CLINICAL TRIAL: FABRY REGISTRY

临床试验：FABRY 注册

• 批准号: 7719113
• 负责人: NANCY M ADAMS
• 金额: $ 0.16万
• 依托单位: UNIVERSITY OF CONNECTICUT SCH OF MED/DNT
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-04-01 至 2009-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7719113
• 关键词: Clinical Data; Clinical Trials; Collection; Computer Retrieval of Information on Scientific Projects Database; Databases; Evaluation; Fabry Disease; Funding; Future; Grant; Institution; Natural History; Outcome; Patients; Physicians; Registries; Research; Research Personnel; Resources; Source; Therapeutic Intervention; United States National Institutes of Health

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The Fabry Registry is an ongoing, observational database that tracks the natural history and outcomes of patients with Fabry disease. Participation is open to all physicians managing patients with Fabry disease. Physicians are encouraged to collaborate, share observations, and generate hypotheses for evaluation, as well as assist in the collection of clinical data in an effort to guide and assess future therapeutic interventions.

该副本是利用众多研究子项目之一 由NIH/NCRR资助的中心赠款提供的资源。子弹和 调查员（PI）可能已经从其他NIH来源获得了主要资金， 因此，可以在其他清晰的条目中表示。列出的机构是 对于中心，这不一定是调查员的机构。 Fabry注册表是一个持续的观察数据库，可追踪Fabry病患者的自然历史和结果。参与对管理Fabry病患者的所有医生开放。鼓励医生合作，分享观察结果并产生假设进行评估，并协助收集临床数据，以指导和评估未来的治疗干预措施。