The Patient Journey for Children with Medical Complexity during Pandemic Era andits implications.

大流行时期医疗复杂性儿童的患者旅程及其影响。

基本信息

批准号：
10515047
负责人：
Onur Asan
金额：
$ 45.68万
依托单位：
STEVENS INSTITUTE OF TECHNOLOGY
依托单位国家：
美国
项目类别：
财政年份：
2022
资助国家：
美国
起止时间：
2022-09-14 至 2024-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10515047
关键词：
Academy Activities of Daily Living Address Ambulatory Care Facilities American Apnea Behavioral COVID-19 COVID-19 pandemic COVID-19 pandemic effects Caregivers Caring Categories Child Child Care Childhood Chronic Clinic Cognitive Complex Consumption Data Data Analyses Data Collection Development Effectiveness Emergency department visit Emotional Environment Ethnic Origin Exposure to Family Caregiver Future Goals Health Health Care Research Health Services Needs Healthcare Home Hospitalists Hospitalization Human Inpatients Institutes Intervention Intervention Studies Laws Mechanical ventilation Medical Medical Errors Medical center Methodology Monitor Multicenter Studies New Jersey Nurses Only Child Outcome Outpatients Output Parents Patient Care Patients Pediatric Hospitals Pediatrics Persons Physiological Population Positioning Attribute Provider Recommendation Records Research Resources Risk Schools Social Distance Specialist Stress Students Surveys Techniques Technology Visit Vulnerable Populations care delivery clinical care coronavirus disease demographics experience graduate student health care service high risk high risk population improved innovation inpatient service lens medical delivery system medical specialties medical vulnerability member novel novel coronavirus pandemic disease patient home care patient population pediatric patients resilience social telehealth undergraduate student virtual healthcare virtual visit

Academy Activities of Daily Living Address Ambulatory Care Facilities American Apnea Behavioral COVID-19 COVID-19 pandemic COVID-19 pandemic effects Caregivers Caring Categories Child Child Care Childhood Chronic Clinic Cognitive Complex Consumption Data Data Analyses Data Collection Development Effectiveness Emergency department visit Emotional Environment Ethnic Origin Exposure to Family Caregiver Future Goals Health Health Care Research Health Services Needs Healthcare Home Hospitalists Hospitalization Human Inpatients Institutes Intervention Intervention Studies Laws Mechanical ventilation Medical Medical Errors Medical center Methodology Monitor Multicenter Studies New Jersey Nurses Only Child Outcome Outpatients Output Parents Patient Care Patients Pediatric Hospitals Pediatrics Persons Physiological Population Positioning Attribute Provider Recommendation Records Research Resources Risk Schools Social Distance Specialist Stress Students Surveys Techniques Technology Visit Vulnerable Populations care delivery clinical care coronavirus disease demographics experience graduate student health care service high risk high risk population improved innovation inpatient service lens medical delivery system medical specialties medical vulnerability member novel novel coronavirus pandemic disease patient home care patient population pediatric patients resilience social telehealth undergraduate student virtual healthcare virtual visit

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项目摘要

Project Summary/Abstract CMC are a small proportion of children and youth with special health care needs that account for less than 1-5% of all children but consume over one third of health care resources. They are at increased risk of multiple and prolonged hospitalizations, inefficient use of healthcare resources, frequent medical errors, poor health outcomes, significant unmet needs for health services, and stress on family caregivers. This complexity and related problems have been and continue to be even further exacerbated by the COVID pandemic. The rise of the novel coronavirus (COVID-19) changed dynamics and contributed to a paradigm shift in the overall health care practice which will probably have long lasting impact and may be the “new normal”. In this exploratory study, our overarching goal is to understand how COVID-19 Pandemic impacted CMC care patient journey. We will capture the experience of multi stakeholders associated with CMC care including hospitalists, pediatrics outpatient providers, home nurses, CMC caregivers and patients. The findings will help the ongoing efforts to redesign and improve CMC care especially in the light of new challenges introduced by the COVID-19 Pandemic. The aims of the project are to: 1) Perform a multi-stakeholder 360-degree analysis of the COVID experience for CMC patients across different settings in their patient journey using qualitative and human factors techniques. 2) Quantitatively evaluate usefulness and experience of Telehealth use in CMC care, and 3) Evaluate the impact of pandemic on health outcome/utilization CMC using retrospective chart review. The research team is well positioned to address the proposed aims for the CMC population and thus guide identification of potential interventions to improve CMC care. This innovative, in-depth, and rich analysis of the CMC care patient journey during the pandemic using novel human factors methodologies will provide highly valuable information, not only for CMC, but also for other similarly complex care settings and patient populations.

项目摘要/摘要 CMC是有特殊医疗保健需求的儿童和青少年的一小部分在所有儿童中不到1-5％，但消耗了三分之一的医疗保健资源。他们是多次住院和长期住院的风险增加，医疗保健的使用效率低下资源，经常出现医疗错误，健康状况不佳，对健康的巨大需求服务，以及对家庭护理人员的压力。这种复杂性和相关问题已经存在，并且同时大流行，继续进一步加剧。小说的崛起冠状病毒（Covid-19）改变了动力学，并导致整体范式转变医疗保健实践可能会产生持久的影响，并且可能是“新常态”。在这项探索性研究中，我们的总体目标是了解Covid-19如何大流行受影响的CMC护理患者旅程。我们将捕获多利益相关者的经验与CMC护理相关 CMC护理人员和患者。这些发现将有助于持续的努力重新设计和改进 CMC护理尤其是鉴于COVID-19大流行引入的新挑战。这该项目的目的是：1）对COVID进行多方利益相关者360度分析使用定性的患者旅行中CMC患者在不同情况下的经验和人为因素技术。 2）定量评估有用性和经验在CMC护理中使用远程医疗，3）评估大流行对健康的影响结果/利用CMC使用回顾性图表审查。研究小组的位置很好解决拟议的CMC人群的目标，从而指导潜力的识别改善CMC护理的干预措施。 CMC护理的这种创新，深入和丰富的分析使用新型人为因素方法将提供大流行期间的患者旅程高度有价值的信息，不仅用于CMC，而且对于其他类似复杂的护理设置和患者人群。