Enhancing NSHAP Caregiving & Social Network Measures to Contextualize Aging & Family Caregiving of AD/ADRD among English- and Spanish-speaking Latino Older Adults

加强 NSHAP 护理

• 批准号: 10901038
• 负责人: Lissette Piedra
• 金额: $ 66.22万
• 依托单位: NATIONAL OPINION RESEARCH CENTER
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-15 至 2025-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10901038
• 关键词: Acculturation; Acute; Address; Affect; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Caregivers; Caring; Cognitive; Communication; Communities; Complex; Country; Cultural Characteristics; Data; Dementia; Dementia caregivers; Elderly; English Language; Family; Family Caregiver; Family member; Generations; Glean; Growth; Health; Health Services; Hispanic; Home; Household; Institution; Intensive Care; Internet; Interview; Language; Latino; Latino Population; Life; Light; Limited English Proficiency; Linguistics; Link; Longitudinal Studies; Measures; Mental Health; Methodology; Methods; Migrant; Motor; Multilingualism; Patients; Personal Satisfaction; Persons; Pharmaceutical Preparations; Play; Population; Protocols documentation; Provider; Research; Research Personnel; Respondent; Role; Sampling; Sensory; Services; Social Network; Societies; System; Telephone; Testing; Time; Training; Translating; Translations; United States; Writing; aging population; bilingualism; care recipients; caregiving; cognitive interview; commune; demographics; experience; family caregiving; family support; follow-up; health care availability; health care settings; improved; insight; member; peer; phrases; physical conditioning; recruit; response; service providers; skills; social; social relationships; tool

Project Summary Abstract Researchers estimate an 832 percent growth in the number of Latinos with AD from 379,000 in 2012 to 3.5 million by 2060. While families frequently support the communication in people with Alzheimer’s Disease and Alzheimer’s Disease Related Dementias (AD/ADRD), language differences can create particularly complex situations for caregivers who must navigate a dominant English-language system for a family member who has reverted to their first language. This issue is particularly acute for Latinos, given that the majority are bilingual, and many families are (and will be) affected by complex caregiving needs. Frequently, the translation of materials serves to promote service access for linguistically diverse groups. But to reflect underlying cultural nuances and to identify the best secular phrasing and/or idiomatic expression in the target language, constructing valid measures requires more than mere translation. Moreover, because language is communal, it is closely tied to identity formation and acculturation, which can affect people’s social network formations and reinforce language skills. Arguably, analyses of valid measures should also consider how the social (linguistic) context might influence responses. We propose to enrich the National Social Life, Health, and Aging Project (NSHAP), a longitudinal study of older adults focused on social relationships, physical and mental health, cognitive, sensory, and motor function, and medication use. NSHAP oversampled Latinos, collected data in English and Spanish, and interviewed respondents in four rounds (2005-06, 2010-11, 2015-16 and 2021-22). However, these data have rarely been used to study Latino older adults’ health and social lives. No research has been conducted that compares the social networks of English- and Spanish-speaking Latinos and we know nothing about caregiving within these networks. NSHAP lacks questions on language usage in daily life and contains few questions on how language and cultural characteristics might impede access to health and other important institutions. To contextualize aging and family caregiving of AD/ADRD among Spanish- and English-speaking Latino older adults we aim to augment the NSHAP social network roster and caregiving questions, improve NSHAP Spanish-language measures of caregiving and social networks, and administer the enhanced NSHAP protocols to Latino AD/ADRD caregivers in Spanish and English.

项目摘要摘要 研究人员估计，拉丁美洲人的数量增长了832％，广告的数量从2012年的379,000到3.5 到2060年，百万。尽管家庭经常支持阿尔茨海默氏病和 阿尔茨海默氏病有关的痴呆症（AD/ADRD），语言差异可能会造成特别复杂的 必须为拥有主导英语系统的护理人员的情况 恢复到他们的母语。鉴于大多数是双语的，这个问题对于拉丁美洲人来说尤其严重， 许多家庭（并将）受到复杂的护理需求的影响。通常，材料的翻译 旨在促进语言多元化群体的服务访问。但是反映了潜在的文化细微差别和 确定目标语言中最佳的世俗措辞和/或惯用表达式，构建有效 措施不仅需要翻译。而且，由于语言是公共的，因此与 身份形成和培根，可以影响人们的社交网络形成并加强语言 技能。可以说，对有效措施的分析也应考虑社会（语言）环境如何 影响反应。 我们建议丰富国家社会生活，健康和衰老项目（NSHAP），这是一项纵向研究 老年人专注于社会关系，身心健康，认知，感觉和运动功能， 和用药。 Nshap超采样拉丁裔，以英语和西班牙语收集数据，并接受了采访 四轮受访者（2005-06、2010-11、2015-16和2021-22）。但是，这些数据很少 用于研究拉丁裔老年人的健康和社交生活。没有进行比较的研究 英语和西班牙语的拉丁美洲人的社交网络，我们对其中的护理一无所知 网络。 Nshap在日常生活中缺乏有关语言使用的问题，并且几乎没有关于语言的问题 文化特征可能会阻碍健康和其他重要机构的机会。上下文化 在西班牙语和英语的拉丁裔老年人中，AD/ADRD的衰老和家庭护理我们的目标是 增加NSHAP社交网络名册和护理问题，改善NSHAP西班牙语 护理和社交网络的衡量标准，并为拉丁裔AD/ADRD管理增强的NSHAP协议 西班牙语和英语的护理人员。