Area of Interest 3: Engage Tribal Nations and Urban and Non-Tribal Land Based AI/AN Populations in Wisconsin

感兴趣领域 3：威斯康星州部落民族以及城市和非部落陆地 AI/AN 人群的参与

• 批准号: 10879980
• 负责人: Dorothy Farrar Edwards
• 金额: $ 70万
• 依托单位: MARSHFIELD CLINIC RESEARCH FOUNDATION
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-01 至 2028-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10879980
• 关键词: Achievement; Address; Alaska Native; American Indians; Area; Clinic; Collaborations; Communities; Community Health Services; Community Services; Custom; Education; Educational Materials; Ensure; Epidemiology; Excision; Federal Government; Foundations; Future; Goals; Health; Health Services; Health system; Home; Indigenous; Individual; Institution; Laws; Leadership; Methods; Mississippi; Native Americans; Native-Born; Outcome; Persons; Population; Precision Health; Process; Recording of previous events; Research; Research Infrastructure; Research Institute; Research Personnel; Reservations; Resistance; Resources; Rural; Scientist; Services; Social Work; State Government; Students; Time; Training; Training Programs; Training and Education; Treaty; Tribal Council; Tribes; Trust; Universities; Vision; Wisconsin; Work; career; design; faculty research; health equity; indigenous community; infrastructure development; interest; intertribal; medical schools; outreach; precision medicine; programs; resilience; response; service organization; service providers; tribal Nation; tribal health; tribal lands; tribal organization; urban Native American

Background: The Investigators and research staff of the of the All of Us Wisconsin Consortium (AoUWI) recognize the land we currently live and work is the ancestral homes of many other nations who were forcibly displaced by white settlers. Wisconsin has one of the largest concentrations of Native American Tribes east of the Mississippi River, and each has a distinct culture and rich heritage. Of the 12 Tribes in Wisconsin, 11 are federally recognized. The history of colonization informs our work. We recognize the need to engage indigenous people that live in both urban centers and rural reservation lands to develop a vision and process for future individual and collective AoU engagement with these Nations. The overarching goal of this program is to facilitate as much diversity of American Indian and Alaska Native (AI/AN) populations in the AoU precision medicine research program as possible by partnering with Wisconsin tribes and organizations with urban Indian expertise The aims and work plan presented in this application support an inclusive engagement process, educational programs and research infrastructure development to be determined and directed by representatives of Tribal Nations and the non-reservationbased AI/AN community to ensure that the project will be conducted in a manner that is respectful of applicable tribal customs, culture, and laws. We will leverage the established relationships and resources afforded by the Marshfield Clinic Research Institute, University of Wisconsin Madison and the Medical College of Wisconsin. Each AoU-WI Consortium partners has research and institutional programs supporting AI/AN students, investigators, health and education programs with Tribal Nations and urban Indigenous communities. The AoU-WI program will work closely with our Community Co-Investigator (CCI) Elaina Seep and Aniwahya Consulting Services to create an overall engagement program and research infrastructure in conjunction with representatives of the Great Lakes Inter- Tribal Epidemiology Center (GLITEC), the Great Lakes Inter-Tribal Council, and Native American leaders of community health and social service organizations. Methods: We are proposing the following Aims to meet the goals of the AoU Native American Engagement Program: Aim 1: Co-design a multilevel outreach and engagement program with representatives of tribal organizations, Indigenous governance groups and agencies of AI/AN Indigenous communities and non-reservation based representatives. Aim 2: Promote the training and career enhancement of student and/or faculty research scientists interested in precision medicine to address health equity issues within Tribal Nations and urban AI/AN communities. Aim 3: Support the expansion of AI/AN led precision health and medicine research infrastructure within AI/AN and Indigenous communities ensuring sustainability of precision medicine research. Aim 4: Create and evaluate culturally appropriate and locally vetted education materials and engagement assets and resources for Wisconsin AI/AN and Urban Indigenous populations and partners. Outcome: Successful achievement of these aims will provide a firm foundation for AoU research through individually designed programs that reflect the unique goals and priorities of each Tribal Organization.

背景：我们威斯康星州联盟 (AoU WI) 的调查人员和研究人员认识到，我们目前生活和工作的土地是许多其他民族的祖先家园。 被白人定居者强迫流离失所。威斯康星州是美洲原住民最集中的地区之一 密西西比河以东的部落，每个都有独特的文化和丰富的遗产。 12个部落中 威斯康星州有 11 个获得联邦认可。殖民历史为我们的工作提供了借鉴。我们认识到 需要让居住在城市中心和农村保留地的土著人民参与开发 未来与这些国家进行个人和集体 AOU 接触的愿景和流程。这 该计划的总体目标是促进美洲印第安人和阿拉斯加原住民的多样性 通过与 AoU 精准医学研究计划合作，尽可能将 (AI/AN) 人群纳入 AoU 精准医学研究计划中 具有城市印第安人专业知识的威斯康星州部落和组织 本文提出的目标和工作计划 应用程序支持包容性的参与过程、教育计划和研究基础设施 开发将由部落民族和非保留地 AI/AN 社区的代表确定和指导，以确保该项目将以尊重 适用的部落习俗、文化和法律。我们将利用已建立的关系和资源 由威斯康星大学麦迪逊分校马什菲尔德诊所研究所和医学中心提供 威斯康星学院。每个 AoU-WI 联盟合作伙伴都有研究和机构项目 支持 AI/AN 学生、调查人员、部落民族和城市的健康和教育项目 原住民社区。 AoU-WI 计划将与我们的社区联合研究员密切合作 (CCI) Elina Seep 和 Aniwahya Consulting Services 创建整体参与计划并 与大湖区部落间流行病学代表合作的研究基础设施 中心 (GLITEC)、五大湖部族间委员会和美洲原住民社区领袖 卫生和社会服务组织。方法：我们提出以下目标来实现目标 AoU 美洲原住民参与计划： 目标 1：共同设计多层次的外展活动并 与部落组织、土著治理团体和 AI/AN 土著社区机构和非保留地代表。目标 2：推广 对精度感兴趣的学生和/或教师研究科学家的培训和职业提升 医学来解决部落民族和城市 AI/AN 社区内的健康公平问题。目标 3： 支持在 AI/AN 内扩展 AI/AN 主导的精准健康和医学研究基础设施 和土著社区确保精准医学研究的可持续性。目标 4：创造并 评估文化上适当且经过当地审查的教育材料和参与资产，以及 为威斯康星州 AI/AN 和城市原住民及合作伙伴提供资源。结果：成功 这些目标的实现将为通过单独设计的 AoU 研究奠定坚实的基础 反映每个部落组织的独特目标和优先事项的计划。