Mellitus; Diagnostic; Effectiveness; Elderly; Engineering; Event; Funding; Future; Glucose; Goals; Guidelines; Health; Health system; Healthcare; Hospitalization; Human; Hypoglycemia; Ideal 1; Impaired cognition; Incidence; Indiana; Information Technology; K-Series Research Career Programs; Knowledge; Mentored Research Scientist Development Award; Mentors; Mentorship; Modeling; National Institute on Aging; Observational Study; Outcome; Participant; Patient Care; Patient Selection; Patients; Perception; Persons; Pharmaceutical Preparations; Population; Positioning Attribute; Pragmatic clinical trial; Process; Prognosis; Quality of life; Recommendation; Reporting; Research; Research Infrastructure; Research Personnel; Research Project Grants; Resources; Risk; Scientist; Serious Adverse Event; Specialist; Technology; Training; Underrepresented Minority; United States National Institutes of Health; Universities; Work; adverse event risk; care delivery; caregiver education; collaborative care; collaboratory; comorbidity; dementia care; design; detection method; detector; experience; high risk; implementation science; improved; information display; innovative technologies; insight; interdisciplinary approach; iterative design; knowledge base; learning strategy; member; monitoring device; multidisciplinary; novel; participant interview; personalized care; pilot trial; prevent; primary care clinician; prototype; psychosocial; recruit; risk mitigation; satisfaction; shared decision making; skills; socioeconomics; theories; usability; user centered design; wearable device; wireless transmission; women faculty

PROJECT ABSTRACT This Mentored Research Scientist Career Development Award (K01) will support my pursuit of becoming an independently funded investigator in Alzheimer’s and aging research. My proposal features a systematic approach to a comprehensive training plan including mentorship, didactic and experiential learning activities, and professional development opportunities, as well as a complementary research project establishing foundational evidence for my research agenda centered on improving care of people with Alzheimer’s disease, related dementias, and diabetes mellitus (ADRD-DM). My training goals are designed to attain essential advanced knowledge and skills pertaining to 1) ADRD collaborative care and research, 2) DM collaborative care and research, and 3) health systems and clinical trials. My research and training will take advantage of the immense resources and expertise at supporting centers across Indiana University, the Regenstrief Institute, and Eskenazi Health, including the National Institute on Aging-funded Institute of Alzheimer’s Disease Research Center and the IMPACT Collaboratory, and will be conducted under the mentorship of a multidisciplinary team of ADRD, DM, and implementation science experts, who have clinical and research experience in creating innovative technologies to improve care delivery in ADRD-DM populations. Building on my expertise in human factors engineering, the research project will examine how use of information technology can increase awareness of hypoglycemia and shared decisions about treatment options among people with ADRD-DM and their caregivers and primary care clinicians. I will use a participatory design process to develop assistive information technology that leverages continuous glucose monitoring devices. In this experiential learning opportunity, I will gain insights into patients’ and caregivers’ perceptions and experiences, clinicians’ information gaps and other barriers to individualizing ADRD-DM treatment, and the design of technology to facilitate shared decision-making, while expanding the knowledge base on these aspects of health care. Furthermore, I intend to increase representation of diverse socioeconomical and cultural backgrounds among ADRD research participants and scientists. This K01 award will uniquely position me to bring together human factors and ADRD-DM research to design and implement technology to assess and improve the health of people with ADRD.

项目摘要 该导师研究科学家职业发展奖（K01）将支持我成为一名 我的建议是由独立资助的阿尔茨海默病和衰老研究的研究者组成的。 制定全面培训计划的方法，包括指导、教学和体验式学习活动， 和专业发展机会，以及建立互补的研究项目 我的研究议程的基础证据集中于改善阿尔茨海默病患者的护理， 我的训练目标旨在实现基本的痴呆症和糖尿病 (ADRD-DM)。 有关 1) ADRD 协作护理和研究，2) DM 协作的高级知识和技能 护理和研究，以及 3) 卫生系统和临床试验。 印第安纳大学 Regenstrief 支持中心拥有丰富的资源和专业知识 研究所和 Eskenazi Health，包括国家老龄化研究所资助的阿尔茨海默病研究所 研究中心和 IMPACT 合作实验室，并将在 由 ADRD、DM 和实施科学专家组成的多学科团队，他们拥有临床和研究能力 创造创新技术以改善 ADRD-DM 人群的护理服务的经验。 我在人因工程学方面的专业知识，该研究项目将研究如何使用信息 技术可以提高人们对低血糖的认识并共同决定治疗方案 我将使用参与式设计 开发利用连续血糖监测设备的辅助信息技术的过程。 通过这次体验式学习机会，我将深入了解患者和护理人员的看法和 经验、人群的信息差距和个体化 ADRD-DM 治疗的其他障碍，以及 设计技术以促进共同决策，同时扩展这些知识库 此外，我打算增加不同社会经济和群体的代表性。 该 K01 奖项将在 ADRD 研究参与者和科学家中占据独特的地位。 我将人为因素和 ADRD-DM 研究结合起来，设计和实施评估技术 并改善 ADRD 患者的健康。

项目成果

Technology caregiver intervention for Alzheimer's disease (I-CARE): Feasibility and preliminary efficacy of Brain CareNotes.

针对阿尔茨海默病的护理人员技术干预 (I-CARE)：Brain CareNotes 的可行性和初步功效。

• 发表时间: 2023-12
• 影响因子: 6.3
• 作者: Rodriguez, Miriam Jocelyn;Kercher, Vanessa Martinez;Jordan, Evan J;Savoy, April;Hill, Jordan R;Werner, Nicole;Owora, Arthur;Castelluccio, Pete;Boustani, Malaz A;Holden, Richard J
• 通讯作者: Holden, Richard J