CULTURALLY TAILORED COUNSELING & DECISION MAKING AMONG WOMEN WITH BREAST CANCER

因地制宜的咨询

• 批准号: 7953664
• 负责人: HEIDDIS VALDIMARSDOTTIR
• 金额: $ 0.15万
• 依托单位: ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-03-01 至 2009-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7953664
• 关键词: Address; Affect; African American; Altitude; Attitude; Behavioral; Belief; Cancer Patient; Caucasians; Caucasoid Race; Clinical Research; Cognitive; Communities; Computer Retrieval of Information on Scientific Projects Database; Counseling; Decision Making; Emotional; Fright; Funding; Genetic Counseling; Goals; Grant; Institution; Malignant Neoplasms; Medical; Newly Diagnosed; Outcome; Patients; Randomized Controlled Clinical Trials; Research; Research Personnel; Resources; Source; Stigmatization; Testing; United States National Institutes of Health; Woman; malignant breast neoplasm

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The possibility that culture-specific altitudes and beliefs affect BRCA-decision making among African-American women has been raised by several studies. Mistrust of the medical community, fear of stigmatization and fatalistic attitudes towards cancer have been cited as barriers to testing among African American women. However, standard genetic counseling does not specifically address these culture-specific concerns. This may explain why standard genetic counseling has been less effective for African American women than for Caucasian women. In addition, little is known about the impact of genetic counseling on BRCA decision-making among African American breast cancer patients. It is important to understand which factors affect BRCA counseling/testing decisions among breast cancer patients. The goal of this project is to develop and evaluate the impact of culturally tailored genetic counseling on patient decision-making regarding BRCA testing and subsequent cognitive, emotional, and behavioral outcomes. We propose a randomized trial among newly diagnosed African American breast cancer patients in which we will compare standard genetic counseling (SGC) to culturally tailored genetic counseling (CT-GC).

该副本是利用众多研究子项目之一 由NIH/NCRR资助的中心赠款提供的资源。子弹和 调查员（PI）可能已经从其他NIH来源获得了主要资金， 因此可以在其他清晰的条目中代表。列出的机构是 对于中心，这不一定是调查员的机构。 几项研究提高了非裔美国妇女中特定文化的高度和信念影响BRCA决定的可能性。医学界的不信任，对污名化和对癌症的宿命论态度的恐惧被认为是非裔美国人妇女测试的障碍。 但是，标准的遗传咨询并不能特别解决这些特定文化的关注。 这可以解释为什么标准的遗传咨询对非裔美国妇女的效果不如白人妇女有效。 此外，关于遗传咨询对非裔美国乳腺癌患者BRCA决策的影响知之甚少。重要的是要了解哪些因素会影响乳腺癌患者的BRCA咨询/测试决策。 该项目的目的是开发和评估文化量身定制的遗传咨询对有关BRCA测试以及随后的认知，情感和行为结果的患者决策的影响。我们建议在新诊断的非裔美国乳腺癌患者中进行一项随机试验，其中我们将将标准遗传咨询（SGC）与文化量身定制的遗传咨询（CT-GC）进行比较。