Mapping Breast Cancer Survivorship and the Survivor Institutional Interface

绘制乳腺癌幸存者和幸存者机构界面

基本信息

批准号：
9143964
负责人：
Deborah Lefkowitz
金额：
$ 3.59万
依托单位：
UNIVERSITY OF CALIFORNIA-IRVINE
依托单位国家：
美国
项目类别：
财政年份：
2016
资助国家：
美国
起止时间：
2016-01-01 至 2018-12-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9143964
关键词：
Address Affect Aftercare Age Applied Skills Area Authorization documentation Breast Cancer Early Detection Breast Cancer survivor Breast Cancer survivorship California Cancer Control Cancer Patient Cancer Survivorship Caring Case Study Categories Collaborations Communication Research Communities Community Health Comorbidity Complex Comprehensive Cancer Center County Data Data Collection Data Sources Databases Depersonalization Diagnosis Dimensions Disease Disease model Early Diagnosis Ecology Environment Event Faculty Familiarity Family Geographic Distribution Geography Goals Grant Group Meetings Health Policy Health Promotion Health care facility Healthcare Human Individual Institution Institutional Practice Interdisciplinary Study Internet Intervention Interview Investigation Knowledge Late Effects Legal Life Expectancy Long Term Survivorship Malignant Neoplasms Maps Measures Medical Mentors Methods Modeling Nature Newsletter Outcome Pamphlets Patient Self-Report Patients Perception Physicians Pilot Projects Process Public Health Qualitative Research Reading Recording of previous events Records Recruitment Activity Research Research Infrastructure Research Methodology Research Personnel Research Support Resources Retreatment Risk Role Sampling Scientific Advances and Accomplishments Selection Criteria Services Source Specialist Structure Students Subjects Selections Surveys Survival Rate Survivors Telephone Textiles Time Training Training Programs Translations Transportation Undifferentiated Variant Visual Woman Work Workplace aging population base bilingualism breast cancer diagnosis cancer care cancer therapy contextual factors design experience health care disparity health disparity interest knowledge integration lens longitudinal design malignant breast neoplasm medically underserved medically underserved population meetings member multilevel analysis permissiveness programs prosthesis fitting psychosocial public health relevance remediation skills training social survivorship symposium volunteer web site

项目摘要

DESCRIPTION (provided by applicant): There are currently over 2.5 million breast cancer survivors in the US. Dominant paradigms for cancer survivorship focus either on biomedical models of disease (institutional perspective) or psychosocial measures (individual perspective) but ignore the complex interactions between individuals and institutions (e.g., health care facilities, workplaces) that jointly contribute to survivorship outcomes. New models of survivorship care are urgently required to accommodate the changing healthcare needs of an aging population, anticipated in- creases in both the number of breast cancer survivors and their life expectancies, as well as healthcare dis- parities in medically underserved regions that are disproportionately affected by physician and specialist short- ages. The proposed interdisciplinary research combines the theoretical framework of social ecology with qualitative research methods to investigate breast cancer survivorship as an interactional process between embodied experience and institutional practices in California's Inland Empire, a region comprising Riverside and San Bernardino counties. This research will have significant implications for the design of healthcare and policy interventions that target change at the individual, institutional, and community levels. Aim 1: Investigate individual experiences of breast cancer survivorship. Using a longitudinal de- sign, in-depth semi-structured open-ended interviews will be conducted with Inland Empire breast cancer survivors at yearly intervals. Recruitment will be facilitated by collaborations with Inland Empire breast cancer organizations: The Pink Ribbon Place, Michelle's Place, and the Southern California Witness Project. Aim 2: Investigate institutional resources and their role in defining survivorship care. Survivor- ship resources comprising a broad range of services (i.e., transportation assistance, prosthesis fitting) extend beyond-but are integral to-survivorship medical care. Institutional resources in th Inland Empire will be surveyed, with an in-depth case study of one particular survivorship program and its institutional records. Aim 3: Map the survivor-institutional interface. Employing both visual and textual data collected in aims 1 and 2, mapping allows qualitative analysis of confluences and divergences between Inland Empire survivor and institutional perspectives regarding needs, resources, and resource use. Training program: The applicant aspires to become an independent cancer survivorship researcher. Mentoring by an interdisciplinary team in cancer survivorship, social ecology, and organizational studies con- tributes to accomplishment of this goal. The individualized training plan includes formal coursework; applied skills training; individual meetings with sponsors and advisers; monthly group mentoring, faculty-student reading group meetings, and Women's Cancer Cure ConneXion Disease Oriented Team meetings; participation in the Center for Organizational Research events and the annual Chao Family Comprehensive Cancer Center scientific retreat, as well as national conferences such as the NCI biennial survivorship research conference.

描述（由适用提供）：美国目前有超过250万个乳腺癌存活。癌症生存的主要范例将重点放在疾病的生物医学模型（机构观点）或社会心理措施（个人观点）上，但忽略了共同促进生存量的个人与机构之间的复杂相互作用（例如，医疗保健设施，工作场所）。迫切需要需要新的生存护理模型来满足老龄化人口的不断变化的医疗保健需求，预计乳腺癌存活量及其预期寿命以及医疗保健缺乏贫困地区的医疗保健差异在受身体和专业短期中不成比例的影响。拟议的跨学科研究将社会生态学的理论框架与定性研究方法相结合，以研究乳腺癌的生存，作为在加利福尼亚内陆帝国的体现经验与机构实践之间的互动过程，这是一个完成河滨地区和圣贝纳迪诺县的地区。这项研究将对针对个人，机构和社区层面的改变的医疗保健和政策干预措施的设计具有重大影响。目标1：研究乳腺癌生存的个人经历。使用纵向界限，将每年与内陆帝国乳腺癌幸存者进行深入的半结构性开放式访谈。招聘将由与内陆帝国乳腺癌组织合作：粉红色丝带广场，米歇尔的地方和南加州见证人项目。目标2：调查机构资源及其在定义生存护理中的作用。幸存者资源符合众多服务（即运输援助，假体配件）的广泛服务超出了不可或缺的生活医疗服务。将对内陆帝国的机构资源进行调查，并深入研究一项特定的生存计划及其机构记录。目标3：映射幸存者的机构界面。映射采用了AIM 1和2中收集的视觉和纹理数据，可以对内陆帝国幸存者和有关需求，资源和资源使用的机构观点之间的汇合和分歧进行定性分析。培训计划：申请人渴望成为独立的癌症生存研究者。由跨学科的团队指导癌症生存，社会生态学和组织研究，以实现这一目标。个性化的培训计划包括正式课程；应用技能培训；与赞助商和顾问的个人会议；每月的小组心理，教师阅读小组会议和妇女癌症治愈以疾病为导向的团队会议；参加组织研究活动中心和年度CHAO家庭综合癌症中心科学务虚会以及NCI双年展生存研究会议等国家会议。