Sudden Death in the Young (SDY)

年轻人猝死 (SDY)

• 批准号: 10655271
• 金额: $ 80万
• 依托单位: NATIONAL HEART, LUNG, AND BLOOD INSTITUTE
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10655271
• 关键词: Address; Autopsy; Award; Bereavement; Centers for Disease Control and Prevention (U.S.); Childhood; Collaborations; Communities; Consent; Contracts; DNA; Data; Epidemiology; Evaluation; Event; Family; Family member; Funding; Geographic Locations; Goals; Incidence; Investigation; Knowledge; Medical; National Heart, Lung, and Blood Institute; National Institute of Neurological Disorders and Stroke; Population; Prevention; Public Health; Registries; Research; Resource Development; Resources; Risk Factors; Sampling; Services; Standardization; Sudden Death; Sudden infant death syndrome; Surveillance Program; United States; United States National Institutes of Health; authority; base; design; evidence base; family support; loved ones; population based; prevent; prospective; research and development; sudden cardiac death; sudden unexpected death in epilepsy

Sudden Death in the Young (SDY) is a tragic event with longstanding impact on families and communities. Although the causes of SDY are myriad, sudden unexpected infant death (SUID), sudden cardiac death and sudden unexpected death in epilepsy (SUDEP) are three examples that have inspired public health efforts at prevention. Yet fundamental gaps in knowledge about incidence, mechanisms, and risk factors for SDY limit the identification of effective prevention efforts. The Sudden Death in the Young (SDY) Case Registry is a collaboration between the National Institutes of Health (NHLBI and NINDS) and the Centers for Disease Control and Prevention (CDC). It was designed to address critical knowledge gaps in the epidemiology and causes of SDY and develop a resource for research that will enhance the evidence base to inform prevention efforts.

青少年猝死 (SDY) 是一个对家庭和社区产生长期影响的悲剧事件。尽管 SDY 的原因多种多样，但婴儿猝死 (SUID)、心源性猝死和癫痫猝死 (SUDEP) 是激发公共卫生预防工作的三个例子。然而，对 SDY 的发病率、机制和危险因素的认识存在根本性差距，限制了有效预防工作的确定。青少年猝死 (SDY) 病例登记处是美国国立卫生研究院（NHLBI 和 NINDS）与疾病控制与预防中心 (CDC) 之间的合作项目。它旨在解决 SDY 流行病学和成因方面的关键知识差距，并开发研究资源，以增强证据基础，为预防工作提供信息。