Pediatric Research Optimizing Methods in Stakeholder Engagement (PROMISE)

儿科研究优化利益相关者参与的方法（PROMISE）

• 批准号: 10580764
• 负责人: JOSEPH J CUTULI
• 金额: $ 29.52万
• 依托单位: ALFRED I. DU PONT HOSP FOR CHILDREN
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-03-01 至 2027-02-28
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10580764
• 关键词: Accountability; Address; Adoption; Advisory Committees; Advocate; Area; Belief; Biomedical Research; Caring; Centers of Research Excellence; Child; Child Health; Child Welfare; Child health care; Childhood; Clinical Research; Clinical Trials Network; Collaborations; Communities; Community Health; Community Outreach; Community Participation; Complex; Consultations; Data Set; Delaware; Disadvantaged; Ecology; Ensure; Equity; Family; Fostering; Funding; Generations; Goals; Health; Healthcare; Healthcare Systems; Income; Individual; Inequity; Infrastructure; Institution; Intervention; Investigation; Investments; Knowledge; Leadership; Methods; Modeling; Participant; Pediatric Hospitals; Pediatric Research; Peer Review; Phase; Policies; Positioning Attribute; Process; Provider; Public Policy; Publications; Reporting; Research; Research Personnel; Research Priority; Research Support; Resources; Route; Secure; Time; Training; Translating; Translational Research; Trust; Work; base; career; community engaged research; community engagement; community partnership; data repository; health disparity; health inequalities; improved; innovation; meetings; member; operation; outreach; programs; racial disparity; research in practice; response; social; success; tool; working group

PROJECT SUMMARY The Pediatric Research Optimizing Methods In Stakeholder Engagement (PROMISE) Core will support Research Expanding Access to Child Health (REACH) COBRE investigations by fostering engagement of communities and investigators as equal co-participants throughout the research process. Communities are powerful and essential partners in the effective, comprehensive, and equitable transformation of pediatric care. Community stakeholders possess a valuable and often rich appreciation of the multilevel, complex social realities that contribute to disparities in health and health care for children and families. Community-engaged research holds the potential to address disparities in health and health care, yet few investigators pursue partnerships and community participation because of a lack of training and perceived barriers including the time commitment and difficulty generating empirical publications from such research. The PROMISE Core will support investigators in taking a community-based, participatory approach in their research and address the barriers that dissuade investigators, especially early career investigators, from engaging in this approach. Specifically, the PROMISE Core will establish an institutional infrastructure that prepares investigators by: a) training them in community- engaged research frameworks, b) forming and facilitating ongoing project work groups for specific investigators and relevant community stakeholders, c) providing ongoing technical assistance/consultation, and d) maintaining a data repository to support investigators in expediently generating rigorous evidence in response to community- priority questions. This institutional infrastructure will apply a framework for the successful engagement of community stakeholders and investigators in a process of equal participation in all aspects of the research process, including co-construction, co-execution, and shared interpretation and dissemination of findings. The PROMISE Core aims to: 1) create a dynamic, responsive infrastructure to support investigators in their pursuit of conducting stakeholder-engaged intervention-focused research to address pediatric health disparities, 2) prepare and support investigators in participating in stakeholder-engaged research and producing, translating, and utilizing scientific knowledge to improve community health, and (3) manage and sustain these resources to broadly support community-engaged research to address health disparities. Dr. J. J. Cutuli will direct the PROMISE Core, supported by a core Internal Advisory Committee, the REACH Stakeholder Advisory Committee and the existing Delaware Clinical and Translational Research ACCEL Program Community Engagement and Outreach Core Community Advisory Council. The PROMISE Core will bring community expertise to bear on questions of inequity in pediatric health and health care, enabling the REACH Center to achieve its overall goals of developing, evaluating, and implementing new interventions and models of care to overcome the complex socioecological factors that contribute to health inequity.

项目摘要 利益相关者参与中的小儿研究优化方法（Promise）核心将支持 通过促进参与的研究，从 在整个研究过程中，社区和研究者是同等的共同参与者。社区是 在有效，全面和公平的小儿护理转变中，有力而重要的伙伴。 社区利益相关者对多层次，复杂的社会现实具有宝贵且经常丰富的欣赏 这导致儿童和家庭的健康和保健差异。社区参与研究 具有解决健康和卫生保健差异的潜力，但很少有调查人员寻求合作伙伴关系和 由于缺乏培训和感知障碍，包括时间承诺和 难以从此类研究中产生经验出版物。承诺核心将支持调查人员 在其研究中采用基于社区的参与式方法，并解决劝阻的障碍 调查人员，尤其是早期职业调查人员从事这种方法。具体来说，承诺 核心将建立一个机构基础设施，通过以下机构为研究人员做好准备：a）在社区中培训他们 - 参与研究框架，b）为特定研究人员组建和促进正在进行的项目工作组 以及相关的社区利益相关者，c）提供持续的技术援助/咨询，d）维护 一个数据存储库，以支持调查人员，以权宜地产生严格的证据，以响应社区 - 优先问题。该机构基础设施将应用一个框架 社区利益相关者和调查人员在同等参与研究的各个方面的过程中 过程，包括共同构建，共执行以及共享的解释和发现。这 Promise Core的目标是：1）创建一个动态，响应迅速的基础设施，以支持调查人员追求 进行利益相关者参与干预的研究以解决小儿健康差异，2） 准备和支持调查人员参与利益相关者参与的研究和生产，翻译， 并利用科学知识来改善社区健康，（3）管理和维持这些资源 广泛支持社区参与研究以解决健康差异。 J. J. Cutuli博士将指导 Promise Core，在核心内部咨询委员会的支持下，REACHATEAS相关者咨询委员会 以及现有的特拉华州临床和转化研究加入计划社区参与以及 外展核心社区咨询委员会。承诺核心将带来社区专业知识 小儿健康和医疗保健中不平等的问题，使触及中心能够实现其整体目标 开发，评估和实施新的干预措施和护理模式以克服复杂 有助于健康不平等的社会生态因素。