Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers

为服务不足的晚期癌症护理人员提供非专业教练主导的早期姑息治疗

• 批准号: 10377774
• 负责人: James N. Dionne-Odom
• 金额: $ 17.02万
• 依托单位: UNIVERSITY OF ALABAMA AT BIRMINGHAM
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-07-01 至 2025-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10377774
• 关键词: Advanced Malignant Neoplasm; African American; Attitude; Award; Bereavement; Caregiver support; Caregivers; Cessation of life; Development; Diagnosis; Disease Progression; Doctor of Philosophy; Family; Family Caregiver; Feedback; Foundations; Goals; Health; Intervention; Interview; Knowledge; Lead; Leadership; Malignant Neoplasms; Methods; Outcome; Palliative Care; Parents; Patient Care; Patients; Persons; Phase; Qualitative Research; Reporting; Research; Research Personnel; Risk Factors; Training; base; cancer-related cognitive impairment; care recipients; community engagement; design; end of life; experience; family caregiving; improved; motivational enhancement therapy; psychological distress; public health priorities; skills; therapy development

SUPPLEMENT PROJECT SUMMARY This application (a Diversity Supplement to Dr. James N. Dionne-Odom’s parent award entitled, “Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers”) describes the background and experience of the applicant, Erin R. Harrell, PhD and her plan to acquire knowledge and training necessary to become a leading independent researcher in developing interventions that optimize bereavement outcomes in African American (AA) caregivers of persons with advanced cancer. The overall goal of this supplement is to gain advanced training in qualitative research, intervention development, and health coaching/motivational interviewing in order to explore components that could be included in an intervention to help African American caregivers cope with disease progression when a patient experiences cancer related cognitive impairment (CRCI). Specific training objectives during the supplement include (1) deepening understanding of patients and their families, to: 1a) augment knowledge and skills in health coaching and 1b) attain experience in stakeholder- informed intervention development; (2) acquiring new skills in advanced qualitative interviewing and advance understanding of community engagement in research using mixed methods to design and lead intervention development relevant to family caregiving; and 3) developing practical skills and scientific management and leadership to support development as an investigator and equity leader. The research aim during the supplement phase is to better understand how African American caregivers cope with CRCI and what they value as being helpful in improving bereavement outcomes to lessen psychological distress. To date, there has been little research examining how AA family caregivers cope with care recipient CRCI along the advanced cancer trajectory, from diagnosis, to end of life, to bereavement. Using a qualitative approach based on the Integrative Risk Factor Framework, one-on-one interviews will be conducted with 15-25 African American caregivers of patients with advanced cancer participating in the parent R37 (R37CA252868) to ascertain the needs and challenges related to their care recipients CRCI. Aim 1: Identify the experiences, needs, and attitudes of African American/Black family caregivers of patients with advanced cancer who currently are or may experience CRCI. Aim 2: Elicit feedback on potential support strategies that might help African American/Black family caregivers cope with caring for patients with advanced cancer who experience CRCI, including adjustment after death. Results from this study will be foundational to a K01 application to develop and pilot an intervention to support AA caregivers dealing with care recipient CRCI in order to help them better cope and adjust to their relative’s death in bereavement.

补充项目摘要 该申请（对詹姆斯·N·狄奥尼·奥多姆博士的父母奖的多样性补充，标题为“外行教练领导 对服务不足的高级癌症护理人员的早期姑息治疗”）描述了背景和经验 申请人的Erin R. Harrell博士及其计划获得必要的知识和培训的计划 领先的独立研究人员开发干预措施，以优化非洲的丧亲结果 美国（AA）患有晚期癌症患者的护理人员。这种补充的总体目标是获得 定性研究，干预发展和健康教练/励志的高级培训 面试以探索可以包括在干预措施中的组件以帮助非裔美国人 当患者遭受癌症相关的认知障碍时，护理人员应对疾病的进展 （CRCI）。补充期间的特定培训对象包括（1）加深对患者的了解和 他们的家人，至：1a）增强健康教练和1B的知识和技能）获得利益相关者的经验 - 知情的干预发展； （2）获得高级定性面试和进步方面的新技能 了解使用混合方法设计和铅干预的社区参与研究中的社区参与 与家庭护理有关的发展； 3）发展实践技能和科学管理以及 领导支持发展作为调查员和股权领导者的领导。补充期间的研究目的 阶段是更好地了解非裔美国人的看护人如何应对CRCI及其重视的内容 有助于改善丧亲结果，减少心理困扰。迄今为止，几乎没有 研究研究AA家庭护理人员如何应对晚期癌症的护理人员CRCI 轨迹，从诊断到生命的尽头，再到丧亲。使用基于综合的定性方法 风险因素框架，将对15-25名非裔美国护理人员进行一对一访谈 患有晚期癌症的患者参加了父母R37（R37CA252868），以确定需求和 与他们的护理接收者CRCI有关的挑战。目标1：确定非洲的经验，需求和参加 目前或可能会经历CRCI的晚期癌症患者的美国/黑人家庭护理人员。 目标2：引起有关可能有助于非裔美国/黑人家庭护理人员的潜在支持策略的反馈 应对经历CRCI的晚期癌症患者的照顾，包括死后调整。 这项研究的结果将是K01应用的基础，以开发和试行干预措施以支持 AA护理人员处理护理接收者CRCI，以帮助他们更好地应对并适应亲戚的 丧亲中的死亡。