Family - Native American Education for Cancer Survivors (NACES)

家庭 - 美国原住民癌症幸存者教育 (NACES)

• 批准号: 7671029
• 负责人: Alice Anne Bradley
• 金额: $ 10.7万
• 依托单位: NATIVE AMERICAN CANCER INITIATIVES, INC.
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-07-01 至 2009-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7671029
• 关键词: Abbreviations; Address; Adopted; Affect; Age-Years; American Indian and Alaska Native; Blood; Cancer Patient; Cancer Survivor; Caregivers; Caring; Communities; Complement; Computer Assisted; Computer Systems; Consult; Data; Decision Making; Development; Diagnosis; Disease; Education; Educational Intervention; Effectiveness; Elderly; Emotions; Family; Family Caregiver; Family member; Feedback; Focus Groups; Friends; Goals; Hand; Home environment; Individual; Instruction; Internet; Interview; Lead; Left; Limb structure; Link; Malignant Neoplasms; Manuals; Maps; Medicine; Misinformation; Multimedia; Native Americans; Oceans; Online Systems; Persons; Phase; Process; Quality of life; Race; Recurrent Malignant Neoplasm; Relative (related person); Resources; Site; Small Business Innovation Research Grant; Source; Spouses; Strategic Planning; Survivors; System; Target Populations; Testing; Time; Trees; Tribes; Visual; anticancer research; base; body-mind; cancer diagnosis; cancer education; cancer health disparity; caregiver education; commercialization; coping; design; disorder risk; experience; improved; loved ones; meetings; member; product development; programs; prototype; psychosocial; public health relevance; response; satisfaction; tool; tribal Nation; web site

DESCRIPTION (provided by applicant): The Family - Native American Cancer Education for Survivors (NACES) project is a collaborative effort among Native American Cancer Initiatives, Inc., Native American Cancer Research and OCEAN Consulting. NACES is an ongoing, interactive, web-based supportive education intervention. Although the site is designed for Native Americans with cancer, many Native family members without cancer use the NACES website and have requested additional information specific to their needs as family members and caregivers of those with cancer. The Specific Aim of this Phase I SBIR project is to create a prototype and use it to establish the technical merit and feasibility of developing a web-based, multimedia education and support product for family members of Native American cancer patients. The product, a complement to the highly successful NACES program, will be an interactive, engaging and culturally appropriate web-based product designed to meet the specific information and support needs of Native Americans who have a family member with cancer. Project objectives are: (1) Develop an interactive "Family NACES" education intervention prototype in storyboard format. (2) Evaluate the "Family NACES" education storyboard prototype in five diverse geographic/cultural regions to determine the (a) cultural appropriateness of the content; and (b) technological ease- of-use and format; (3) Evaluate the target populations' satisfaction with and acceptance of the "Family NACES" prototype. Focus group, individual interview and pilot test data will be collected through the use of an Audience Response System. The data will be used to incorporate user feedback into the design, content development and identification of commercial opportunities for the distribution of the product. The ultimate goal of the Family-NACES project is to develop a product that will provide access to accurate information for family members of Native American cancer patients to dispel myths and misinformation and provide help and support for coping with needs and demands of caring for a family member with cancer. Full development and a detailed strategic plan for the commercialization of the Family-NACES product will be pursued in a Phase II SBIR application. PUBLIC HEALTH RELEVANCE: The Family-Native American Cancer Education for Survivors SBIR Phase I proposal addresses two of NCI's 2009 key strategic objectives: (1) Improve the quality of life for cancer patients, survivors, and their families (2) Overcome cancer health disparities. American Indians and Alaska Natives continue to suffer the poorest survival from "all cancers combined" than any other racial group. The impact of this disparity is not isolated to those diagnosed with the disease but causes physical, spiritual, psychosocial and financial impact on family members who may be themselves at increased risk for the disease. The proposed Family-NACES project will result in a web-based product that will provide access to accurate, culturally relevant information for family members of Native American cancer patients to dispel myths and misinformation and provide help and support for coping with needs and demands of caring for a family member with cancer.

描述（由申请人提供）：家庭 - 美洲原住民癌症幸存者教育 (NACES) 项目是美洲原住民癌症倡议公司、美洲原住民癌症研究中心和 OCEAN Consulting 之间的合作项目。 NACES 是一种持续的、交互式的、基于网络的支持性教育干预措施。尽管该网站是为患有癌症的美国原住民设计的，但许多没有患癌症的原住民家庭成员也使用 NACES 网站，并要求提供针对其作为癌症患者家庭成员和护理人员的具体需求的额外信息。第一阶段 SBIR 项目的具体目标是创建一个原型，并利用它来确定为美洲原住民癌症患者家庭成员开发基于网络的多媒体教育和支持产品的技术优点和可行性。该产品是对非常成功的 NACES 计划的补充，将是一个交互式、有吸引力且适合文化的基于网络的产品，旨在满足家庭成员患有癌症的美洲原住民的特定信息和支持需求。项目目标是： (1) 开发故事板格式的交互式“家庭 NACES”教育干预原型。 (2) 评估五个不同地理/文化区域的“家庭 NACES”教育故事板原型，以确定 (a) 内容的文化适宜性； (b) 技术易用性和格式； （3）评估目标人群对“家庭NACES”原型的满意度和接受度。焦点小组、个人访谈和试点测试数据将通过使用观众反馈系统来收集。这些数据将用于将用户反馈纳入产品分销的设计、内容开发和商业机会识别中。 Family-NACES 项目的最终目标是开发一种产品，为美洲原住民癌症患者的家庭成员提供准确的信息，消除神话和错误信息，并为应对照顾家庭的需要和要求提供帮助和支持患有癌症的成员。 Family-NACES 产品商业化的全面开发和详细战略计划将在第二阶段 SBIR 应用中进行。公共健康相关性：针对幸存者的美国原住民癌症教育 SBIR 第一阶段提案涉及 NCI 2009 年的两个关键战略目标：(1) 提高癌症患者、幸存者及其家人的生活质量 (2) 克服癌症健康差异。美洲印第安人和阿拉斯加原住民的“所有癌症加起来”的生存率仍然比任何其他种族群体都要低。这种差异的影响不仅限于那些被诊断出患有这种疾病的人，而且还对家庭成员造成身体、精神、心理和经济方面的影响，而这些家庭成员本身也可能面临更高的患病风险。拟议的 Family-NACES 项目将产生一个基于网络的产品，该产品将为美洲原住民癌症患者的家庭成员提供准确的、文化相关的信息，以消除神话和错误信息，并为应对护理需求和要求提供帮助和支持对于患有癌症的家庭成员。