The Caregiver Resource Room: Enhancing Support for Caregivers of Alzheimer's Disease and Related Dementias (ADRD)

护理人员资源室：加强对阿尔茨海默病和相关痴呆症 (ADRD) 护理人员的支持

• 批准号: 10669428
• 负责人: Francesca Falzarano
• 金额: $ 5.4万
• 依托单位: WEILL MEDICAL COLL OF CORNELL UNIV
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-01 至 2023-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10669428
• 关键词: Acceleration; Address; Aging; Algorithms; Alzheimer' s disease patient; Alzheimer' s disease related dementia; Anxiety; Area; Assessment tool; Attention; Awareness; Behavior Therapy; Caregiver Burden; Caregiver support; Caregiver well-being; Caregivers; Categories; Collaborations; Communities; Complement; Data; Dementia; Dementia caregivers; Development; Diagnosis; E-learning; Effectiveness; Employment; Exposure to; Face; Feedback; Feeling; Focus Groups; Fostering; Fright; Funding; Geography; Goals; Grant; Grief reaction; Guilt; Health; Health Promotion; Healthcare Systems; Immersion; Institutionalization; Internet; Intervention; Interview; Knowledge; Lead; Leadership; Learning; Link; Literature; Loneliness; Machine Learning; Measurement; Measures; Mental Depression; Mental Health; Mentorship; Methods; Modeling; Needs Assessment; Online Systems; Outcome; Output; Personal Satisfaction; Persons; Phase; Play; Psychologist; Psychometrics; Quality of life; Randomized; Randomized, Controlled Trials; Recommendation; Reporting; Research; Research Personnel; Resources; Role; Scientist; Self Assessment; Self Care; Self Efficacy; Services; Severities; Shame; Social isolation; Source; Statistical Methods; Stress; Structure; Support Groups; Supportive care; Technology; Testing; Training; United States; United States National Institutes of Health; Update; Validation; Vertebral column; Work; Writing; acceptability and feasibility; adverse outcome; anxiety symptoms; apprenticeship; behavior test; care systems; career development; caregiver interventions; caregiving; computer human interaction; cost; dementia care; dementia caregiving; depressive symptoms; design; digital; evidence base; experience; handbook; help-seeking behavior; improved; innovation; machine learning algorithm; machine learning model; neglect; novel strategies; online care; pilot test; premature; primary outcome; programs; research and development; respite care; satisfaction; secondary outcome; skills; social stigma; software development; stakeholder perspectives; stressor; support tools; task analysis; tool; treatment as usual; usability; user centered design; web site; web-based tool; willingness

PROJECT SUMMARY/ABSTRACT With an estimated 6.5 million cases of Alzheimer’s disease and related dementias (ADRD) diagnosed in the United States in 2022, the health and well-being of ADRD caregivers is of critical importance. Promoting the health and well-being of ADRD caregivers is an effective way to support these unpaid staples of ADRD care. Although interventions targeting ADRD caregivers continues to accelerate, little attention has been paid to caregivers’ use of supportive services, which remains strikingly low. The objective of this K99/R00 application is to enable Dr. Falzarano to develop the necessary expertise to design, implement, and evaluate studies focused on leveraging technology to support and address ADRD caregivers’ multifarious needs. In the K99 phase, Dr. Falzarano will work toward achieving five training objectives that will prepare her to transition to become an independent investigator who designs and evaluates evidence-based technologies to enhance tailored caregiver support. First, she will extend her knowledge in substantive areas including dementia caregiving and front-end and back-end software development. Second, she will learn how to develop, implement, and test behavioral interventions with an emphasis on collaboration with community partners. Third, she will receive training in statistical methods to examine feasibility, acceptability, and preliminary effectiveness in randomized controlled trials (RCTs). Fourth, she will learn about measurement development and psychometric validation of assessments for ADRD caregivers. Fifth, Dr. Falzarano will pursue professional development activities, particularly in the areas of grant writing, leadership, and integration of research and web development teams. The four proposed research aims were chosen to complement the areas identified for career development. Aim 1a will provide the requisite training and experiences to provide Dr. Falzarano with the critical skills needed to conduct the proposed study. Aim 1b will include interviews with ADRD caregivers to identify needs, awareness of, barriers to, and willingness to use services. Aim 1c will leverage key stakeholder (dementia-care experts) input to identify existing services corresponding to areas of need identified in Aim 1b. Aim 2 will leverage data collected from caregivers and stakeholders to inform the iterative development and design of the Caregiver Resource Room (CRR) website, which will include a digital self-assessment tool using machine learning models to identify and categorize needs and provide an output of targeted service recommendations. Aim 3 will include an analysis of the tool’s content, design, features, and services output, which will be iteratively refined based on ADRD caregiver feedback. A randomized controlled trial will be conducted in Aim 4 to determine the feasibility, acceptability, and preliminary efficacy of the CRR as a tool to enhance awareness of and access to relevant services to address unmet needs and improve mental health. The proposed research is well-aligned with the NIA’s strategic initiative to foster the development of research scientists in aging and to develop and test promising interventions to improve ADRD caregiver outcomes.

