Developing an Innovative Decision Support Tool for Pediatric Neuromuscular Scoliosis

开发儿童神经肌肉脊柱侧凸的创新决策支持工具

基本信息

批准号：
10663314
负责人：
Jody Lin
金额：
$ 17.32万
依托单位：
UNIVERSITY OF UTAH
依托单位国家：
美国
项目类别：
财政年份：
2022
资助国家：
美国
起止时间：
2022-07-15 至 2027-05-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10663314
关键词：
Address Adherence Adoption Adult Agreement Award Benefits and Risks Biometry Child Childhood Climacteric Clinical Collaborations Communication Communication Methods Consultations Cost Effectiveness Analysis Decision Making Dedications Deformity Development Disease Elements Equilibrium Exercise Face Family Foundations Future Goals Grant Health Health Services Research Health system Healthcare Heterogeneity Hospitalists Impaired cognition Impairment Intervention Knowledge Lead Leadership Life Medical Mentors Modeling Modification Morbidity - disease rate Multicenter Trials Musculoskeletal Neurologic Neuromuscular conditions Operative Surgical Procedures Orthopedics Outcome Outcome Measure Pain Pain management Parents Pathology Patient Preferences Patients Physical therapy Physicians Pilot Projects Population Process Provider Proxy Psychology Randomized Randomized, Controlled Trials Research Research Activity Research Personnel Research Training Risk Science Scientist Spinal Spinal Fusion Testing Training Training Activity Training Programs Uncertainty Universities Utah Vertebral column Work Wrestling acceptability and feasibility career development clinical decision support clinical practice comorbidity design disorder control effectiveness evaluation effectiveness outcome expectation experience experimental study feasibility testing health communication high risk human centered design implementation facilitators implementation science implementation strategy improved improved outcome individual patient innovation mortality multidisciplinary neuromuscular novel preference programs respiratory health satisfaction scoliosis shared decision making skills success support tools surgical risk tool treatment risk

项目摘要

PROJECT SUMMARY/ABSTRACT This proposal describes a 5-year research training program for Jody Lin, MD, MS, a pediatric hospitalist at the University of Utah. Dr. Lin’s long-term goal is to become an independent physician scientist who develops scalable decision support tools to improve outcomes for children with medical complexity through shared decision making (SDM). The award will support Dr. Lin to accomplish the following goals: 1) Gain expertise in the psychology of decision making, 2) Undergo advanced training in risk communication strategies in settings of uncertainty, 3) Obtain experience in applying implementation science to the design of decision support tools, 4) Acquire leadership skills in assembling and managing multidisciplinary scientific teams. Dr. Lin will be supported by an outstanding team of mentors who are dedicated to her success and possess diverse expertise in decision science (Dr. Fagerlin), health communication (Dr. Kaphingst), implementation science (Dr. Asch), and pediatric orthopaedics (Dr. Narayanan). Dr. Lin also has three advisors with expertise in children with medical complexity, career development, and biostatistics. In spite of broad recognition that SDM is a promising approach to improving outcomes for children with medical complexity, little is known about how to improve SDM for these children in the clinical setting. This project will develop and test the feasibility of a novel decision support tool on surgical treatment decision making for children with neuromuscular scoliosis (NMS). The aims of the project are as follows. In aim 1, Dr. Lin will apply new skills in health communication to identify effective risk communication methods to communicate uncertainty in decision making for children with NMS. In aim 2, Dr. Lin will design a decision support tool for use during orthopaedic consultation for children with NMS, including discoveries from aim 1. In aim 3, Dr. Lin will conduct a pilot feasibility and acceptability study of the decision support tool. This study will inform the development of a large, multicenter trial of the decision support tool for children with NMS. Through the training and research activities embedded in this proposal, Dr. Lin will address gaps in our understanding of how to support treatment decision making for children with NMS. This study will serve as a critical model for developing decision supports for clinical decisions in the growing population of children with medical complexity. Completion of the proposed activities will prepare Dr. Lin to independently lead a larger research program evaluating and developing decision support to improve outcomes for populations of children and adults with multiple comorbid conditions through better SDM.

项目概要/摘要该提案描述了为乔迪·林（Jody Lin）（医学博士、理学硕士）提供的为期 5 年的研究培训计划，她是该医院的儿科住院医生。林博士的长期目标是成为一名独立的医学科学家。可扩展的决策支持工具，通过共享来改善患有医疗复杂性的儿童的结果该奖项将支持林博士实现以下目标：1）获得以下方面的专业知识：决策心理学，2) 在环境中接受风险沟通策略的高级培训不确定性，3）获得将实施科学应用于决策支持工具设计的经验， 4) 林博士将获得组建和管理多学科科学团队的领导技能。得到优秀导师团队的支持，他们致力于帮助她取得成功并拥有多元化的专业知识决策科学（Fagerlin 博士）、健康传播（Kaphingst 博士）、实施科学（Asch 博士）、林博士还拥有三位具有儿童骨科专业知识的顾问。医学复杂性、职业发展和生物统计学。尽管人们普遍认识到 SDM 是改善患有医疗疾病的儿童的结局的一种有前途的方法复杂性，但对于如何在临床环境中改善这些儿童的 SDM 知之甚少。开发并测试一种新颖的手术治疗决策决策支持工具的可行性患有神经肌肉脊柱侧凸 (NMS) 的儿童该项目的目标如下，林博士将申请目标 1。健康沟通新技能，以确定有效的风险沟通方法进行沟通在目标 2 中，林博士将为患有 NMS 的儿童设计决策支持工具。在 NMS 儿童骨科咨询期间使用，包括目标 1 的发现。在目标 3 中，林博士将对决策支持工具进行试点可行性和可接受性研究。这项研究将为开发针对 NMS 儿童的决策支持工具的大型多中心试验。通过本提案中包含的培训和研究活动，林博士将解决我们在了解如何支持 NMS 儿童的治疗决策。为不断增长的儿童群体的临床决策提供决策支持的关键模型的开发完成拟议的活动将使林博士能够独立领导一个更大的团队。研究计划评估和制定决策支持，以改善儿童群体的成果以及通过更好的 SDM 治疗患有多种共病的成年人。