User-Centered Design of a Proactive RF-Based Wearable Bladder Monitor for Toilet Training of Children with ASD/IDD

以用户为中心的主动式射频可穿戴膀胱监测器设计，用于 ASD/IDD 儿童如厕训练

• 批准号: 10742670
• 负责人: Laura Estep
• 金额: $ 39.92万
• 依托单位: UNIVERSITY OF TEXAS AT AUSTIN
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-20 至 2025-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10742670
• 关键词: 3-Dimensional; Accidents; Address; Adult; Behavior; Bladder; Caregivers; Child; Clinical; Communities; Computer Simulation; Data; Detection; Devices; Diagnosis; Disabled Persons; Education; Educational process of instructing; Electrical Engineering; Electromagnetics; Enuresis; Esthesia; Feedback; Focus Groups; Hygiene; Incontinence; Individual; Intellectual functioning disability; Learning; Location; Measurement; Measures; Monitor; Notification; Outcome; Parents; Population; Population Heterogeneity; Quality of life; Questionnaires; Radar; Research; Risk; Schedule; Shapes; Signal Transduction; Social isolation; Special Education; Surveys; Technology; Testing; Time; Tissues; Toilet Training; Urinary Incontinence; Validation; Work; adult with autism spectrum disorder; aged; autism spectrum disorder; autistic children; behavioral study; care providers; community setting; design; electric impedance; flexibility; individuals with autism spectrum disorder; interdisciplinary approach; meetings; multidisciplinary; peer; pilot test; psychologic; radio frequency; response; sensor; social; success; support tools; tool; transmission process; user centered design; wireless; young adult with autism spectrum disorder

Abstract Urinary incontinence (UI) and difficulties with toilet training are significant and common challenges faced by children and young adults with autism spectrum disorder (ASD) and/or intellectual and developmental disabilities (IDD). For these individuals, toileting problems can result in slower progress and lower overall success rates with toilet training compared to their neurotypical same-aged peers, and often having substantial negative impact their independence and ability to participate in educational and community settings. Unfortunately for many, these difficulties with incontinence can continue into adulthood, creating physical and psychological quality of life barriers, such as physical discomfort, social isolation, improper hygiene, and lowered self-confidence and independence. The available support tools for children struggling with toilet training have not advanced significantly in decades, and there is an urgent need for approaches to help these individuals achieve long-term successful toileting. In this work, a technological support tool is proposed that will provide a proactive solution to help with toilet training. By proactively alerting before an accident occurs, it is expected that the user will be able to learn to recognize and attend to the sensation that triggers the alert. Further, a proactive response will reduce accident risk, minimize associated embarrassment from accidents, and decrease the likelihood of developing toileting averse behaviors. The project takes a multi-disciplinary approach, combining expertise from Electrical Engineering and Special Education, in order to tackle two key aims. The first aim is to identify the highly population-dependent set of needs and constraints for an ideal toileting support tool through engagement with key stakeholders (including parents or caregivers of children with ASD/IDD, and care providers, educators, and clinical professionals), through focus groups and survey-based questionnaires. The second aim is to design, implement, and pilot test a user-centered bladder monitor that aims to uniquely provide a support tool to proactively alert of bladder fullness and support dignity and independence for children and young adults with ASD/IDD, and others suffering from UI. Built based on radio-frequency (RF)-based technology, the bladder monitor will be non-invasive and enable real-time, safe, and continuous measurement and monitoring of the bladder state through a sensor array that is flexible, discreet, and wireless. The resulting monitor will meet the diverse needs of this population, and will be the first tool ever to provide a proactive alert when the bladder is approaching full, to support toilet training and to avoid accidents. Initial validation testing will be conducted through electromagnetic computational simulations and experimental demonstrations, followed by pilot testing with to establish real-world feasibility and social validity, with expanded behavioral studies in individuals with ASD/IDD who have difficulties with toilet training planned subsequently. Long-term, this device is envisioned to support the transition to independence for children and young adults with ASD/IDD from diverse backgrounds, for them to achieve a higher quality of life, and greater participation in educational and community settings.

抽象的 尿失禁（UI）和厕所训练的困难是巨大的挑战 由自闭症谱系障碍（ASD）的儿童和年轻人和/或智力和发展 残疾（IDD）。对于这些人来说，厕所问题可能会导致进度较慢，而整体上的成功降低 与神经型的同龄同龄人相比，厕所训练的比率通常很大 影响他们的独立性和参与教育和社区环境的能力。不幸的是 许多人，这些困难可能会持续到成年，创造身体和心理质量 生活障碍，例如身体不适，社会隔离，不当卫生和自信降低和 独立。为儿童挣扎的厕所培训的可用支持工具尚未提前 几十年来，很重要的是，迫切需要采取方法来帮助这些人长期实现 成功的厕所。在这项工作中，提出了一种技术支持工具，该工具将为您提供主动解决方案 帮助厕所训练。通过在事故发生之前主动提醒，可以预期用户能够 学会识别并注意触发警报的感觉。此外，主动反应将减少 事故风险，最大程度地减少事故中相关的尴尬，并减少发展的可能性 厕所厌恶行为。该项目采用多学科的方法，结合了电气的专业知识 工程和特殊教育，以解决两个关键目标。第一个目的是确定高度 通过与人群依赖人群的需求和限制因素，用于通过参与 主要利益相关者（包括ASD/IDD儿童的父母或照顾者，以及护理提供者，教育工作者和 临床专业人员），通过焦点小组和基于调查的问卷。第二个目的是设计 实施和试验测试以用户为中心的膀胱监视器，旨在唯一提供支持工具 主动警惕儿童和年轻人的膀胱丰度和支持尊严和独立性 与ASD/IDD以及其他患有UI的其他人。基于射频（RF）的技术建立 膀胱监视器将是无创的，可以实时，安全，连续测量和监视 通过灵活，谨慎和无线的传感器阵列的膀胱状态。最终的显示器将满足 该人群的各种需求，并将成为有史以来第一个提供主动警报的工具 即将到来，以支持厕所训练并避免发生事故。将进行初始验证测试 通过电磁计算模拟和实验演示，然后进行试验测试 为了建立现实世界的可行性和社会有效性，并在患有 随后计划在厕所培训方面遇到困难的ASD/IDD。长期，该设备被设想为 支持从不同背景的ASD/IDD的儿童和年轻人过渡到独立的过渡， 让他们实现更高的生活质量，并更多地参与教育和社区环境。