项目摘要/摘要 估计有650万例阿尔茨海默氏病和相关痴呆症（ADRD） 美国在2022年，ADRD护理人员的健康和福祉至关重要。促进 ADRD护理人员的健康和福祉是支持这些无偿护理主食的有效方法。 尽管针对ADRD护理人员的干预措施继续加速，但很少关注 护理人员使用支持服务，这仍然非常低。此K99/R00应用程序的目的 是为了使Falzarano博士能够开发出设计，实施和评估研究的必要专业知识 专注于利用技术来支持和满足ADRD护理人员的多种需求。在K99中 阶段，Falzarano博士将致力于实现五个培训目标，这将使她准备过渡到 成为一名独立研究者，设计和评估基于证据的技术以增强 量身定制的护理人员支持。首先，她将在包括痴呆在内的实质领域扩展自己的知识 护理，前端和后端软件开发。其次，她将学习如何发展， 实施和测试行为干预措施，重点是与社区合作伙伴合作。 第三，她将接受统计方法的培训，以检查可行性，可接受性和初步 随机对照试验（RCT）的有效性。第四，她将了解测量开发 以及对ADRD护理人员评估的心理测量验证。第五，法尔扎拉诺博士将寻求专业人士 发展活动，特别是在赠款写作，领导和研究整合的领域 网络开发团队。选择了四个拟议的研究目标以完成确定的领域 职业发展。 AIM 1A将为Falzarano博士提供必要的培训和经验 进行拟议的研究所需的关键技能。 AIM 1B将包括与ADRD护理人员的访谈 确定对使用服务的需求，意识，障碍和愿意。 AIM 1C将利用主要利益相关者 （痴呆症护理专家）输入以确定与AIM 1B中确定需求领域相对应的现有服务。 AIM 2将利用从照顾者和利益相关者收集的数据，以告知迭代发展和 护理人员资源室（CRR）网站的设计，该网站将包括使用数字自我评估工具 机器学习模型以识别和分类需求并提供目标服务的输出 建议。 AIM 3将包括对工具的内容，设计，功能和服务输出的分析， 它将根据ADRD护理人员的反馈进行迭代精制。随机对照试验将是 在AIM 4中进行的以确定CRR的可行性，可接受性和初步效率作为工具 提高对相关服务的认识和获取，以满足未满足的需求并改善心理健康。 拟议的研究与NIA的战略倡议非常合适，以促进研究的发展 衰老的科学家，并制定和测试承诺干预措施，以改善ADRD护理人员的结果。

项目成果

Staying in the loop: Quality of family-paid caregiver communication and influences on resident mental health in long-term care.

随时了解情况：家庭付费护理人员的沟通质量及其对长期护理中居民心理健康的影响。

• DOI: 10.1111/jgs.18184
• 发表时间: 2023
• 期刊: Journal of the American Geriatrics Society
• 影响因子: 6.3
• 作者: Falzarano,FrancescaB;Cimarolli,Verena;Siedlecki,KarenL
• 通讯作者: Siedlecki,KarenL

Job Resignation in Nursing Homes During the COVID-19 Pandemic: The Role of Quality of Employer Communication.

• DOI: 10.1177/07334648211040509
• 发表时间: 2022-01
• 期刊: Journal of applied gerontology : the official journal of the Southern Gerontological Society
• 作者: Cimarolli VR;Bryant NS;Falzarano F;Stone R
• 通讯作者: Stone R