Developing a reproductive health curriculum for adolescent girls with physical disabilities

为身体残疾的少女制定生殖健康课程

基本信息

批准号：
10523587
负责人：
Courtney S Streur
金额：
$ 16.96万
依托单位：
UNIVERSITY OF MICHIGAN AT ANN ARBOR
依托单位国家：
美国
项目类别：
财政年份：
2022
资助国家：
美国
起止时间：
2022-09-30 至 2025-08-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10523587
关键词：
Address Adolescent Adoption Adult Age American Caring Child Childhood Clinical Trials Cognitive Congenital Abnormality Contraceptive Usage Contraceptive methods Contracture Data Development Plans Diagnosis Disabled Children Education Educational Curriculum Educational Intervention Effectiveness Ensure Evaluation Feedback Female Female Adolescents Frequencies Funding Future Gatekeeping Goals Gynecologic Health Services Health education Healthy People 2020 Hydrocephalus Hypersensitivity Impairment Incontinence Intervention Interview Knowledge Knowledge Management Latex Learning Life Expectancy Maintenance Medical Mentors Methods National Institute of Child Health and Human Development Neural Tube Defects Outcome Parents Pilot Projects Population Precocious Puberty Pregnancy Complications Provider Puberty Public Health Reach Effectiveness Adoption Implementation and Maintenance Reproductive Health Research Research Personnel Research Priority Risk Self Management Sexual Development Sexual Health Sexual abuse Sexually Transmitted Diseases Spinal Dysraphism Surveys Testing Time Training Urologist Women&apos s Group Work career career development cognitive development cognitive disability cohort comorbidity condoms design disability disability impact dissemination science effective intervention executive function experience girls health goals health knowledge implementation framework implementation measures implementation outcomes implementation science improved intimate partner violence neglect novel online intervention peer physically handicapped post intervention prototype sexual coercion sexual health intervention sexually active skill acquisition skills therapy design unintended pregnancy usability

项目摘要

PROJECT SUMMARY/ABSTRACT Candidate: Courtney Streur, MD, MS is a pediatric urologist and junior health services researcher focused on understanding the sexual health and education of adolescents with physical disabilities. Dr. Streur’s long-term career goal is to become an independent clinician investigator who develops, implements, and disseminates interventions that promote the healthy sexual development of adolescent girls with physical disabilities to improve their long-term sexual health outcomes. Research Context: Adolescent girls with physical disabilities are not educated about their sexual health, which has led to unintended pregnancies, low contraceptive use, and sexual coercion and abuse. Aspects of their physical disability and medical comorbidities impact their sexual health (e.g., precocious puberty, incontinence during intercourse). Additionally, the cognitive disability frequently associated with their physical disability (e.g., executive functioning impairment) impacts their ability to learn and develop new skills. Therefore, adolescent girls with disabilities need tailored sexual health education. The goal of this study is to create and refine a novel, user-centered online sexual health curriculum. This will be tailored to girls with spina bifida and expanded to other girls with disabilities, implemented, and disseminated as a subsequent R01. Specific Aims: 1) Discover and rigorously define the highest-priority sexual health knowledge and skill attainment needs and learning style of adolescent girls with spina bifida. 2) Design and beta-test an online sexual health intervention prototype targeted to adolescent girls with spina bifida that improves their sexual health knowledge and self-management skill development. 3) Perform a pilot evaluation of the intervention prototype on key implementation outcomes. Research Plan: This uses a mixed methods implementation science approach. First we will build on existing preliminary data from adolescent girls with spina bifida, parents of girls with spina bifida, and experts in the field regarding the educational needs and learning style of the girls to inform creation of best-worst scaling surveys. The surveys will be administered to females with spina bifida ages 10-19 and parents of girls with spina bifida to identify the highest priority learning needs and best format of the intervention. This information will be used to create the first version of the curriculum, which will be refined through beta testing on dyads of adolescent girls with spina bifida and their parents. Finally, using the RE-AIM framework, we will conduct a pilot study on dyads of girls with spina bifida and their parents to evaluate key implementation measures, including reach, effectiveness, adoption, implementation, and maintenance. Career Development Plan: In parallel with this research plan and under the guidance of experienced mentors, Dr. Streur will develop expertise in intervention design and implementation and dissemination science.

项目概要/摘要候选人：Courtney Streur，医学博士、硕士，是一名儿科泌尿科医生和初级健康服务研究员，专注于了解身体残疾青少年的性健康和教育。职业目标是成为一名独立的临床研究者，开发、实施和传播促进身体残疾少女健康性发育的干预措施改善他们的长期性健康结果。研究背景：身体残疾的青春期女孩没有接受过有关性健康的教育，这导致导致意外怀孕、避孕药具使用率低以及性胁迫和性虐待。身体残疾和合并症影响他们的性健康（例如性早熟、失禁此外，认知障碍通常与身体残疾有关（例如，执行功能障碍）影响他们学习和发展新技能的能力。残疾少女需要量身定制的性健康教育。这项研究的目标是创建和实施性健康教育。完善新颖的、以用户为中心的在线性健康课程，这将为患有脊柱裂的女孩量身定制。扩大到其他残疾女孩，作为后续 R01 实施和传播。具体目标：1）发现并严格定义最优先的性健康知识和技能患有脊柱裂的青春期女孩的成就需求和学习方式 2) 在线设计和测试。针对患有脊柱裂的少女的性健康干预原型，可改善她们的性能力健康知识和自我管理技能发展 3) 对干预措施进行试点评估。实施关键成果的原型。研究计划：这使用混合方法实施科学方法。来自患有脊柱裂的青春期女孩、脊柱裂女孩的父母以及相关专家的初步数据关于女孩的教育需求和学习方式的领域，为创建最佳/最差衡量标准提供信息该调查将针对 10 至 19 岁患有脊柱裂的女性以及患有脊柱裂的女孩的父母进行。脊柱裂以确定最高优先级的学习需求和干预的最佳形式。将用于创建课程的第一个版本，该课程将通过对成对的 Beta 测试进行完善最后，我们将利用 RE-AIM 框架，对患有脊柱裂的少女及其父母进行一项调查。对患有脊柱裂的女孩及其父母进行试点研究，以评估关键的实施措施，包括范围、有效性、采用、实施和维护。职业发展计划：与本研究计划并行，在经验丰富的导师的指导下，斯特鲁尔博士将发展干预设计、实施和传播科学方面的专业知识。