Hospital-Based Survey of Patients' and Families' Experiences with Ethical Questions

以医院为基础对患者及其家属的道德问题经历进行调查

• 批准号: 10252574
• 负责人: Marion Danis
• 金额: --
• 依托单位: CLINICAL CENTER
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10252574
• 关键词: 2019-nCoV; Address; Area; Baltimore; Bioethics; Caring; Clinical; Clinical Ethicists; Clinical Ethics; Complex; Data; Data Collection; District of Columbia; Education; Epidemic; Ethical Issues; Ethicists; Ethics; Ethics Consultation; Face; Family; Family member; Health Care Costs; Health Personnel; Hearing; Hospitals; Individual; Inpatients; Learning; Medical; Medical Care Team; Participant; Patients; Physician-Patient Relations; Physicians; Research; Respondent; Services; Surveys; Uncertainty; base; beneficiary; clinical care; clinical encounter; clinically relevant; decision-making capacity; design; end of life care; experience; genetic testing; health care service organization; health care settings; interest; loved ones; member; metropolitan; response; willingness

This study involves a survey of patients and family members in 5 hospitals in the Washington DC and Baltimore metropolitan area that is designed to identify the experiences that individuals face regarding ethical issues in the course of their own or their family member's illness and clinical care. The survey is designed to answer the following questions: 1. What clinically relevant ethical questions do individuals face with regard to their own or their loved ones clinical care? 2.Have these individuals approached any members of their healthcare team to discuss these ethical questions? 3.What would make these individuals more comfortable approaching members of their healthcare team? 4.Have these individuals heard of clinical ethics consultants? 5.How interested are these individuals in using ethics consultation services? The intent of the research is to learn of potential areas of improvements in ethical encounters with healthcare providers, as well as with clinical ethics consultations, and to optimize the use of clinical ethics services in inpatient hospital settings. As of August 2020 675 surveys have been completed. Data collection was discontinued in March 202 due to the SARS-CoV-2 epidemic. Analysis of qualitative data from the first several hundred respondents has been completed to learn about the most memorable ethical concerns that patients and family members have experienced during illness and medical care. In a content analysis of their responses to open-ended questions about their most memorable experience with an ethical concern in their or their family members care, participants reflected on many of the prevailing themes of bioethics, including the patient-physician relationship, end-of-life care, decision-making capacity, healthcare costs, and genetic testing. They focused on relational issues in the course of experiencing illness and receiving medical care and concerns regarding the patient-physician encounters. Many concerns arose outside of a healthcare setting.

这项研究涉及对华盛顿特区和巴尔的摩大都会地区5家医院的患者和家庭成员进行的调查，该调查旨在确定个人在自己的道德问题或家庭成员的疾病和临床护理过程中所面临的经验。该调查旨在回答以下问题：1。个人在自己或亲人的临床护理方面面临哪些临床相关的道德问题？ 2.这些人与他们的医疗保健团队的任何成员讨论了这些道德问题？ 3.什么会使这些人更自在地与医疗团队的成员接触？ 4.这些人听说过临床伦理顾问吗？ 5.这些人对使用道德咨询服务有兴趣吗？ 这项研究的目的是了解与医疗保健提供者以及临床道德咨询的道德相遇的潜在领域，并优化在住院医院环境中使用临床道德服务的领域。 截至2020年8月，已完成调查。由于SARS-COV-2流行病，数据收集在202年3月停产。对前几百名受访者的定性数据的分析已经完成，以了解患者和家人在疾病和医疗中经历的最令人难忘的道德问题。 在对他们对他们对他们最令人难忘的经历的回答的内容分析中，对他们或他们的家庭成员的护理有道德关注，参与者反映了许多普遍存在的生物伦理学主题，包括患者 - 医师关系，临近人的关系，临时护理，决策能力，医疗保健费用，医疗保健成本和基因测试。在经历疾病，接受医疗服务以及对患者身体遭遇的疑虑的过程中，他们专注于关系问题。在医疗保健环境之外引起了许多担忧。