UNIVERSAL DATA AND SERUM SPECIMEN COLLECTION SYSTEM FOR HEMOPHILIA

血友病通用数据和血清样本采集系统

• 批准号: 7607273
• 负责人: ELLIS J NEUFELD
• 金额: $ 0.22万
• 依托单位: BOSTON CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-04-01 至 2008-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7607273
• 关键词: Blood; Blood-Borne Pathogens; Caring; Centers for Disease Control and Prevention (U.S.); Clinical Data; Collaborations; Computer Retrieval of Information on Scientific Projects Database; Data; Disease; Funding; Future; Grant; Hemophilia A; Hemorrhage; Infection; Institution; Measurement; Monitor; Persons; Research; Research Personnel; Resources; Safety; Serum; Source; Specimen; System; Testing; United States National Institutes of Health; arthropathies; sample collection; treatment center

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. Specific Aims /Objectives: The Universal Data and Serum Specimen Collection System will extend CDC's collaboration with the Hemophilia Treatment Centers (HTC) by assisting with the analysis of a uniform set of clinical data routinely collected by HTCs. These data are used to monitor the extent of complications of congenital bleeding disorders in the U.S. Specific measurements will be analyzed to evaluate the degree of joint disease. In addition, free testing of serum specimens collected annually from persons receiving care in the HTCs for the presence of blood borne pathogens will be offered by CDC to assist HTCs in monitoring related infections. After testing, the remainder of each serum specimen will be used by the CDC to establish a serum bank for possible future use in evaluating the safety of blood products used by these persons.

该子项目是利用该技术的众多研究子项目之一 资源由 NIH/NCRR 资助的中心拨款提供。子项目及 研究者 (PI) 可能已从 NIH 的另一个来源获得主要资金， 因此可以在其他 CRISP 条目中表示。列出的机构是 对于中心来说，它不一定是研究者的机构。 具体目的/目标： 通用数据和血清样本采集系统将通过协助分析 HTC 常规收集的统一临床数据集，扩大 CDC 与血友病治疗中心 (HTC) 的合作。 这些数据用于监测美国先天性出血性疾病并发症的程度。将分析具体测量结果以评估关节疾病的程度。 此外，疾病预防控制中心还将免费检测每年从 HTC 接受护理的人员身上采集的血清样本是否存在血源性病原体，以协助 HTC 监测相关感染。 检测后，疾病预防控制中心将使用每个血清样本的剩余部分建立血清库，以便将来用于评估这些人使用的血液制品的安全性。