Extending Digital Survivorship Needs Assessment Planning Tools to Enhance Communication in the Head and Neck Cancer Survivor-Caregiver-Provider Triad

扩展数字化生存者需求评估规划工具，以加强头颈癌生存者-护理者-提供者三人组中的沟通

• 批准号: 10831265
• 负责人: Katherine Regan Sterba
• 金额: $ 9.68万
• 依托单位: MEDICAL UNIVERSITY OF SOUTH CAROLINA
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-01-01 至 2026-12-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10831265
• 关键词: Activities of Daily Living; Address; Administrative Supplement; Administrator; Aftercare; Appearance; Cancer Survivor; Caregiver Burden; Caregivers; Caring; Clinic; Clinical; Communication; Communities; Data; Data Analyses; Deglutition; Development; Dimensions; Educational Materials; Electronic Health Record; Emotional; Ensure; Enteral Feeding; Face; Future; Generations; Head and Neck Cancer; Head and neck structure; Health Personnel; Healthcare; Home; Information Technology; Infrastructure; Intervention; Interview; Left; Link; Maps; Mental Depression; Methods; Monitor; Needs Assessment; Oncology; Parents; Patient-Centered Care; Patients; Personal Satisfaction; Protocols documentation; Provider; Randomized, Controlled Trials; Recommendation; Reporting; Research; Resources; Schedule; Science; Self Care; Self Management; Severities; Specialist; Speech; Summary Reports; Supportive care; Surveys; Survivors; Symptoms; System; Tablets; Taxes; Technology; Testing; Training; Treatment-related toxicity; addiction; cancer care; caregiving; digital; digital health; disability; experience; follow-up; health care service utilization; implementation strategy; improved; interest; medical specialties; multidisciplinary; parent grant; patient oriented; patient portal; primary care provider; primary outcome; provider communication; response; skills; social; survivorship; symptom management; theories; time use; tool; wound care

PROJECT SUMMARY This application is being submitted in response to the Notice of Special Interest (NOSI) identified as NOT-CA- 23-041. Head and neck cancer (HNC) survivors and their caregivers experience devastating physical, emotional and social challenges at the end of treatment. Dyadic interventions are needed to address dyads’ unique needs and link them to timely healthcare and supportive care resources. The survivorship needs assessment planning (SNAP) digital health tool includes a comprehensive needs assessment for survivors and caregivers, tailored care plans and a supportive App. To prepare SNAP for wide dissemination, in the proposed research we will improve understanding of how to share SNAP care plan and App data across survivors, caregivers and multi- disciplinary healthcare providers to ultimately improve care experiences. We will examine SNAP’s effects on communication and patient-centered care and characterize best practices to promote SNAP information-sharing within the survivor-caregiver-provider triad. Using a participatory approach and mixed methods with survivors, caregivers, multi-disciplinary oncology and community providers and clinic and information technology administrators, the specific aims of this administrative supplement are to 1) evaluate the capacity of SNAP and mechanisms to improve survivor-caregiver-provider communication guided by the Unified Theory of Acceptance and Use of Technology and 2) characterize optimal implementation strategies for integrating SNAP care plan and App data into clinical workflows (e.g., patient portals, electronic health record prompts, alerts and reports for oncology specialists and primary care providers) to enhance survivor-caregiver-provider communication. SNAP seeks to enhance patient-centered car by assessing and addressing survivor and caregiver needs and values. This supplement will enhance the parent study by extending our research to take the critical next steps in evaluating the potential and mechanisms underlying SNAP’s impact on communication and receipt of patient- centered care. The study will improve the delivery of SNAP and result in products (e.g., protocols, prompts, App alerts and summary reports) to ensure the timely use of SNAP data in practice.

项目概要 本申请是为了响应被识别为 NOT-CA- 的特殊利益通知 (NOSI) 而提交的 23-041。头颈癌 (HNC) 幸存者及其护理人员经历着身体和情感上的毁灭性打击。 以及治疗结束时的社会挑战需要进行二元干预来解决二元的独特需求。 并将他们与及时的医疗保健和支持性护理资源联系起来。生存需求评估计划。 (SNAP) 数字健康工具包括针对幸存者和护理人员的全面需求评估，量身定制 护理计划和支持性应用程序 为了准备 SNAP 进行广泛传播，在拟议的研究中，我们将 提高对如何在幸存者、护理人员和多方之间共享 SNAP 护理计划和应用程序数据的理解 我们将研究 SNAP 对纪律医疗保健提供者的影响。 沟通和以患者为中心的护理，并描述促进 SNAP 信息共享的最佳实践 在幸存者-照顾者-提供者三元组中，采用参与式方法和与幸存者的混合方法， 护理人员、多学科肿瘤学和社区提供者以及诊所和信息技术 对于管理员来说，本行政补充文件的具体目标是 1) 评估 SNAP 的能力和 以统一接受理论为指导的改善幸存者-照顾者-提供者沟通的机制 和技术的使用，以及 2) 描述整合 SNAP 护理计划的最佳实施策略 和应用程序数据进入临床工作流程（例如，患者门户、电子健康记录提示、警报和报告） 肿瘤学专家和初级保健提供者），以加强幸存者 - 护理人员 - 提供者之间的沟通。 旨在通过评估和解决幸存者和护理人员的需求和价值观来增强以患者为中心的汽车。 该补充材料将通过扩展我们的研究来加强家长研究，以采取关键的后续步骤 评估 SNAP 对患者沟通和接收影响的潜力和机制 该研究将改进 SNAP 的交付并产生产品（例如方案、提示、应用程序）。 警报和摘要报告），以确保在实践中及时使用 SNAP 数据。